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Siouxsie Gagne Jun 2018
climbing
              climbing
                            climb­ing
                                            
                ­                                     up or down?

                            falling?
              falling­?
falling?
                            
                              endless, always moving

       darkness          
                         
                              blinding darkness
wanted to experiment with form
Mana Jun 2018
I want to paint the walls
With my dancing feet
Splash melodies
Of syncopated movement
-my heartbeat.

I feel color in my sway
Hues combine as the motion fades away.
An indistinguishable color remains.
Me.
Stop when I have to
Give me a time to breathe
Notice time in and out the door
Stop at the line my heritage
Had drawn on the floor before
Open my eyes to see
Who enters and who exits

Red is the color to alert
That stationary worlds  exist

Caution when I consider
A peeling away of the discarded
Notice this breathing time
A stirring of movement
Hidden below my dwelling floor
An energy, slow and beginning to vibrate
A humming sound building to negotiate.

Amber is the color to wait
serenely before the door opens

Go when you show me the way
Then my soul no longer argues
The right and the wrong
This I have noticed no to prolong
The Wind-Soul opens my eyes
Shows me how long is too long

Green is the color to go
Move in the constant glory of flow

Take heart to these teachings
And all that is needed, is supplied.
Harry Gione May 2018
Time travels
Not through the bounds of time
As only moments exists in moments
The past is but cold seconds that no longer carry breath
The future is to be created at this very moment I write this pins it together
But time travels
And carries us with it
Like dazed passengers on a train
Dumping our belonging out of the windows in hopes of leaving bread crumbs to be followed
But only time travels
And tramples our footprints underfoot
Pushing forward
Mighty
Unstoppable
Unrelenting
Traveling unseen through the night
And as we are dragged along in its side cart
Without knowledge of our own journey
We look down at our present
All we know is now
This is how things are
It was like this yesterday
It most likely be like this tomorrow
Threading along a dimly lit timeline
As time travels
It seems my body succumbed to all these feelings,
Helpless but breathing.
I shake and **** -
Made everyone confused,
Then I struggled to reach,
Not even able to get a drink.
What they said was seizures.

Seizures usually stop though:
It's day 34 now.
Next I wasn't able to walk,
Do you know what it feels like
For your body to just give up?
Collapsing is now regular,
Sometimes my whole body won't move
And currently as I write this,
Sitting up is a joke too.

Psychological seizures -
Last longer than usual
Yet can mimic epilepsy.
All the tests back normal,
Except from the ones which take weeks.
In my head, really?
That's basically what they said.

Now at a specialist talking therapy session,
For 'exactly what I have'
They told me:
You can't separate the mind and body.
The thing I like that they said most
Is that the physical symptoms are real,
That I'm NOT making them up.

However, I still don't appreciate when they tell me "this is good".
You see, they act like because it's not caused physiologically:
It's much easier to fix.
At the hospital: "I'm confident this will just stop
And probably won't come back."
Here I am still counting days,
I was in hospital for 3,
The 34 does not include the first week of milder ones,
One month till my exams
And actually it's just under that,
I count the minutes I can attempt to revise for.
I recognise the month I missed when I finally became productive,
Now I don't have a choice.
The teachers compliment how well I'm doing,
But they don't see me
Lying on the floor at home,
Pushing and willing my muscles to set me back up,
Whilst going
Absolutely nowhere.

My great Granny is way more capable than me.
Do you understand how embarrassing and berating it is,
When the paramedics come for the second time within a week or two,
Just to tell you quite simply:
"There is nothing medically wrong with you"?
"You're breathing is perfect,
Oxygen 100%"
"Does she have social anxiety"
-One of the first things that he said.
Can you guess how many anxiety attacks I've had?
Enough to be sure I'd recognise them by now.
"I wasn't anxious" I told them,
Desperate to be heard,
But as soon as they know about your mental health,
Nothing ever matters.

It's true that you take independence for granted,
Until it's taken away from you.
I don't think I've ever wanted to leave the house so much,
Than when I physically couldn't exit for
Just about a month.
I don't like burdening my family and friends,
It doesn't matter how they assure me
Either way I'm still dependently relying on them.

Although this does have one benefit
And some of it does make sense;
There are things I haven't been wanting to do,
By this it means that I can't do them.
Putting this open and honestly:
It's a potential get out of jail free card.
This way not doing it wouldn't be my fault,
Because I am physically unable.
That makes sense that it's psychological.
Another thing I tried to disprove it with was that,
"I've been better lately"
Which yesterday I finally got that explained,
The symptoms come on when you're relaxed,
As they are finally given the chance.
My body's saying no,
And sometimes I partly agree.

What doesn't help me is the:
"Therapy is how we treat this"
"It's good you don't have a physical cause."
Right, yeah, okay then.
So look me in the eye again
And tell me that it's fine.
Tell me how I recover from this debilitating illness
By doing what I've been doing for two years,
If that was going to work surely it would have been prevented?
People with a physical diagnosis receive physical help.
But what about me,
Do I just fall through the system's gap?
What happens when I can't walk,
When I fall off my bed from lying flat?
If I had a broken leg they'd give me crutches,
I get an "it will go away soon but it's impossible for us to say when".

If there's anything you take away from this,
Then it should be that:
One. It isn't just in my head.
Two. I am not in control of what's happening.
Three. It may be a conversion disorder but it's no less real.
Four. The last point states the fact that it causes PHYSICAL symptoms.

If I want to tell the whole truth then I have:
Non-Epileptic Attack Disorder,
A movement disorder causing seizures often looking like epileptic fits.
The truth I will give (probably) most people:
I have seizures which are not caused by epilepsy,
Which makes me shake and collapse
And if I'm feeling generous I might add another symptom on,
Because the longer this has lasted,
The more there are that come.
Kevin Castro Apr 2018
my love, life is enormous

life is a creature with eight tails and six heads
life devours suns for breakfast and eats moons for desserts

you and I are the specks it feeds upon,
and at the same time it feeds us,
so life is made of people: friends, enemies,

loved ones,

so, love, life cannot be lived without people.
life cannot be lived without living all it has to offer

because life is enormous.
it is a creature
with more hearts than tails or heads
written while crying on the phone with my significant other who, at the time, seemed just about ready to break up with me. some edits were made and feedback would be very much appreciated.
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