Hello, Autistic Adam here again.
When I was a student
They taught me
That Autistic kids live
In a weird world of their own:
A place of mystery
Too strange to describe:
A bubble universe
Cut off from “normal” folk.

I couldn’t picture what Autism was
Until, to my surprise
I learnt that I myself
Am Autistic.

So hard to describe,
But I can’t read those social cues
Or innuendo.
Do you really like or love me?
Or are you being polite
Even two faced?
I cannot tell.
Does a coffee mean coffee?

Tell me to jump
And I probably will.
For I take things literally.
You say, “I’m in trouble!”
And I think you really are!
Be careful what you say.

I’m so full of fear, anxiety and anger
Yet cannot tell what words of mine
Might anger you.

I cannot understand women…
But oh, that’s normal!
Haha.
But seriously,
People are baffling.

I have no girlfriend
Because I cannot tell
Between (them showing) interest and “being polite”.
The Dating Game is way beyond
My comprehension.

I’ve never asked anyone out
As I wouldn’t know where to take them
Or how to behave whilst we’re there.
Relationships are way beyond me.
What on Earth is that about?
I need a Rule Book…
If she kisses me
Should I propose?
Just don’t get it.
Better get a dog
Or cat.

I am a fictional character
As you know.
But I’m sure I’m a typical “case”.
Even my creator
Has his own Autistic traits.
There’s much of him in me.
And no I’m not referring to God here,
But who knows?
Maybe S\He is Autistic too
To some extent.

Paul Butters

© PB 18\10\2019.

The truth is easy to prove
for it’s right in front of you,
it doesn’t hide or keep secrets.

I am probably the most honest
person you will meet,
for I am an autistic person.
I will tell you as it is
no sweetness or sugar daddy
involved.

You want to know how
to be true? Learn how to
think like cats do. Don’t
worry about how others
feel, instead question
their motives but with
respect for their uniqueness
and views.

Don’t try to look through
someone else’s eyes without
asking them what they see
and then try to imagine what
it would be like.

You could also change
the way you view yourself,
stop seeing just yourself,
imagine what it would be like
to see like a blind mouse,
imagine the possibilities
are limitless, try to look
beyond the normal.

For normal is Technical:
(of a line, ray, or other linear
feature) intersecting a given
line or surface at right angles.

My autistic love is
normal for me. My love
is unconditional
because I love with
an autistic view,
you can trust I will
never lie to you.

We who have an autistic view
see life for what it is
and we will tell the truth
doesn’t matter if you wanted
it.

When I say I love you,
that’s the truth.

That’s autistic love
for you. We love like
cats do.

© 2019 By Amanda Shelton

The thing about being autistic, I have been getting all sorts of therapy since I was 3 years old. From reading, writing and speaking.
The thing about being autistic, I am brutally honest and super-empathetic. I have been able to pick up on other people's emotions for as long as I can remember. It's like getting glue on your hands, you peel off the layers of glue and it seems like a second skin.
The more I am around people the more their emotions stick to me so when I walk away I get to breath and focus on my own emotions.
The thing about being autistic, nobody wants to talk about it because it makes people uncomfortable. There is no cure to being autistic. It's something you are born with and it's a mental disability.
The thing about being autistic, and being called a special needs adult isn't any different from being a special needs kid. The Americans with Disabilities Act still helps me as an adult like getting a job and keeping a job. It's up to me whether I want to disclose it or not as a person with a mental disability.

Once I met a lady in a store who looked at my daughter and asked me
what was wrong with her why was she behaving this way
I saw my daughter and told her nothing, she is just dancing to her favourite song
and this is also one of the ways she plays

She looked confused so I explained and told her she is autistic
For which the lady congratulated me as she thought I said artistic

She may have not heard it properly but she was right wasn’t she?
Both the words had so much in common if only world could see


Autistic is artistic cos they look at the world very differently from us
They paint or write or sing what they feel and create a beautiful buzz
An autistic’s perception of world is so different so unique
And like any other artist they  prefer to let their work speak
Most autistics/artists are still looking for the medium
they want to express their feelings in, what makes them comfortable
Or maybe what they are doing right now is their art,
their stroke, their poetry,
whether or not we find that agreeable

Are we mature enough to understand their art?
Are we talented enough to polish their skills?


Don’t ruin it for them by moulding them into something they are not.
You will lose them for ever, for they won’t be the same without their art
Guide them through this life, make them as independent
as you would any other child but give them space and time
Don’t rush them into this life, for every child autistic or not,
is a caterpillar in cocoon, and will only emerge when nature chimes
You won’t get a butterfly by breaking the cocoon,
or else they will neither be a caterpillar nor a butterfly
Give them time, nourish them make them feel loved
and see how your beautiful butterfly flies

Do we have patience to give them that time?
Do we not know what broken dreams feel like? *


Guide them give them the proper tools to move and grow
How to overcome obstacles that you have to show
Don’t overload them with your expectations or pampering’s,
For every child autistic or not is like a seed,
and overloading will be very hampering
Always remember too much spoils and too little leaves impoverished
They need just the right amount of everything you can offer
and oh the places these kids go when they feel loved and cherished
Care for them, they are part of you, involve them in your life
and participate in theirs with all your Arden
And see how they bloom into the most beautiful flower in your garden

Have you learnt and polished your skills to be good gardener?
Have you taken training to be a good coach?

I have a child with autism and I have had my share of
taunts, staring, worthless advices and criticisms,
But I never let those rule my life; for it would have been insult
to all those angels I met in this journey of autism
This is a long journey and we will fall and fail, a lot, I know that
But I will learn, get up and make corrections
and move ahead and not worry about the stat
I will get up every time and help my daughter get up too,
I promise to my child and myself
We will keep moving whether life offers us
an empty or a well-stocked shelf

When I see my child I see
-A budding artist,
- A butterfly emerging from a cocoon,
-A beautiful sprouting seed.*

Yes I will give her all that she needs and enjoy the process.

It occurs to me that I cannot move forward while existing in the hellscape that is the absence of love.

I’ve never received love. I’ve always been a stranger to it. Very rarely have I received the smaller parts that make up the whole that is love: things like justice, recognition, trust and commitment are things that have always been absent in my relationships with others and myself. My mother kept me isolated from the world because she lacked the empathy to understand that I was a being separate from her. I was, in some quiet, unconscious way, a burden to her. From her I knew care, but little more. I was fed, given a room with a bed, even video games and a computer. I was kept alive. But I knew nothing of emotional connection; there was no recognition in what she would call her loving. I was never seen, only kept. When the cruelties of the world outside our home beat my body and mind until something cracked, and they reached inside of me to find my innocence and steal it, there was no justice. Justice, which is a necessary component of love. She would punish me instead, by making it clear how disgusting I was to her- I, who was six, and eight, and thirteen- for seeking out things I was being taught were love, or she would remain quiet in her words and actions. Adults all around me abused me. My only parent, teachers and relatives were all abusing me in a world where children my age were told adults were protectors, and teachers “second parents”, like my mother would tell me.

I don’t think it’s possible to heal without knowing love.
I’ve worked to “improve” myself- a word I’m now beginning to think should have been “heal”- for years. Obsessively, to a fault. Multiple times a day, I would write something new, a new note, something I’d realized I was doing wrong and needed “fixing”- a dangerous word when referring to the modification of the self.
This could be called care. But nothing else. Similar to how my mother cared for me but didn’t know (or would often refuse) to offer me the rest of the parts needed to form the whole that is love, I gave myself only parts of it. I didn’t love myself because I didn’t know how to. My definition of love had its foundations in the actions of my abusers. The love I gave myself was rendered unkind by the lack of my protectors’ understanding of love, their abuse, and what they taught me love was.

I worked so ******* trying to “fix” myself that this care became a kind of torture. I wouldn’t punish myself so much as I would work myself into exhaustion. It’s a subject too complex and full to delve into right now, but this, and every stressor in my life, was exacerbated by the fact that I am autistic. This is a definition I don’t entirely agree with but for the sake of conciseness I’ll say it– If you can imagine being born without a single tool to navigate the world, that is what autism is. I had to build much of what others know instinctively. This makes for an extremely confusing and terrifying childhood, even without abuse from an outside source. Due to the nature of autism, it can in itself be a kind of trauma. There are no known solutions to the issues it presents. In my rigorous self-studying (and observation of other autistic people I’ve known over the years), I’ve understood the core issues of autism and how to correctly- that is, naturally- arrive at the peace we so desperately need. I’ll write about it some day.

Autism made my life in isolation harder than it would be for those who aren’t autistic. Understanding the world without some kind of guidance was virtually  impossible for me. For a lot of autistic people, it remains impossible until death. I still need guidance in certain situations, mainly when in public or when feelings of stress cause regression, stripping me of my learned skills and pushing me into confusion and purely logic-based solutions (which only serve to offer relief in a short-term manner).

Only recently, within the last month, did I learn to approach self growth in better ways. Negativity is something I can now sit with, without fear of it. I listen to it, observe it. I always knew this is what should be done with feelings of negativity, but I wasn’t capable of it. I want to say that the only reason I became able to do this was because I was shown parts of love I had been refused all my life.
Recognition, justice, and a little bit of affection were all that I needed to move forward in my journey of becoming.
It was as if I had been waiting eagerly for years to know these fragments of love, so that I could finally work to modify the parts of me that needed modifying. The second I was shown this kindness, I felt I knew exactly how to use it. The gates had opened and I was sprinting, because finally, finally I could move forward. It was admittedly chaotic at first; I was overflowing with love in an overactive, confused state. The change for me was great and sudden, and difficult to manage. It was overwhelming, but I mostly settled into it after. Suddenly I was capable of accepting love, and was excited to give it. The kind words of strangers finally felt true; little positive messages left for anyone to read online were now a love I could accept and use. I looked through them and held their love in my arms, carrying it to my bed that day I remember feeling so sad and lonely. For the first time in years I wasn’t afraid of my sadness, of my loneliness, of my fear- of the results of my loveless life. I simply sat and cared for myself, and there was nothing lacking in my loving. I loved myself fully for one day.

The positive change in me that came from being given the fragments of love that had been absent all my life- justice, recognition and affection- lasted a month. Some part of me tells me that I should wait more to write about this, because right now is the end of that month.

The love has stopped, and I find myself in need of it again, and I’m wondering if I can survive by learning to give it to myself. Every time I wonder this, I think it’s impossible. That I’ll eventually reach that gate again, that my journey of becoming will inevitably stop. Self-love is made possible when we know what it is to be loved. I think this. I think this now.
Love cannot be built in isolation. I will need to be loved in order to continue loving myself. I’m too eager to continue my journey, I think. This is natural, but it leads to unpleasant things that might repel others and keep me from being loved. I’ve begged- an unbecoming, often disrespectful act. I’m desperate, but also unwilling to hurt anyone with my suffering.
It’s hard to know how to ask for kindness. It’s harder yet, as an autistic person. I want to ask for it, but something in me tells me doing this is rude. And the tension I feel from thinking this creates an unbearable stress as it grows into an unsolvable doubt: What about asking for something I need is rude? Is it possible to ask for fragments of love tactfully, without this rudeness? Is there something my autism isn’t letting me see?
There often is. The problem here then becomes, “I need a guidance most people do not need, and I know that asking for it is undesirable to others. I will be punished for needing.” Sometimes I don’t need this guidance. When I’m happy and safe, I can function independently more often. But happiness and safety are things one feels when loved. My dilemma is a paradox.

I’m tired of my loveless life. I wish for nothing more than to be able to love and be loved, because I am tired of lovelessness, because I am eager to know the terror of loving, eager to learn with someone to hold and be held, to commit love. I want to love and be loved because I am human, and because I think that at the end of lovelessness, there must be a kind of death, and I want so badly to live.
Perhaps if I weren’t autistic, my search would be less difficult and painful. I feel as if I am punished for needing, because most people do not need the things I need, and needing them is seen as a sign of rudeness, an inconsiderate nature or just plain incapacity, which are all undesirable traits.

My fear is to be undesirable for who I am. I can’t write it without crying. My fear is to be told I shouldn’t be touched because I can’t touch, that I shouldn’t be trusted because I can’t stop masking, that I shouldn’t be loved because I can’t love.
And I feel that all I can say is that I swear I can learn, if only you’ll give me the chance. I am willing to. And I’m sorry to beg, because I know it isn’t very good or beautiful, but please stay a while, so that I may allow myself to be defenseless and bare, like love requires one to be, like I long to be. If you must leave then go, but if you have the patience to spare, please use it on me. Because if at the bottom of lovelessness, there is only some death, I don’t want to ever know it. I don’t want to get any closer to it.

Them:
"You don't look Autistic."
"Wow, you must be really high functioning!"
"My friend has kids with Autism, and you don't behave anything like them."
Me:
"Thanks,
The years of bullying and abuse really paid off.
I finally learned never to display my vulnerabilites.
I learnt that others would be ashamed or uncomfortable of my differences,
Try to take advantage of my disability.
I suppose I should thank all those who thought it sport to hurt me,
I now internalize, minimize, conceal
Every difficulty.
I have been taught to sacrifice my own health and well being
For the sake of others ' needs to remain oblivious and prejudiced.
Thank you for reminding me that
All that hardwork and pain was worth it for you,
Who can operate in this public space
Unburdened by my challenges,
Oblivious to my suffering.
As a child,
My skills were less finely honed.
I had not yet developed the craft of invisibility.
One might have guessed me Autistic,
But the assumption was more often
Some combination of naughty and lazy.
Don't pretend to have sympathy for Autistic children when a comment
Clearly shows it wasn't there.
Let's be clear, too.
High function means highly camouflaged,
Easily forgotten,
Lost under the cruelty of others.
It does not mean low difficulty."

"You can join our group," he says,
"But only if you look everyone in the eyes."
I freeze.
Surely he is aware by now that the words
Autism Spectrum Disorder
In my chart were not placed there for fun?
Surely he is aware by now that finger twitching, body rocking,
     gaze avoiding
Are not for my frivolous pleasure?
Surely he is aware by now the absurdity of what he asks?
I am autistic.
Burning irritation of the eyes and panic aside,
Staring creepily into another human's eyeballs
Would render group a waste of time, no possibility to listen.
He knows this.
It is his prejudice that keeps him rooted to the spot.
I can feel the weight of his expectations boring into my forehead.
Explaining what it is to ask this of me,
I remind him that drawing this line would be excluding me because
Of my autism.
I tell him he would be losing a valuable participant,
A deep thinker, a creator, an avid listener.
I tell him he would be discriminating,
That I am protected by law.
Oh, no.
He budges not,
For he does not dislike autistic humans
So long as they act like they are Neurotypical,
So long as I pretend to be
Someone I am not.

The word bipolar can put fear in your heart
Because you’ll never know when it will start.
Also known as manic depression and it can become
A lifelong obsession.
Wondering when the next bout of fear will enter you
And if you know just what to do.
It is like the devil trying to take your soul
And it becomes a battle of control.
Most times in order for you to live
You must take the meds that they give.
If your child is bipolar or autistic, will you love them any less?
I don’t think so is my guess!
The LORD puts a child where he / she belongs
With a person he knows is strong.
The strength of the parents helps them to cope
With the problems old and new, and that is
Something that they do.
Let us be a little realistic, not many crimes
Are committed by bipolar or autistic
So how can they use words like crazy, retarted or handicapped
When against us the cards are stacked,
When this becomes a challenge close to home
Remember that you’re not alone.

I knock it out of the ballpark
by expressing myself with
just a few words.

I write poetry to show my emotions
that I have trouble expressing
through my actions.

I am autistic and my brain is wired differently than yours.
Emotions are like the ocean,
my tides might rise higher than yours.

I have learned how to ride the waves,
like a pro I surf as I ride with pride.

I am a poet not by choice but
by chance because I am an autistic poet and emotions are my tool.

**© 2017 By Amanda Shelton

Spanish influenza
walking pneumonia
icepick headache
common cold
whooping cough
Diabetes
anorexia
getting old

flat foot
bad back
heel spur
heart attack
spasticus
autisticus
tongue tied
amb(i)dextrous

my weakness
is my forte
my sickness is  my skill
my illness
is my realness
it makes my life a thrill

Trying to fight this
bronchitis
gangrene
runny nose
frostbite
tooth decay
hat hair
broken bones

bed bound
shell-shocked
flea ridden
sinusitis
cholera
dropsy
eliphantitis
out-all-nightis

wom­b fever
winter fever
black water fever
remitting fever
ship fever
jail fever
camp fever
or schizophrenia

scarlet fever
tuberculosis
American plague
rock n roll
Wheezing
Paralysed
Got gas
In both holes

rabies
scabies
rickets
and SARS
man flu
bird flu
swine flew
from Mars

multiple sclerosis
tennis elbow-sis
stomach ulcers
and leukaemia
night blindness
hypothermia
lung cancer
sickle-cell anaemia

French pox
Lockjaw
Polio
Gout
Nostalgia
Dropsy
Knocked right
Out

Stuttering
Bellyacher
Anti-social
Leprosy
Sleep walker
Sleep talker
Absent minded
OCD

Tourettes, ****
Pyromania
tonsillitis
Conjunctivitis
Food poisoned!
Warted over
My Psoriasis
(Will I survive this?)

Measles
Malaria
Meningitis
Migraine
Scrum-pox
Worm fit
Water on
the brain

apparitions
seeing things
rattly chest
bad breath
la duzi
tormentation
inflammation
black death

measles
malaria
migrane
mumps
leprosy
lice and
leg bone
lumps

kleptomania
bubonic plague
black *****
feeling ****
bone shave
falling sickness
wanna stop
just cant quit

Huntington's and
Parkingson's and
Hare-lipped
Hay fever
Typhoid fever
Glandular fever
Night fever
And Hysteria

intellectual
dyslexia
dysfunctional
family
cancer crab
stillborn twin
bad blood
epilepsy

Parking spot
disabilities
all the wounds in
all the militaries
pity thee with
lost agility
lost babes or
infertility

ear infection
starvation
Hepatitis
E to A
smallpox
chicken pox
cow pox
what a day

tuberculosis
stuttering
panic stricken
star struck
scurvy
shingles
headless chicken
bad luck


paranoid
in the void
premature
*******
stomach ulcers
feeble pulses
chronicled
*******

autistic
gallstones
double-jointe­d
wrists and knees
consumption
bad digestion
quinsy palsy
ticks and fleas

amnesia
typhus
amnesia
heart failure
radiation
cholera
amnesia
bad behaviour

Hypochondriac?
By gosh, no!
Poorly are ye?
‘Fraid so.


nostalgia
        suffer me
wanderlust
suffer me
insomnia
suffer me
loneliness
let me be



god
complex
mother
complex
father
complex
ego
complex

­

its complicated
im superior
its complicated
im inferior
its complicated
im a short man
got ingrown hairs
got a bad tan



im suffering
ocd
im suffering
obesity
im suffering
jealousy
xenophobia
and nosebleeds



stokholm
syndrome
toxic shock
syndrome
got it down
syndrome
irritable bowel
syndrome

yellow nail
syndrome
stevens-johnson
syndrome
restless leg
syndrome
shoulder-hand
syndrome

lambert-eaton
syndrome
mi­ddle-lobe
syndrome
mobius
syndrome
pickwickian
syndrome

post rubella
syndrome
riley day
syndrome
straight back
syndrome
ulysess
syndrome



alcoholics
we are prone
drug addicts
we are prone
mind benders
we are prone
fortune spenders
we are prone



My illness, my illness
My illness is my realness

*Pick it up
Tide it over
Fight it off or
Cave in

Save it
Suffer it
Pass it on
When its Raining

bleed him
restrain him
shave his
head

he went from being
quite well
to being quite
dead.

At 7 years old, I told my mother,
"You're not my real mom.
You're my Earth mom,
And at night when I'm asleep,
I go back to my home planet."
As the years sped onwards,
I conceptualized myself as a three headed alien,
A Poet From Another Planet,
Acutely aware of my innate differences.
No explanation had I other than being extraterrestrial.
Those around me, too, seemed to sense I was "other."
Playground insults supported by adults who floated labels like
"Lazy," "Difficult," "Rude," "Deliberately Obtuse"
Over my head as if they were a crown,
Signifying I was queen of kingdom "Unlike Us."
No one looked deeper at the poor social skills ,
The rigidity, sensory difficulties, challenges with executive dysfunction.
It was easier to pretend I was in control,
Choosing the route of difficulty and belittlement.
It was only after I nearly succeeded in killing myself
That someone assembled the whole picture.
My story is not unique among women
Born into bodies and brains whose operating system is Autism.
We are the forgotten, the alienated, and plastered with assumptions,
Lost under the blind eye of those who spin tall tales of
"Only straight, white little boys can possibly be autistic!"
Generations of autistic women have known not a name for their difference,
Bogged down under self-loathing, eating disorders, and suicides,
Anything to cope with a world designed to break them
For the differences everyone noticed but no one could see.
Now that women are finally coming onto the scene,
A subtle shift in the awareness that the clinicians, teachers, doctors
Were missing a whole population of autistic people,
Answers are gate kept behind assessments that are thousands of dollars
And diagnosticians who've yet to see the error of their ways.
Peace of mind seems to be a right only of white autistic men
Who are lucky enough to have the "profile" of autism modeled after them.
It took 19 years, two suicide attempts, including 10 days in a coma
For someone to finally "see me,"
And I'm one of the lucky ones.
Answers were finally mine,
But understanding one's own brain should be a human right.
I think we can all agree:
The price of a diagnosis should not be your life.

Autistic Rainbow

Let me paint my walls in hues of red, blue and yellow,
Inscribing its matrix deep into my marrow,
To lift my soul above the waters of filthy processes,
Counting the complexity of its shades each morning.
In their domain they fumble daily to cope,
And insanely we at times laugh at their struggle,
When in reality it is our inability to understand,
These loving persons who bring innocent love.
Shame on me, as they paint my canvas in colours!
And I miss the opportunity to enjoy their unique joys.

Autism Speaks don’t speak for me.
Cause I reject their reality.
What if I felt the exact same way
about their neurotypicality?
See, normal?
It’s a peculiar word,
and I guess it means I’m not following the herd.
But I don’t see why you want me gone—
At least I’m alive. At least I’m strong.
******.
My existence a crime.
A baby they’d abort if they’d only had the time.
Early detection.
Eugenics by another name.
Autism speaks till you silence it without shame.
Auschwitz for Autism, soon to be in business—
Neurotypical Nazis, only trying to finish us
Yeah, to you we’re hardly people,
and driving off a cliff with your daughter isn’t evil?
Well, here’s another wakeup call for the sheeple.
You exterminate so much you make the Daleks look peaceful.
Well, aren’t I human? Answer me please.
Because your fear and “awareness” has me down on my knees.

A rose in the middle of December is what I saw outside. Instantly, I connected this odd occurrence with my life. The thought hit my thoughts like a ton of bricks. That is what I am, I had thought to myself. That describes me.

As I looked out my living room window on a sunny, but freezing, Saturday afternoon, I was surprised to see this solitary rose that had bloomed on my mini rose plant.  Providing me with a few salmon colored roses each season of its bloom, without fail this plant regrows again and again in my garden. I first planted it there since forever ago, or so it seems.

Usually, such a flowering occurrence should be no big deal, nothing major or out of the ordinary. Certainly, I would not find this as something really noteworthy to write about. Rose plants do that kind of thing all the time.

But it was frigid cold outside, and the middle of December.

What a strange, yet amazing thing to behold! Maybe there is a proper explanation for it, but I don’t care. The petals were just as colorful as ever when really they should have wilted awy from the cold. All the other flowering plants in my garden surely did! It didn’t really make sense, but its presence was pretty awesome.

I eagerly went to find my camera to take a picture of my sweet, little rose. The grass was dotted with tiny patches of snow to show that-yes indeed-winter is really only days away from its official entrance. Plant activity and growth really should be over. Isn’t that right? I know we have had some warmer days during the previous month, but the icy cold seemed to have come to stay for a while. It surely defies logic to think of blooming flowers on such days.

I often look for “God moments”, as I call them, in which God gives me something to hold onto that reveals His love to me. Not looking for anything earth shattering, I see often see God in the little things, in the details of life. And I don’t even always look for such things, for sometimes I doubt God really cares or really is that effective in my life. You see, that is not uncommon for someone who deals with chronic depression. I learned early on in life that nobody is there for you, not really. I know Christians aren’t supposed to feel this way, but if I can be bold to be honest, I am. Often, I just think I’ll get by on my own. If I can’t get by on my own, I often try to put up with it instead of turning to God for help.  But lately I was feeling desperate.

Suffering with depression all of my life, and with managable anxiety, the thought of the approaching Christmas had been especially difficult for me. I know that people are “supposed to” feel uplifted with the holiday, but I was not. To reveal this is a source of shame to me, and I have learned to mask such uneasy feelings, trying to fake it for the sake of showing the world that I really am OK inside. It is like I expect everyone to look at me and say, “What’s the matter with you, loser!”

I knew I could find two things that would appeal to me—Christmas music and lights. Yet the music that I often love could not do it for me. The lovely Christmas lights, shining in the dark of night, didn’t matter either. I was feeling dejected, and I was growing weary with life—again. When not obligated to go anywhere, I felt like hiding from the world, feeling safer from anxious thoughts by myself. And as safe as I tried to feel in my comfort zone, this was frightening to me. This did not feel like living to me.

Is this how I am going to live out the rest of my pitiful life? This was one of my kinder thoughts.

I usually get through Christmas OK, making the best of it, but my losses often feel bigger than my blessings. In 1998, I lost an estranged brother to suicide. In 2005, I lost a father to Alzheimer’s, a few weeks after Christmas. In 2007, my mother had to spend Christmas in a nursing home recovering from major surgery. That year, I struggled through that season with very hopeless feelings, for my mother was in jeopardy of never walking again. She spent almost half a year in that place—a woman with sever scoliosis, and chronic back pain, who cannot stand for very long. In my hopelessness, I seem to forget the miracles in my life, for my mom’s return home seems like one to me.

I also see my father’s experience and death from Alzheimer’s as something far more than a tragedy. For many years, I avoided my father, wanting really nothing to do with him. Grudges surely seem larger than life over time, and although I wanted to forgive my father and seek reconciliation, fear often stood in the way. Even though my dad grew remorseful for how he raised his children, it took my brother’s suicide for me to find forgiveness for a man I thought never supported me or believed in me. For over two years, while my dad was ill and dying, the bond between us grew into something special. I know from personal experience that even in the difficult times, there are larger purposes involved.
  
No doubt, I have been provided with some huge challenges in life. Thankfully, I always pulled through when I surely felt that I would crumble into pieces. I clung to my faith in God, even when that faith felt like dying embers in a fire, for it seemed to be all that I had. Nothing else worked. Nothing else satisfied for very long. And when it did last, I wanted more and more, like a drug addict looking for his next fix.  

I have often been plagued with self doubt. What is my purpose in this life? Why am I here? I knew I was not alone in this thinking, reminding myself that I am not the most unique person in my suffering. So I searched the internet, a convenient source to turn to when you can’t seem to face people, and the world.  

Not wanting to live or value your own life is a horrible state of mind that I would not wish on anybody. I have relied on a depression medication since my brother died, and still do, but there had to be something more to help me. Deep down inside, I did not want to die, but I didn’t know how to live either. The heart of the matter was that in my worst bouts of depression, I was just so broken inside. I survived enough to go through the motions, but I felt like I was losing the battle—and really did not want to win the war anyhow.

I still remember the “God moment” I had when I was in London, England in August of 2011. At that time, life felt like an adventure as I went on my very first overseas trip to Europe. I have yearned to go to Europe since childhood. It was a Sunday morning in London, and a religious program was on. From what one man was saying on TV about his experiences, my ears perked up and I hurriedly scribbled some things down on a pad of my hotel paper before I forget some of his statements that stood out to me.

During my short stay in London, I was experiencing a cold. I wanted to feel Gods presence as I felt the swallowed up feeling of being a stranger in a faraway place. As intruiged as I was,  in the huge, bustling metropolis, I admit I was feeling a bit overwhelmed. I find big cities as places in which people pass others with no concern other than to go about their way. London was fascinating, but I am a suburbanite, for sure!

The things this man was saying on TV really impacted me at the time, and I now carry that scrap of paper around with me in my wallet. Little did I know that a few months later that these statements would help to pull me through from reaching into despair. That despair began a few months after that trip when I was quite sick with the flu, twice in a row, and feeling very isolated and weary.

Sometimes, we have to get into that place where all there is is God.

It is not that I did not believe in God. I did not think God believed in me.

Sometimes, we grow best in hard times.  

All my crooked crutches and phony props, as I call them, weren’t working. If the computer wasn’t taking up much of my free time, television was numbing my senses from the stark reality that life felt empty for me. Where was God? Logically, I knew I had no reason to be bitter, for I knew the answer. I felt so far away from Him, helpless and hopeless—yet I clung to this hope—God never moved at all. I was the one who walked away, but like the prodigal son in the Bible, God would be waiting there for me with a joyful expectation. I truly believe that even though I often wonder how God puts up with me.

It has been a long time—if ever—that I fully trusted in God alone. Yes, I believed in Him, and trusted in Jesus as my savior, but I often held back. I was still so angry and hurt about the past. Why didn’t God rescue me from such a horrible childhood? Why was I bullied in school? Why didn’t I have a better family? Why did loneliness and insecurity plague me as it did? Why wasn’t I beautiful? Why didn’t I have a better life? Why this and why that. Even though I logically knew better, in my hurt and wounded soul, life felt like a big, horrible mistake. God must have not cared about me. I may not have consciously acknowledged it, but my actions proved otherwise.

We live in a world where you got to be stronger, you got to be better; you got to be tougher; you got to be faster; you got to be more successful. The media pounds this into our brains all the time in many different forms. How many of us feel like we can never measure up? I am sure I am not alone in feeling the inadequacy. Yet I could not concentrate on anyone else’s pain when I was so wrapped up in my own.

A rose in the middle of December—I put it all into proper perspective. What a fragile looking thing, but an enduring one! It symbolizes to me the invincible, indelible human soul in the midst of an often perplexing world. When all around seems bleak, when life takes a toll on you, that remains unscathed, untouched by the trails we often have to face.  When we die, I wholeheartedly believe, it will be the only true thing that remains of us. When our bodies decay into dust, our souls will be like that rose, brilliant and beautiful.    

Besides myself, there are two groups of people, near and dear to my heart, which I could compare to that symbolic rose in my garden. My current job is working with special needs students, usually with autistic children and young adults. I worked 19 years in a bland office job, and could not ignore the constant nagging feeling to get the courage and desire up to do something more fulfilling with my life. With fearful, but bold determination I thought: It’s now or never.  Maybe it was not the wisest thing, but it felt so freeing to say to my boss, “I think I quit”, without another job to back me up. I basked in the encouraging applause of many co-workers who wished they had the guts to do the same, but soon the panic set in.

What do I do now? What can I do now?

Never working with children before, I felt a call to work with them, and I absolutely have a greater sense of purpose. Many of these children cannot talk. Many of them cannot walk. Many of them accept people just as they are, for I believe they want the same in return. Their lives teach me what really is important in life—and that is compassion.

Other than children, I also love the elderly, sensing their desperate need for love and compassion. Forcing myself to get my mind off my own troubles, I heeded my pastor’s call to not simply “go to church” but to “be the church”. I knew I had talents. I knew could open my mouth and carry a tune. From what I went through in my life, I knew I had the compassion. After all, I dealt with my dying father in a nursing home. With a nursing home ministry in my church, and a nursing home right across the street, it was obvious—there are others out there that need hope and they need love. So what was my excuse?

In this world that expects you to be stronger, better, tougher, faster or more successful, there are those that live in the world that they don’t fit any of these categories. But yet they are here. They exist. Can they be ignored? The answer is surely, yes, and they often are.  Perhaps, the world is uncomfortable with them, does not know what to do with them. They don’t fit into the false demands for perfection. They don’t fit into push and shove to get ahead of everyone else, but they remind us, sometimes to the point of discomfort, how fragile the human condition often is.  

Lately, I have had such a hunger that food cannot satisfy. I yearned for a peace, one that only God can provide me with. I found two uplifting stories on the internet of people who struggle on and whose lives defy the idea of a perfect world. One of them was about an Australian man, Nick Vujicic, who was born without arms and legs. He was picked on at school because he was perceived as a freak, as someone who did not seem to have any real chance at living a normal life. And he was angry that he did not look like, or function like, most everyone else. At about the age of eight he wanted to end it all, thinking he had no purpose in life. He eventually gave his life to Christ, and now lives a full life, reaching out to others with his incredible story of hope and perseverance.

Another woman, Joni Eareckson Tada, continues to amaze me. She is a quadriplegic from a diving accident gone horribly wrong. Her story touches many people with her hopeful attitude and her amazing faith in Christ. She, too, wanted to die when she thought her life had no more meaning. Recently, she has even fought breast cancer and chronic pain that has added to her decades of struggles with immobility.  She touches so many lives with her honesty about her suffering, giving people hope in times that seem hopeless.            

I wanted what these two people had. No, I did not want their afflictions, but I wanted to be able to reach out to others and touch their hearts, as well.  I wanted that faith, desperately, a faith that will not back down in the face of fear, in serious doubts, deep sadness, and pain. These people had little choice but to turn to God. The alternative was utter bleakness, a lack of purpose, and a slow death. But they defied the odds and etched a life out of faith, helping countless others to endure their struggles and to find meaning in life. There were plenty of times when I did not pray to reach out to a God that I gave my heart to many years ago. I bought into the belief that God was as inadequate and ineffective as I was feeling.    

Sometimes, we have to get into that place where all there is is God.

It is not that I did not believe in God. I did not think God believed in me.

Sometimes, we grow best in hard times.  

With plenty of tears, I cried out to God. It was a gut wrenching cry of someone with nothing to give but a broken heart. I wanted that kind of faith, and I meant that with every fiber of my being. Deep inside, my faith wasn’t gone. It never really left me, but only God had the ability to grow it, to prosper it, and to produce “life” back into my life. The battles might have felt overwhelming, at times, but I have always been a survivor. In spite of heartaches, and from what they actually teach me, I can be an encourager to others. Instead of just wanting to make everything go away, I can look forward to new chapters in my life.  

I know there will still be times when I will struggle to want to face another day, yet with my faith in God, I can.

So a rose growing outside may be not a big deal. Writers and poets have seemingly exhausted the topic, hailing it the most precious of flowers, the most perplex, with such lovely fragility, yet sheltered by stinging thorns. My inspiration to write on the same subject may not be unique, but as a rose blooms, and its glorious petals unfold, so does my story. I admit I hesitated to finish writing this, not sure I wanted to expose these things about my life. It takes a lot of guts to admit how imperfect you are in a world that seems to shun or poke fun at such things. But if I can encourage even one person, who has similar struggles, I will gladly try to be an encouragement.    

For almost a week now, existing in a stark contrast of its surroundings, that little rose remains, cold winter weather and all. Every day since, for about a week now, I continue look for it outside and find it going against the grain.  All the other flowers in my dormant garden are long gone. It will be gone eventually, but I am still enjoying my “God

My mother should be an author
She carves her soul into millions of pieces
Leaving it behind all of the family photos
When I see my mother
I see a woman
Who wants to hide her soul in a needle
Just so the screaming can stop in her mind,
These bottles are rattling in the living room
You see they have put shackles on her heart,
She can't love anymore
Without having ***** in her water bottle.

Where is she hiding her beer?
I feel like my mother is giving me a scavenger hunt
From the shards of glass that were left on the baseball fields
My mother used to take me to.

You know she always wasn't like this
She was strong minded and had a big heart
Tonight I will tell you the story of a woman
Who lost her soul to the Keystones to the Miller Lites
To the ****** Mary’s.
Let's rewind time
See ******* the soul in ten years

10- I look into my mother's eyes and I start to cry
Because I'm looking at a woman who I don't know anymore

9- I refused to bail her out of jail again
Because I'm afraid her kidney will fail if she drinks again

8- My mother staggered into the theater and disrupted the whole play,
My cast mates turned to me and asked, isn't that your mother?

7- I had to hold my mothers hand
Because she was throwing up the cocktail of drugs and alcohol

6- Daddy had to get mom out of jail she was drinking again

5- My mother throws the bottle across the room
And told me the reason why she drinks is because I'm Autistic

4- My mother overslept for my piano recital,
I didn't think it was a big deal
But I remember she spent the whole night crying
With a wine glass in her hand.

3- Mommy I didn't know your prescription came in a needle

2- Mommy the prescription say 2 pills a day
why are you taking 6?

1- My mother went to the doctor
Found out that she has Rheumatoid Arthritis
I don't know what that means,
But I know she will still be strong right?

0- She took me to a Dodger game for my birthday.
I remember Sammy Sosa hitting a home run that game
She told me that the only person that can **** your soul is yourself

The morning after I killed myself, I woke up.
I splashed myself with cold water, and walked over to my dollhouse kitchen to make a cup of hot green tea in my favorite green ceramic mug. I cut myself avocados, laid them across my toast, and sprinkled it with pepper. My brother was still asleep, his covers crumpled under half his body and a leg hanging off the edge. He was dreaming of his favorite thing about the previous day, and that made me smile, as I tucked him back under the protection of his blanket.

The morning after I killed myself, I fell in love.
Not once, but many times. Not with one person, but with multiple. I fell in love with my mom and the way she looked like the happiest woman in the world when she laughed at us, and how from sitting behind her in the car it looked as if she was always smiling because her cheekbones were so high. I fell in love with the way she wiped her eyes with the top of her wrist, as the steam and aroma from the hot food she cooked, floated upwards. I fell in love with my dad and the way he walked through the backyard, moving his hands around as he played out important discussions in his head. I fell in love with my brother and the way he tried to talk to us about CNN news at over the dinner table every night. I fell in love with the way he would impatiently say my name as his eyes lit up, wanting to tell me something that excited him, or that he found funny. I fell in love with a little girl I caught dancing with her sister outside 85, on the way back from my math class. I fell in love with the curly-haired boy in my English class my freshman year, who sheepishly told me he switched back and forth from British and American accents from time to time, because it was just something that was a part of him. I fell in love with my best friend and the way she got so passionate about the importance of history and what she learned from her AP history class, over a Skype call after midnight. I fell in love with everyone I ever met, and saw them as entire galaxies, complex and burning bright yet simple at the same time. Because people are beautiful. People are beautiful.

The morning after I killed myself, I recognized kindness.
I recognized it when there were more than one million words in the English language to choose from, but every time, my neighbors chose the kindest ones. I recognized it in the mother I saw sitting outside the café on a bench, running her elegant fingers through her teenage daughter’s hair, who was telling her about her worries. I recognized it when a homeless lady gave another homeless man all the money she had made that day, simply because he had a daughter to feed. I found kindness in my friend when she ran to the Starbucks across the street to comfort a woman she did not know who was crying after her autistic son had a tantrum.

The morning after I killed myself, I took a walk.
I sauntered along the street, and I saw the bright green leaves of the sugar gum trees, that in a few months would turn gold and orange. The birds were chirping their warbling melodies, and the cool air was feeding my lungs. The sun was still rising, and the sky had a little bit of orange in one corner, and a little bit of pink in another. I sat down on the bleachers of my school, and waited for the sunrise to unfold.

The morning after I killed myself, I held my beautiful grandma’s hands.
I felt how small and cold they were, but what warmth they still preserved as her fingers tightly held mine. My fingers grazed the top of fists, the bumpy veins giving them a delicate texture. I saw the four golden bangles she had never taken off of her left wrist, and I wondered how many dishes those hands had washed, how many clothes they had folded, and how many meals they had made.

The morning after I killed myself, I watched a live symphony.
I sat dazed, in view of the wine-red instruments in front of me, from the contented mold of my chair. I listened to the beautiful wavelengths of sound being produced right in front of me, the music creating my sanctuary. The conductor created the loudest expression of music on stage, despite making no sound. His arms waved as wildly as the sea, but was no less graceful than an ebbing tide. I looked at the depth of the basses, the elegance of the cellos, the poise of the violins, and the dignity of the viola. The fingers of the cellists slid up and down, the strings undulating with every phrase. A pulse was beating within my own veins, and as long the piece lasted, I was the music.

The morning after I killed myself, I looked in the mirror.
I saw my almond-shaped eyes, and how my eyelashes outlined them perfectly. I saw the vertebrae of my spine, and how they looked like a line of marbles, across my back. I saw the curls on the top of my head that I’d hated when I was younger, because they stuck out as if I had my own atmosphere around my head. I saw my knuckles, and how they separated into mountains and valleys. I saw the beauty mark on my left ankle, and the dimple that formed when I smiled. I looked in the mirror, and I finally fell in love with what I saw.

The morning after I killed myself, I tried to get back.
I tried to talk sense into a girl who had made a horrible mistake. I told her about the avocados, and the valleys and mountains that appeared every time she crumpled her fists. I told her about how beautiful her mom was when she laughed, and how warm it felt to hold her grandma’s hands. I told her about how her brother said he always dreamt about his favorite thing about the previous day, and how her friends had so much kindness in them. I told her about the green leaves scattered over the ground, and the pink parts of sunsets. I told her about the orchestra where she would find peace, and the shy boy who switched accents.

May your tea be just the right temperature when you take a sip, and may you happen to glance through the window just when the rays of light are falling perfectly. May you lock eyes with someone just as they send you a warm smile, and may you turn on the radio just as your favorite song starts. May you love the ink pen you pick up, as it glides across paper smoothly, and may you pick up a novel to read that changes your thoughts on something important.

being autistic

experience

doesn't

teach

the

advice

of

others

do­esn't

teach

it's

only

the

development

of
a

theory

of

min­d

that

teaches

A line to define us is what you imagine,
When you hear the words,
Autism Spectrum Disorder,
It generally happens.

You place us in order,
Based on our physical representation,
And here come the words that I must slaughter,
Before you draw this misrepresentation.

We are not,
The terms ‘high functioning’,
Or ‘low functioning’,
In fact this is actually quite impolite.
To give a more representable label,
Please use the terms,
Severe Autism,
Moderate,
Or mild.

Every autistic person,
Has a different set of strengths and needs,
So do not presume the ‘functioning’ term,
As it tends to arrange and mistreat,
Every autistic person,
Who experiences challenges,
In different versions.

With these terms,
We have created the gap between neurotypicals and the autistic on our own.
When after all,
A better understanding is all we need to be realistic,
Because we all share the same bones.

So, no two people you meet with autism,
Are categorically the same.
We are a spectrum of many beautiful colours,
And we are all here to play the same game.
There are multiple areas where we can succeed,
And just like you,
Others, where we are not so great.

The word “identity” has two different meanings:
1. The fact of being who or what a person or thing is.
2. A close similarity or affinity.
I would like to focus on the first meaning.
My identity is based on who I am as a person.
It’s based on the things I do and don’t like.
My identity is based on the clothes I wear.
My identity is based on the way I choose to talk.
My identity is based on my thoughts and opinions.
My identity isn’t based on my Autism or Anxiety.
Some people say they’re identity is their Autism.
And if they’re happy with that, that’s great.
But I was just recently diagnosed with Autism.
And while I have had it my entire life.
I didn’t know anything about it.
I did, however, know that I had anxiety issues.
I’ve had anxiety for a long time, and it’s bad.
I can recognize when an attack is gonna happen.
This isn’t always the case, but a lot of the time, it is.
I know what helps me when I have an anxiety attack.
I have an understanding of what I can and can't handle.
My Autism, on the other hand, is still a mystery to me.
I know that it affects the way I think and learn.
I know it’s the reason for why I am sensitive to temperature.
I know it’s why so had such a hard time in school.
But I refuse to say that my Autism and anxiety identify me as a person.
I have known my personality way long never than both my Autism and anxiety combined.
This isn’t true for everyone, but it is for me.
This is the way I choose to approach my Autism and anxiety.
I’m Autistic, and I’m not ashamed of it.
I have anxiety, and I’m working ******* it.
But I’m not Autism, and I’m not Anxiety.
I’m me.
And I will always stand by this train of thought.
I know that there are times when my interests become my coping skills.
But when I’m not anxious, then they are just my interests.
When I’m having an anxiety attack, then they are the skills I need in order to function.
Right now, this isn’t a coping skill.
My writing this, isn’t a form of therapy.
This is an interest of mine.
I love to write, and was thinking about this, so I decided to speak my mind.
I’m happy to say I’m happy right now.
I don’t feel a bit of stress, and if I do, then one of my interests will be used to help me through it.
Until then, I’m just doing what makes me happy.
And I’m happy that I know myself well to recognize this.
You don’t have to agree with me on anything I just said.
I just ask that you respect that these are my opinions.
I’m an individual who just happens to have Autism and anxiety.
Alright, that’s all I got, I’ve just been in a writing mood over the last few days.

You people never took me seriously
For you, I was just a problem child
Who needed to be molded
According to your whims and fancies
You never saw me as an individual
Who has his own thoughts, feelings and emotions
My opinions never mattered to you
You wanted me to improve my verbal communication
As well as my body language
But you never even tried to understand me properly
It never occurred to you
That there is a reason why I am different
Or even if it did, you never truly cared
What bothered me the most, though
Was the fact
That you believed you were acting in my best interests
Of course, it was my mistake
Not to leave this accursed country
While I had the chance
And seek my fortunes elsewhere
A mistake I may probably regret
For the rest of my life
Anyway, as Arabella Figg once said
"There's no good crying over spilt potion"
I was a fool to listen to you
But I have progressed in life
Far more than you would've expected me
And not because of you
But in spite of you
Well, I would love to meet you one of these days
And prove to you
That verbal communication is overrated
Just like you yourselves are
We autistic people can do equally well, if not better
As compared to you neurotypicals
Who are obsessed with correcting others
Well, please look into the mirror
And just leave us alone
Worse than an enemy, is an NT with a saviour complex
Well, we can see right through you
You may think you are being kind and empathetic
However, in reality, you are just a bunch of condescending wankers
Who believe they are always right
Well, there is nothing wrong in having your own views
Just try not to force them down our throats
I will end on this note
Autistic people are human beings too
It is time you learned to appreciate that

My autism's a part of me,

But it is apart, you see.

...

Who are you?

With your ‘normal’ view.

Are you just one thing, or are you a person

With thoughts & feelings, that are your own unique version.

Preferences, ideas, talents, and dreams?

That are bound by senses that meet at their seams.

Are you fat, short sighted or visually impaired?

Are you ever wondering why I just stood and stared.

Those may be the things that I saw the first time I meet you,

But you’re more than just your ‘normal’ diagnosis…. True?

As an adult, you have control over how you’re defined.

Your normality means your perceptions are refined.

So why would you single out one characteristic of mine that you can make known.

As a child, I am still unfolding, I’m not fully grown.

Neither you nor I yet know of what I am capable.

If you think of me as just one thing, then one thing’s inescapable.

You run the danger of assuming I have no chance of achieving.

And my heightened senses know this, it’s only you you’re deceiving

For I am not endowed with any ordinary sense.

You need to know this before I commence.

You take for granted sight, sound, taste, touch and smell.

Never once realising that these things can be as painful as hell

For me.

You see.

My world often feels hostile, and makes me so fearful.

I may appear withdrawn or belligerent, whilst others are cheerful.

Or mean to you, or antagonistic,

Defending myself, then going ballistic.

You tell me we’re going on a trip to the shops

And out of the world my safety net instantly drops.

My hearing, you see, is hyper acute.

But I’m put in the car, though I loudly refute.

At the shops, walls of people jabber and whoop.

The loudspeaker booms and adds to the soup.

Music blares and lashes and whooshes.

Tills beep and cough, a coffee grinder swooshes.

The meat cutter screeches, a baby starts wailing,

I’m starting to malfunction and am rapidly flailing

As trolleys pass creaking, and fluorescent lights hum.

I’m starting to panic, but also turn numb.

My brain can’t filter the input, the voltage is massive

I’m in overload with no chance of staying passive.

My sense of smell is stratospheric.

That fish on the counter is NOT atmospheric.

The man in front hasn’t showered today,

That Stilton cheese – someone take it away!

A baby goes past, it’s ***** needs changing.

Things are going faster and turning deranging

They’re mopping up pickles on aisle two with some bleach and a rag.

My stomach is churning, and I’m starting to gag..

And there’s so much hitting my eyes!

This trip has turned into the world's worst surprise.

The fluorescent light

Is not only too bright,

it’s that flicker.

The space seems to be moving, getting quicker and quicker.

The pulsating light bounces off everything and distorts what I am seeing.

I don’t know what I’m doing, or saying, or being.

There are too many items for me to be able to focus.

The world starts to drain me of my internal locus.

My eyes try to compensate by tunnelling my vision

Fans on the ceiling, twist my senses into nuclear fission.

All this affects how I feel just standing there,

and I can’t even tell where my body is in space, do I care?

You’re yelling at me now, and shaking my shoulder

But the fiery fog is down and is starting to smoulder

It isn’t that I don’t want to hear your instruction.

I just can’t understand, due to mass self-destruction.

You're shouting now, but what does "£$%^&&% NOW! !£$%^&*" mean?

My senses will **** me in a collusion so obscene.

Once we’re back at the kids home, it all feels less absurd.

And now when you speak, I can hear every word.

Simple instructions, that I know off by heart.

And I cling onto these so I won’t fall apart.

You tell me what you want me to do next and I’m able to reply.

Now I’m happy and it’s easy for me to comply.

Now I’m OK and I’m running about

And performing my ritualised songs, which I shout.

Then a visitor grabs me saying, “Hold your horses, cowboy!” – This means danger!

I can’t stop the horses, I’m me, not the Lone Ranger!

And I’m thrown into panic when what you mean is, “Stop running.”

But I don’t know that! Those stampeding horses are coming!!

That’s my life, you see, it’s not “a piece of cake”

When there’s no dessert in sight and you’ve made a mistake.

When you say, “its pouring cats and dogs,” I see pets flooding from the sky.

Tell me, “It’s raining hard,” so I won’t fear the animals will die.

Puns, sarcasm and allusion

Simply generate confusion.

Tell me facts and keep things clear

So I can live, yet not in fear.

It’s hard for me to tell you what I need when my senses are reeling

When I don’t have a way to describe what I’m feeling.

I may be hungry, frustrated, frightened, or perplexed.

But I can’t find the words, and lash out, angry and vexed.

Be alert for my body language, or my gestures and obsessions

Then you’ll handle my feelings like your own treasured possessions.

Watch out for me compensating for not knowing the right word

By mimicking my favourite film star, or something just as absurd.

Rattling off words or whole scripts, which will leave you confounded

That I’ve memorised from Disney, because they make me feel grounded.

They may come from the TV, or speeches, or a book

And though they make people give a funny look

I just know that saying them gets me off the hook.

Show me, show me! I’m visual, you see.

And I’ll understand rather than you just telling me.

And be prepared to show countless times.

I’m listening, despite my ritualised rhymes.

Visual supports help me move through my day.

They relieve me of the stress and I feel OK.

I don’t have to remember what’s happening next

For I operate on a visual text.

This makes for smooth transitions in my life

And we’ll finally progress without anger or strife.

I need to see something to learn it, because spoken words are like steam to me;

They evaporate before my mind's eye, and are gone instantly,

Before I even have a chance to make sense of them,

They've died in the ether, leaving me in mayhem.

I don’t have instant-processing skills.

Instructions and information are my life giving pills

Images can stay in front of me for as long as I need,

and will be just the same in years, for they'll never recede.

Without visual help, I live the constant frustration

of knowing that I’m missing big blocks of information,

Not to mention falling short, by being a misfit

And I'm helpless to do anything about it.

Unlike other people, I'm unable to learn

If it's normal interaction for which you do yearn.

I’m constantly made to feel that I’m not good enough

And people are stern and people are tough.

They think I need taking in hand and need fixing.

Never knowing the world and my brain are tranfixing

I avoid trying any new things, for I'm sure I'll get 'dissed'

And another grown up will be angry and get 'real ******'.

But no matter how “constructive” you think you’re being.

Look for my strengths, though they're hard for the seeing.

There is more than one right way to do most things.

It may look like I don’t want to play with the other kids on the swings

But it may be that I simply do not know how to start

They just think I'm weird, and set me apart.

Teach me how to play with others.

Remove my autistic shrouded covers.

Encourage other children to invite me along.

They might learn something of value from my life's different song.

And rather than spend my day as separate, secluded.

I might show an ethereal delight at being included.

I do best in games that have a clear beginning and end.

Random play is something my fears won't transcend.

And just one other thing, a sort of confession

I cannot interpret a ****** expression

Or body language, or other peoples' emotion

So in group situations I'm resigned to demotion.

I want to learn, I want you to teach me.

Reach into my mind and help me to see.

If I laugh when Tommy falls off the climbing frame,

It’s that I don’t know what to say, nastiness isn't to blame

Talk to me about Tommy’s feelings and teach me to say,

“Are you hurt, Tommy, I'll get teacher, then you'll be okay?”

If you don't I'll meltdown or blow-up, and get in a stew

And this is a thousand times worse for me than for you.

For my mind will go into overload

My sense of equilibrium will start to off-road.

For I'm well past the limit of my social ability.

As those off road lights glare at my own disability.

If you can figure out why my meltdowns occur, they can be prevented

And my behaviours will abate, less frequently lamented.

Keep notes about me and a pattern may emerge.

As your understanding of me will gradually converge.

Remember that everything I do is a form of communication.

It tells you, when my words cannot, how I’m reacting to each situation.

My behavior may have a physical cause.

Think for a moment, just have a pause.

Food allergies and sleep problems can affect my behaviour.

Just look for signs, for you might be my Saviour.

Because I may not be able to tell you about these things.

That blunt my affect and cause my mood swings.

Throw away thoughts like, “If you would just—” and “Why can’t you—?”

You didn’t fulfill every expectation your parents had either, that's true.

And would you like to witness a constant rewind.

Of the traumatic deficits by which you're defined?

I didn’t choose to have autism.

Or to live with this division

Remember that it’s happening to me, not to you.

But without understanding, my chances remain few.

With love and support, my horizons are broader

But I can't live my life by other peoples order.

Patience. Patience. Patience, are the three words we need to live by

For my dreams to be reached, and my confidence fly.

View my autism as a different ability

Rather than as a freak show disability.

Look past what you may see as limitations and feel for my strength

I may not be good at eye contact or conversations of length

But have you noticed that I don’t lie, or cheat at a game

Or pass judgment on people, and make them to blame?

I rely on you, if you can make me your personal vocation

All that I might become won’t happen without you as my foundation.

Be my advocate, be my guide

Be my strength, stand at my side.

Love me for who I am, and not what you know

And we’ll see just how far I can go.

Matt Revans 2014
©Copyright

Back in my teenage college years
I was told about “Autistic kids”
Who lived in worlds of their own,
Seeing things through weird and wonderful specs
In social isolation,
Frightening in its completeness.

At sixty six I since have learned about many
Of their “traits”:
Their obsessions, inflexible routines and
Panic
At all change.
Their inability to read
Emotions or social cues
Or innuendos
Or irony.

I have worked with those with Aspergers,
Colleagues, friends and clients –
Indeed with people all over
The Autistic Spectrum.

And the main thing I have learned
In all these years
Is that in my own way…
I am one of them.

Paul Butters

© PB 1\10\2018.

For no reason he starts screaming
Then begins to hit you
Shouting for no given purpose
He will begin to bite himself

It is then as nothing happened
He plays with an electronic game
Something then will disrupt him
So begins punching himself in the head

He will not wait his turn
Even when others are already speaking
So starts to bite himself once more
Shouting out threatening behaviour

You can never try to tell him off
It will only make him worse
He believes he is only allowed to shout
He will never understand what you say

The throwing of things will then commence
Showing you outrage and anger
Comes up and shouts in your face
Followed by slapping and hitting you

Then it will all suddenly stop
Begins talking nicely to you
Talking non-stop about his cars
He will then put them all in a line

Come and ask for a cuddle
Not even remember what just happened
For an hour or two he talks politely
You dare not try to change the subject

Never try to break his routine
For he will start swearing at you
Everything will start all over again
Because he will never understand change

He even hates his baby sister
Because he needs all the attention
He has no understanding of sharing
Or how to ever show fair play

He is locked away in his own world
Expects everyone to know what he is thinking
He can not even dress himself
But he has a perfect photographic memory

Others will never come to realise
They will only think the worst of him
They call him names behind his back
All because he is a little different

Autistic children may be a challenge
But remember, they are still children
All they need is understanding
So, will you love him?

copyright Chris Smith 2012
For children with Autism/Asperger's Syndrome