In between   (a poem)
.
my mind struggles against its own illusion
nightmare tumbles out into still morning
light is heavy,
a fog of echoes...
and I am caught
.
day dreams the sunlight
dreams light the day
and I am caught in between
mourning echoes...
like a stillborn ghost
who can't take a breath in the present

….
  
I live on a tropical island and just want to go surfing with my husband, but the nausea in the early morning as I try to eat  breakfast and drive with him to the beach is so uncomfortable.  Day after day it makes even surfing a chore, and I consider not going anymore.  Background anxiety and unreasonable irritation interferes with our marriage, frustrates him enough to want me out.  

For me, a trip to the grocery store or meeting a group of people awakens the same dreadful fear as rockclimbing a cliff. Perspective has been lost in the extremes.  I try to gain some control over this hindering nuisance, seeking situations that bring the same surges of adrenaline so I can learn to master it.  If I can just push past the avoidance that would keep me inside doing nothing, if I can just ignore the feeling I want to throw up, if I can just get out there, I am rewarded with life’s potential beauty eventually.  Many days I do enjoy the thrill of mountain biking or connection with nature when surfing, but there are too many days of internal struggle that reduce what should be enjoyable to a relentless chore of wrestling inner demons.

The VA offers a few sessions of marriage counseling, and the doctor begins to explain PTSD.  ***, I’ve learned to cope with an unreliable brain, but now there’s this?  From what I understand (and that’s just me, an amateur philosopher) Sometimes the brain is so traumatized, that the memory is literally sealed off, encapsulated, protecting it from changing.  If later something happens that is similar, the brain triggers avoidance responses as a take-no-chances survival mechanism.  Literally the brain is protecting one’s self from one’s self.  This all-or-nothing strategy works fending off potential dinosaur attacks, but in our complex society, these automatic avoidance behaviors complicate functioning and well being.  Life becomes an attitude of constant reaction instead of motivated intention.

The website for the National center for PTSD says.  “After a trauma or life-threatening event, it is common to have reactions such as upsetting memories of the event, increased jumpiness, or trouble sleeping. If these reactions do not go away or if they get worse, you may have Posttraumatic Stress Disorder.”  

“Common reactions to trauma are:
• Fear or anxiety: In moments of danger, our bodies prepare to fight our enemy, flee the situation, or freeze in the hope that the danger will move past us. But those feelings of alertness may stay even after the danger has passed. You may:feel tense or afraid, be agitated and jumpy, feel on alert.  
• Sadness or depression: Sadness after a trauma may come from a sense of loss---of a loved one, of trust in the world, faith, or a previous way of life. You may:have crying spells, lose interest in things you used to enjoy, want to be alone all the time, feel tired, empty, and numb.  
• Guilt and shame: You may feel guilty that you did not do more to prevent the trauma. You may feel ashamed because during the trauma you acted in ways that you would not otherwise have done. You may:feel responsible for what happened, feel guilty because others were injured or killed and you survived.  
• Anger and irritability: Anger may result from feeling you have been unfairly treated. Anger can make you feel irritated and cause you to be easily set off. You may:lash out at your partner or spouse, have less patience with your children, overreact to small misunderstandings.  
• Behavior changes: You may act in unhealthy ways. You may:drink, use drugs, or smoke too much, drive aggressively, neglect your health, avoid certain people or situations.”   It lists four main symptoms: reliving the event, avoiding situations that remind of the event, feeling numb, and feeling keyed up (also called hyperarousal)”

Four words strung together: Post Traumatic Stress Syndrome.  They’ve become a tired cliché, exhausted from the endless threat of random cruelty camouflaged in banality, weary of the weight shouldering back the wall that separates death and gore from the living.  Living was a reflex beyond willpower and devoid of choice. Control was self-deception.  The mind was so preoccupied with A: survival, B: sanity, in that order.  Rest was a cruel illusion.  The tank was drained, no room for emotions ditched.  Empathy took too much effort, fear was greedy.  Hopefully they can be remembered and found on the other side, if there is one.  Sleep deprived cells were left hyper-alert from the imminent, shot up and addicted to adrenaline.  Living was Fate and Chance, and meant leaving that time and place sealed in forgetfulness.  

Now PTSD is a worn out acronym, a cold shadow of what it feels like.  I try to think of something more personal that can describe the way it randomly visits me, now resigned to its familiar unwelcome influence.  It steals through my brain, flying ahead of me with its own agenda of protecting sabotage.  Its like the Guardian Trickster of Native American legend.  Its an archetype but real enough to make mistakes: Chulyen, the black raven.

A decade after the ER, contentment is found in a garden of slow tranquility as a butterfly interrupts a sunbeam.  My heart fills with bittersweet as I’ve finally found something I love and want to keep.  Just then Chulyen’s grasping black claws clamp my heart with painful arrhythmia and it fills to burst, tripping in panic trying to recover its pace.  The sudden pain drops me to my knees, in the dirt between fragrant lavender and cherry tomatoes.  Pain stops breath and time and makes me remember the ER, when my heart rebelled its ordained purpose for a week.  I had tried to throw my bitter life back in God’s face but He didn’t take it.  Now that I have peace and a life that I treasure, He’s taking it now.  The price for my mistake is due.  It was all just borrowed time and I’m still so young, my children just babies.  God with a flick of cruelty reminds me not to put faith in the tangible, especially when its treasured.  The sharp claws finally relent and I can breathe, looking up with a gasp and the Raven takes flight overhead leaving a shadow.  Bright noon warmth, unusually heavy and foreboding, seems to say ‘there will come a time when you will not welcome the sun.’   Doctors run an EKG and diagnose ‘stress’.

The bird perches on my shoulder two more decades later, always seeing death just over there.  So I sit on the porch just a little longer and check my list again, delaying the unavoidable racing heart and rush of tension when I fix the motorcycle helmet strap under my chin.  I know all those stupid drivers have my life in their cell-phone distracted hands and hope my husband knows how much I love him, and my daughters too.  

Chulyen wakes me at 3:00 am when autumn’s wind aggravates the trees.  His rustle of black feathers outside unsettles summer’s calm night.  He brings an end-of-the-world portent that hints this peace is just temporary, borrowed.  Tribulation will return.

Ravens are attracted to bright shiny things.  Chulyen steals off with treasures like intention, and contentment.  I don’t realize they are missing until occasionally I find myself truly living in the moment.  I guess that is another reason why I crave adventure, for those instants and epiphanies that snap me out of that long term modis operandi of reacting, instead of being.  The daily list of ‘I must, or I should’ can for a brief while become ‘I want’  and I am free.

My companion the black bird perches relaxed in the desert on the gatepost of a memory.  A bullet-scarred paint-faded sign dangles by one corner from rusty barbed wire:
    No Trespassing    
    That Means You
I have a haunted idea what's behind the fence.  Chulyen implies the memory with a simple mistaken sound:
a Harley in the distance is for a second the agitating echo of a helicopter...
or those were the very same words they said when...
or I hear a few jangling clinks of forks in our warm kitchen...
hinting a cold cafeteria at 5:00 am smelling of fake eggs and industrial maple flavored corn syrup,
and everything else that happened that day...
My cells recollect, brace with the addictive rush of adrenaline.  But the raven denies access to the memory, distracting with discomfort.  I trip and I fall hard into the gritty dirt of irritation at the person who unknowingly reminded me.  Anxiety floods in along with fatigue of the helplessness of it all, back then and still now.  I can't go further.  Chulyen’s tricking deception says Leave This Memory, you never wanted to come back.
But I already knew from just recognizing the bird patiently sitting there a sentinal,
recalling every other time he tricked me with nausea and depression.
I tried to tell myself again that behind that gate,
the past has dried up from neglect.
Disintegrated into dust,
Blown away,
doesn't
exist.
…


After everything else, how to work through this?  The VA gave me a manual, a crudely printed set of worksheets with a government-looking blue cover page:  Cognitive Processing Therapy.
“In normal recovery from PTSD symptioms, intrusion, thoughts, and emotions decrease over time and no longer trigger each other.  However, in those who don’t recover, the vivid images, negative thoughts, and strong emotions lead to escape and avoidance.  Avoidance prevents the processing of the trauma that is needed for recovery and works only temporarily.  The ultimate goal is acceptance.  
There may be “stuck points”, conflicting beliefs or strong negative beliefs that create additional unpleasant emotions and unhealthy behavior.  For example, a prior belief may have been “ I am able to protect myself in dangerous situations.”  But after being harmed during military service, a conflicting belief surfaces, “I was harmed during service, and I am to blame.”  If one is ‘stuck’ here, it may take some time until one is able to get feelings out about the trauma, because one is processing a number of rationales.  “I deserved it because…” , or “I misinterpreted what happened, I acted inappropriately, I must be crazy…”  The goal is to change the prior belief to one that does not hinder acceptance.  For example, “I may not be able to protect myself in all situations.”

(chapter continues with recovery methods)

PTSD is not something you get over.
It is when soldiers get tired of hearing their own shots fire
Into a purple horizon of nothingness.
It is when assault victims are scared of becoming a statistic
And their brokenness is suffocating
It is when fear compels the mind to change
And it willingly obliges.
PTSD is when the darkness of human nature becomes evident
It is when it's stronghold is suddenly
More prominent than the beauty in the world
It's brash fingers create a vacuum
That ***** the sanity from your mind
Until you wake up in the middle of the night screaming
"Don't shoot me!"
"Don't **** her!"
You see him and now he is with your little sister
Taking her into his Jeep
While you stand there, watching
******* because you can do nothing about it.
This has not happened
And probably never will
But you are crippled by paralyzing bouts of anxiety and guilt and fear
From which your mind cannot console you
You can no longer hide the loss
That this event, this person, this illness
Has placed strategically within you.
It is when you will do anything to get these memories to stop playing on repeat
An endless loop maybe ended by alcohol
Check
Cutting
Check.
Promiscuity
Check
Anything that will eliminate cycle of not knowing
Of reliving
If only for a short time
Even pretending you believe in God
Because it makes it seem like there is a reason for this confusion
But then you begin to question why God would do this to his child
So you digress into darkness once again
Left feeling unsure.
PTSD is when you stop repressing memories
And they come back so forcefully that they knock you to the ground
Leaving you bruised and ******
Leaving you lost.
PTSD is different from other sicknesses
Because you do not feel sick
You feel there
Like you are in his bed again
And his room smells like mushrooms
That is actually a field of grenades
Waiting to explode throughout your small body
You remember the tone of his words
Slipping from his lips as though they are snakes
Strangling me, leaving breath unable to escape
This is not sick
As you feel no symptoms
But an altered state of consciousness
You do not even realize you are disconnecting as it happens
But this is Hell
This is war
You are broken
And the worst part about it
Is that you must understand your triggers
Your dissociations
Before you can get better.

The whole world has PTSD,
brought about by watching
far too much TV.
Normal people becoming
neurotic or psychotic
by all the "Breaking  News".

Talking heads spewing fearful
endless chapters of dread,
all with their own ax to grind
into our heads, day after day
after day until we want to scream.
Real news or fake, impossible
to know the difference.

A political landscape strewn with
landmines of division and hate.
Melting Ice, and adverse weather,
hurricanes and tornadoes devastate
and forest fires burn, as racists and
terrorists abound at every turn,
and crazy's with military weapons
killing us for sport, just to make
the nightly news, as our nation's
infrastructures crumble into ruins,
all "Breaking News day and night",
while we and the world choke and
quiver from an excessive Carb diet
of information overload, trying to
sleep bathed in bad dreams, laced
with too many strong doses of PTSD.

Why go back
when you can move forward?
I face this question
each day I breathe.
It's not always so easy
to answer.
P
T
S
D
Post
Traumatic
Stress
Disorder
Keeps me looking back
to my past
behind my shoulder.
P
T
S
D
Post
Traumatic
Stress
Disorder
Usually associated
with our war heroes.
The ones who can't leave
the battlefield behind.
I am not one of them.
I am just
an anxious
a depressed
in pain
person.
But I can't help
that I have it.
P
T
S
D
Post
Traumatic
Stress
Disorder
My battlefield
was the school,
the classrooms,
the playground.
The babysitter,
the dark closets,
the dark rooms,
the basement.
P
T
S
D
Post
Traumatic
Stress
Disorder
The anxiety
the migraines
the depression
the fibro
no sleep.
All lead back
to square one.
The abuse
by my peers
by my teachers
by my babysitter.
P
T
S
D
Post
Traumatic
Stress
Disorder
Four easy letters
Four simple words
Lifetime in pain
from those simple things
from those not so simple things.
P
T
S
D
Post
Traumatic
Stress
Disorder.

we had a real conversation for once
about your ptsd
you told me
you remember 100%
every guy you ever killed
and you went to iraq...
you told me
stories
what it was like
when you got back...
about waking up from a night terror
slashing your pillows
with a knife
about another guy
who almost strangled
his wife
you told me
all the reasons
you can't sleep
i wanted
to lay my head on your chest
but i
didn't

Turn the corner
Hand tenses
Looking down the iron sights I see an object fall
"Tango down" I call over the radio
what was his name? Tango, Threat, Terrorist, doesn't matter.
Explosion
Mud brick wall vaporized into dust
Keep going
Out of breathe
Keep going
Hand tenses
"Tango down"
Does it have kids? A Family? Threat eliminated
Round the corner
Hand tenses
"Three tangos on west building roof top"
Bullets from my brothers **** by my helmet
Return fire
"Take Cover!"
Sweat drenched face fogs up my goggles
Explosion
Brick pieces pummel my back
Ears ringing, faintly hearing
"Alpha down, Medic!"
Blurred vision, equilibrium thrown off
Raise my rifle
Hand tenses
Silhouette falls
"Medic!" heard faintly
Hand tenses
"Are you okay?" sounds distant
Hand tenses
"babe?" getting louder
Hand tenses

Hand tenses

Wake up
Sheets heavy with sweat
"Babe, are you ok?"
Throwing the blankets I jump back to the edge of the bed
Her frightened face
I've seen before
I look down
Hands tense
Same look, no tangos
No threats
Just Ghosts

They say there's strength in numbers    

But I just want the voices in my head

                                . . .

                     TO GO AWAY

PTSD

*The war followed me home.
It  penetrated my skin like nerve gas
Nobody could see it but it was there.
It sits by my feet like a dog.
When I go to bed with you
It lies between us keeping us apart.
I try to scrub it from my skin
In the shower but it won’t come off.
Like a heavy breathing crank call
It pants in my ear as I sleep.
Sometimes it shows me how strong it is
And holds the front door shut
and I cannot open it to go out.
At night just before bedtime
It passes me a handful of meds
I take them and swallow them
But I never ever look
straight into its  eyes.

but how do I explain to her that even though I know
that it's her hands touching me
I swear I can feel his?

How will I explain to her, whoever she may be,
that I will wake up at night screaming from the memory
of being pinned down by him?

I don't know how to explain it.
How do you explain it?

(d.d.b)

I remember hiding under an old cherry wood dining table. I remember holding my baby sister, shielding her eyes, covering her and trying to tuck her away. Pulling her as close to me as possible, like I might be able to fold her skin into mine so she wouldn’t have to see what was happening around us. I can still hear her crying into my bony 7 year old shoulder and whaling amongst the chaos with the bitty 4 year old voice that she had at the time. I remember the heart stopping feeling of watching my mother get thrown into the wall and watching my brother, 11 years older than myself, hurtle the beautiful antique silver coffee *** that my grandmother left us- into the space near her head where it bludgeoned the wall. I remember barely being taller than the table myself and pulling my sister out when I saw a chance for us to escape the scene and run into another room.  I remember turning around and seeing my older sister, who was 10 at that time, running up and hitting and kicking my brother and getting shoved to the side. I’ve grown accustomed to the headaches I now get at the sight of flashing police lights.

My mind is a maze
Mirrored walls
Sloped floors
I can't find my way out of it

Like a circus freak show
My mind freaks me out
Terrorizing me in the night
Invading my resting dreams

But in these times I'm lost
Although I'm scared and alone
There is peace in these halls
Of my mazed mirrored mind

I wanted to write a poem about the joys simple things. But I’ve lost the meaning of them since I’ve been away it seems. For many years I’ve served duty tours, it’s just the life that I have lived. So I write poems of war and of warriors and death; sometimes it’s all I have left to give.

I picked my brain for images of candlelight picnics on sandy beaches, but I opened the basket looking for ammo to load in my weapon breaches. Oiling my guns may not be romantic, or when I lace my boots up tight, but you can bet your **** it comes in handy when you’re caught in a fire fight.

I tried concentrating as hard as I could, trying to envision more peaceful things. Instead I was reminded of Black Hawks with M240-Bravos in weapon slings. It seems I can’t be normal or think like a normal human being, I’ve been battle hardened inside my soul and this is part of what it brings.

PTSD is what they call it, they say I need some aid, but it just feels like second nature, pulling the pins and throwing grenades.  I’ll go home one day and I’ll look the same because my wife can’t see my scars, I’ve hid them all inside myself and that’s what makes this hard.

They tell me I’ve been lucky, I didn’t get a single injury. But the damage was done inside of me and that’s what they don’t see. So I’ll go home a “lucky one” and act like I am fine, and live my days pretending, while keeping this war trapped in my mind.

Process hope she says
Find the beauty in all things
Effing counselors

what is PTSD they ask

it’s not knowing which
way is right or left
it’s not knowing how
to maneuver your own mood swings
it’s trying to find your way
through a dark maze during the night
with not an ounce of light to guide you

it’s suicidal tendencies
it’s never thinking you’re enough
it’s thinking you’re *****
it’s thinking you’re useless
it’s thinking you’re used
its thinking you’re undeserving

it’s icing people out at the second
you start to feel emotion
it’s numbing yourself to the world
it’s laying in bed
it’s not being able
to move your body
for days on end
because the pain
strikes to the bone
it’s aches

its going a year out of treatment
and you were strong
until the anniversary month roles around
and suddenly you are a glass house
with stones being pelted to the core

it’s lost years
years of life I may
never fully remember

it’s nightmares
the gut wrenching ones
that night replaying
over and over and over

but most of all

it’s guilt
for not being able
to save my 7 year old self

Don't tell me to get in the shower "It'll make you feel better,"
When you are the one who caused the bruises,
the internal ache,
the tears stained on my face,
the nightmares when I close my eyes,
and the PTSD everybody thinks is a lie.

Panic
Throughout
Scary
Dreams

Patience
Tried
Summons
Danger

Personal
Turmoil
Self
Doubt

Post
Traumatic
Stress
Disorder

Spoke to a near and dear friend today who relayed a story to me, asked me to write something about it, then requested I shared it. Thanks to all of you who do what you must.

I was feeling most light
To start this day
But now I confess
That has gone away


I will reveal things
Some consider dark
And be very frank
Though you may find it stark

I have hunted and killed
The most elusive of prey
Hoping to never re-visit
That final day

And though I bury the memory
It seems to rise from the dead
Once again though as yesterday
Living in my head

The last look on his face
The last living soul to see
The confusion and surrender
His life showed unto me

Not like I had a choice
It was his life or mine
Only one of us would ever see
Once again the sunshine

One of us or another
Would ever again know life
That's how it is
At the point of a knife

One life is ended
Another goes on
Only one of us would see
Another dawn

You call it PTSD
I call it life
Living to tell the story
At the tip of the knife.

acid flashback in the trees
         frenzied branches feathered leaves
swaying seizing in the breeze
           forming shapes that his mind sees
scattered thoughts attention free

I don't think most people understand depression
                                                    ­                         suicide
                                                         ­                           PTSD
or the cycles that they come in as if they were tides.

People don't see past the smiles and laughter to the darkness within;
That you could be surrounded by love and feel okay
                                                            ­                            yet still be dead

That no matter how much comfort or peace you have it still gnaws away in the beck of your mind and chews a hole in your heart.

Cut wrists and suicide attempts aren't a cry for attention but for help;
does anybody out there hear me? see me? feel the way I feel? does anybody get that I am on the edge and losing it? why does nobody listen? why don't they take me serious? am I worth anything?

It disgusts me we execute the wounded and condemn their suffering;
Maybe they shouldn't feel the way they feel, but it's how they feel, so quit trying to tell them to stop feeling that way!
QUIT TRYING TO FIX THEM

Just be there... they need to know they aren't alone.

These days
Dreams and hell
Look the same to me
So I don't sleep

Most days
I can't get the taste of him
Out of my mouth
So I don't eat

Some days
I can't remember
How to say no
So I don't speak

But I'm tired
And I'm hungry
And I'm starting to forget the sound of my voice

my wrists still hurt more from your rough hands
pinning me to the floor,
than anything I've ever done to them before.

my head still aches more from screaming,
rather than by an old concussion lingering.

my eyes still cry and leak over,
but I'm not sure why anymore.

But as long as it's don't ask, don't tell,
I'll be fine.

War kills
not just bodies
but souls
while in its wake
leaving hearts emptied
with holes

The spirit of men
ruined by trauma
it's clear
they look to tomorrow
and tremble
from fear

For what it will bring
these men
never know
often like Jekyll
and Hyde
which one will now show

War
is pure hell
for all that it touches
and there's no hiding it
with a million
airbrushes

Please take me away
Troubled times have haunted me
Stop my aggression
Darkness plagues me

When johnny comes marching home from war
johnny isnt johnny anymore
too many images have been absorbed
and johnny isnt johnny anymore

what happened to the soldier so strong?
i'm telling you, something is wrong

they go over there and take away life
then come back home and **** their wife
with no war thats left to fight
and they dont know that ****** isnt right

when a battlefield is the only place you belong
i'm telling you, something is wrong

For all my friends and family i know you are all feeling
frustrated, helpless, and ready
to give up. It’s not your fault. You are not the cause of our suffering.

You may find that difficult to believe, since we may lash out at you, switch from being loving and kind to non-trusting and cruel on a dime, and we may even straight up blame you. But it’s not your fault. You deserve to understand more about this condition and what we wish we could say but may not be ready.

It is possible that something that you said or did “triggered” us. A trigger is something that sets off in our minds a past traumatic event or causes us to have distressing thoughts. While you can attempt to be sensitive with the things you say and do, that’s not always possible, and it’s not always clear why something sets off a trigger.

The mind is very complex. A certain song, sound, smell, or words can quickly fire off neurological connections that bring us back to a place where we didn’t feel safe
, and we might respond in the now with a similar reaction (think of military persons who fight in combat — a simple backfiring of a car can send them into flashbacks. This is known as PTSD, and it happens to a lot of us, too.)

But please know that at the very same time that we are pushing you away with our words or behavior, we also desperately hope that you will not leave us or abandon us in our time of despair and desperation.

This extreme, black or white thinking and experience of totally opposite desires is known as a dialectic. Early on in our diagnosis and before really digging in deep with DBT (Dialectical Behavior Therapy), we don’t have the proper tools to tell you this or ask for your support in healthy ways.

We may do very dramatic things, such as harming ourselves in some way (or threatening to do so), going to the hospital, or something similar. While these cries for help should be taken seriously, we understand that you may experience “burn out” from worrying about us and the repeated behavior.

Please trust that, with professional help, and despite what you may have heard or come to believe, we CAN and DO get better.

These episodes can get farther and fewer between, and we can experience long periods of stability and regulation of our emotions. Sometimes the best thing to do, if you can muster up the strength in all of your frustration and hurt, is to grab us, hug us, and tell us that you love us, care, and are not leaving.

One of the symptoms of Borderline Personality Disorder is an intense fear of being abandoned, and we therefore (often unconsciously) sometimes behave in extreme, frantic ways to avoid this from happening. Even our perception that abandonment is imminent can cause us to become frantic.

Another thing that you may find confusing is our apparent inability to maintain relationships. We may jump from one friend to another, going from loving and idolizing them to despising them – deleting them from our cell phones and unfriending them on Facebook. We may avoid you, not answer calls, and decline invitations to be around you — and other times, all we want to do is be around you.

This is called splitting, and it’s part of the disorder. Sometimes we take a preemptive strike by disowning people before they can reject or abandon us. We’re not saying it’s “right.” We can work through this destructive pattern and learn how to be healthier in the context of relationships. It just doesn’t come naturally to us. It will take time and a lot of effort.

It’s difficult, after all, to relate to others properly when you don’t have a solid understanding of yourself and who you are, apart from everyone else around you.

In Borderline Personality Disorder, many of us experience identity disturbance issues. We may take on the attributes of those around us, never really knowing who WE are.  You remember in high school those kids who went from liking rock music to pop to goth, all to fit in with a group – dressing like them, styling their hair like them, using the same mannerisms? It’s as if we haven’t outgrown that.

Sometimes we even take on the mannerisms of other people (we are one way at work, another at home, another at church), which is part of how we’ve gotten our nickname of “chameleons.” Sure, people act differently at home and at work, but you might not recognize us by the way we behave at work versus at home. It’s that extreme.

For some of us, we had childhoods during which, unfortunately, we had parents or caregivers who could quickly switch from loving and normal to abusive. We had to behave in ways that would please the caregiver at any given moment in order to stay safe and survive. We haven’t outgrown this.

Because of all of this pain, we often experience feelings of emptiness. We can’t imagine how helpless you must feel to witness this. Perhaps you have tried so many things to ease the pain, but nothing has worked. Again – this is NOT your fault.

The best thing we can do during these times is remind ourselves that “this too shall pass” and practice DBT skills – especially self-soothing – things that helps us to feel a little better despite the numbness. Boredom is often dangerous for us, as it can lead to the feelings of emptiness.  It’s smart for us to stay busy and distract ourselves when boredom starts to come on.

On the other side of the coin, we may have outburst of anger that can be scary. It’s important that we stay safe and not hurt you or ourselves. This is just another manifestation of BPD.

We are highly emotionally sensitive and have extreme difficulty regulating/modulating our emotions. Dr. Marsha Linehan, founder of DBT, likens us to 3rd degree emotional burn victims.

Through Dialectical Behavior Therapy, we can learn how to regulate our emotions so that we do not become out of control.  We can learn how to stop sabotaging our lives and circumstances…and we can learn to behave in ways that are less hurtful and frightening to you.

Another thing you may have noticed is that spaced out look on our faces. This is called dissociation. Our brains literally disconnect, and our thoughts go somewhere else, as our brains are trying to protect us from additional emotional trauma. We can learn grounding exercises and apply our skills to help during these episodes, and they may become less frequent as we get better.

But, what about you?

If you have decided to tap into your strength and stand by your loved one with BPD, you probably need support too.  Here are some ideas:

Remind yourself that the person’s behavior isn’t your fault

Tap into your compassion for the person’s suffering while understanding that their behavior is probably an intense reaction to that suffering

Do things to take care of YOU. On the resources page of this blog, there is a wealth of information on books, workbooks, CDs, movies, etc. for you to understand this disorder and take care of yourself. Be sure to check it out!

In addition to learning more about BPD and how to self-care around it, be sure to do things that you enjoy and that soothe you, such as getting out for a walk, seeing a funny movie, eating a good meal, taking a warm bath — whatever you like to do to care for yourself and feel comforted.

Ask questions. There is a lot of misconception out there about BPD.

Remember that your words, love, and support go a long way in helping your loved one to heal, even if the results are not immediately evident

Not all of the situations I described apply to all people with Borderline Personality Disorder. One must only have 5 symptoms out of 9 to qualify for a diagnosis, and the combinations of those 5-9 are seemingly endless.  This post is just to give you an idea of the typical suffering and thoughts those of us with BPD have.

This is my second year in DBT. A year ago, I could not have written this letter, but it represents much of what was in my heart but could not yet be realized or expressed.

My hope is that you will gain new insight into your loved one’s condition and grow in compassion and understand for both your loved one AND yourself, as this is not an easy road.

I can tell you, from personal experience, that working on this illness through DBT is worth the fight. Hope can be returned. A normal life can be had. You can see glimpses and more and more of who that person really is over time, if you don’t give up.  I wish you peace.

And after he finishes,
The adrenaline stops.
I am left all alone,
All alone with my thoughts.

The memories come flooding back,
And suddenly I am young again.
Suddenly it's so hard to pretend
That I am okay.

At that moment I am just a girl,
Defenseless, confused, and seeking refuge
In my own little world.

I knew that it was bad when I could barely talk myself out of bed in the morning. And when I did, I counted down the hours until I could drown my sorrows again.

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is not a disability to me
be it PTSD
or Bi Polar
or Anxiety Depression
or just riding Solo

it's not a disability to me
it may play havoc
with my everyday life but
it's not an impediment
or an indication
that you lack ability
to deal with living strife

it's not a disability to me
it's more a heightened empathy
a conscious awareness
not a disease (some cases can be)
but not a disability to me

it just means your fortitude
takes you to the next level
when the ground falls
beneath your feet
you don't lay down to grovel
you find ways to make
a near endless day
better than it was yesterday
you praise all tomorrows
because you made it today

your mental disabilty
has never been a disability
to me
*in any way