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L May 28
God did not mean to give me a mouth.
He meant to give me hands, eyes, a heart
but not a mouth.
When I speak something in me bleeds. When I-
I speak, and my eyes fog over like glass.  
I can't see you standing there, I'm so sorry. Show me again, where did you put the bread?  

I feel like a thing that needs to be forgiven.

I feel so fragile sometimes.
I am trying to understand the
weight of the evil inflicted upon me.
It is heavy. I never understood that 'till now.

I wasn't meant to carry this weight, but I do.
I wasn't meant to speak the way I
so often will, but I do.

What can I say anymore?
I can't write without bleeding. I can't speak without knowing it is a wound. How can I communicate without tearing something open? I'm afraid of shutting up and looking for my language. If I decide to leave behind every word that hurts me, would I have any words left? Will it **** the little bit of connection with people I have left?

I hope you forgive me for the little sadness I'll inspire in you.
I am afraid, but don't pity me. I am blossoming and becoming something else.
This, apotheosis, this becoming closer and closer to my own light.
It is a process that requires allowing death.
What must die must die. Allow grief.

I'll leave you with this:
If you slept next to me, it would be
much like sleeping with a letter under your pillow.
Every night, every night...

*"Here I write to you a list of cruelties I am capable of.
May you never forget:
I have made the flower so that it may blossom, and I have made the lamb so that it may eat it.
Blessed be the one willing to become.
Here, the flower. Here, the lamb."

- God
Saige May 18
the sampling of amniotic fluid using a hollow needle inserted into the ******, to screen for developmental abnormalities in a fetus.


Not everything about you
is on that little screen; 
not in your number of chromosomes,
not in your misshapen genes. 

Yet everyone talks about you,
as if they know you:
"impaired cognitive abilities"...
"50% chance of being stillborn"...
"impacts the family unit"...

Your life and capacity for love
will never be defined by your DNA,
but rather by your smile and
your laughter and 
your heart

In short, my love, 
you cannot be defined by what is missing
but rather by what you can
and will be when you arrive 
in all your humanity
Melody Mann Apr 23
Take the "La" out of Label for they are more than a diagnosis,
They are fathers who have immigrated to a new country while hiding the schizophrenia they battle just to uphold employment,
They are mothers who sustain households while silencing themselves for their family's protection,
They are sister's who step up and raise siblings while charading stability,
They are brothers who mask realities to rejuvenate positivity,
They are families that have undergone generational trauma to pave a path for a brighter tomorrow,
Disabilities - mental illness - mental health - are not deficits of identity; they bolster morale and resilience in the BIPOC community.

These are the students that fight the notions of normality to reduce the stigma,
These are the scholars that rewrite the narrative in pursuit of decolonizing the education system,
These are the individuals who are representing an ever-growing population,
These are the souls that have abilities which surpass the medical  confinement of their disabilities.
KyleB Apr 11
I hear it
Again and again
I do not “function“
Like the rest

Every day
Is a battle
Will I hurt?
Will I move?
Nonetheless, I have to function

Even when I can‘t

I eat pills
For breakfast
Like greed personified
I swallow them - I do not chew.

I eat pills like candy but how can I help it?

My body is aching
My muscles are trembling
Is this addiction
Or is this dependence

How am I different
From someone who cant
Live without drugs
Because it causes them pain
When I eat my candies
To dull my agony

I eat pills like candy
I must be a sweet tooth
Yet I don‘t enjoy it
But others believe that I have to
Einez Mar 31
Did you know I like to dance?
You do not, I’m sure.
For how can a person who can’t even walk
dream of something bolder?

But I love how my muscles breathe
and how my soul flows
when I spread my arms and
let myself go.

I like to let my arms become the limbs of a willow,
let my legs become the wings of a bird,
let my body become the stream flowing towards a river,
let my soul be taken to the free sea

Life has placed me into a small glass
barred from the outside ocean that promises freedom.
I could only watch through the transparent veil
while my flesh bound me to the ground.

But one day I’ll fly, I know it
I feel it in my blood.
One day the glass will shatter
and I’ll dissolve into bubbles
unchained from pain.
Aphasia Feb 19
Sometimes this world is a little too big,
Sometimes the day is a little too long,
Sometimes the room is a little too loud,
Sometimes the words are a little too wrong.

Today all the walls were a little too small,
Today when you said you were scared to go home.
Today when you could have just buckled and fell,
Today when you said that you'd face it alone.

Tonight will be phone calls.
Tonight will be protective services.
Tonight will be investigations into the people who are supposed to love you and keep you safe.

Today you are 18.

Maybe tomorrow will be sunny.
Jet Dec 2020
Mobile/Stabile - I don’t speak French

Main two types of mainly 3D artist
Alexander “sandy” Calder

Mobile - is a French pun meaning both "motion" and "motive"

If you had one of these above your crib to muse over as you drifted to dreamland, you have Sandy to thank.

Stabile-  following the style of the name mobile, is a sculpture that is unmovable

Both are French words I have trouble saying

I am becoming or was becoming paralyzed from my feet up
(they still haven’t decided which,
feel free to laugh at that)

Feel free to laugh at all of it, I do

I have complications from unbeknownst year long scarlet fever that turned into rheumatic fever that turned into julian Barre to thank for that.

There is no cure, so I’m using condescension.
I call it Julian Barre because “Gee YAWN BERET” is just so **** hard to eek out.
It requires more pomp than it deserves

Okay it’s part condescension and part more French words I can’t quite say.

It’s sort of like the opposite of when I try to say  “petit” pwessON” to be cute, I mean to say Little Fish to address my partner:

But instead say “petit pwazOne” which means
little Poison
Originally performed at iFell Gallery on November 30, 2019
Jet Dec 2020
And at my new job I am the manager-in-training.

In French it is

“Responsable en formation”

Or as I would say,
Responsible information.

However, I was not responsible in gathering my information.

During my interview, I said masseuse.

Turns out that is heavily connotated and maybe even denotated as a *** word.

I asked if it was the French ending

He said, “No, it’s the happy ending”

Maybe French is only **** because of how much is escapes me.

The opposite reason is why death was never **** to me
because of how much I escaped it

Maybe death finds

And Anyway I got the job
And a month later my boss gave to me a T-shirt that said
your table is ready

At first,
Instead of a massage table,
I thought it was a stretcher
And I laughed

I wonder what that means

“You could have died” “you almost died” “it’s a miracle you’re still here”

“we’re /glad/ you’re still here”

Are words I often hear from my doctors
who almost always meet with me pro bono because I am poor, but also interesting


But they are not words I hear from my mother

Those are the words she saves to give to her 90-something mother-in-law

I say 90-something not because I am careless or inattentive, but because my grandmother Adeline lied about her age so often in her youth, that both she and the government forgot her actual age

The words my mother gives to grandma J upset her.

She is tired of living

Asked all of us to pray for her death

Asked my brother in law to be “to help her get to heaven tonight”
Said “I know you can help me get to heaven tonight” presumably because he works for the cook county coroner's office.

He is a man so jaded that he sometimes can only laugh on the job when he sees particularly trite Chicago suicide notes:

To be fair, he’s not cruel
It is usually when it is something
“you either die the hero or live long enough to see yourself become the villain”

Anyway, it made him cry when old Addie asked that

and also if you are a prayer person,
please pray for her death,
I can’t bring myself to do it.
Originally performed at the iFell Gallery on November 30, 2019. Adeline D Johnson passed peacefully on May 13, 2020. She was buried with her dog’s ashes. She was buried next to her husband she hadn’t seen since 1976
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