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Moonbeam Jan 8
My body betrayed me in ways I never thought possible
I can’t eat, I can’t emote, I can’t exist
Not without itching, tingling, wheezing, gasping for air
I’m rapidly losing control over my life
My world was already so small—and now it’s getting smaller
The list of foods I can’t eat is growing as my will to keep going…shrinks
Why must struggles beget even more struggles?
Why can’t I be allowed to be happy?
Exist in a beautifully carefree manner?
My spirit screams to express but my body says no
You’re not allowed
All I can do is tearfully write my feelings on a page while I agonize at all I have lost and will lose
I am missing out on the human experience I crave
I just want to be well
I want to breathe easy
I want to be healed
Yet I am here, in my bubble, alone
This is a poem about MCAS. I’m becoming allergic to life more each day. I have to leave behind so much. I have to miss out on so much. It’s so painful to live this existence.
onlylovepoetry Jul 2023
(be-tween and be-twixt)


the most precious but precarious item
in our possess, value far above rubies,
this love overflows, but it drowns me
from within, for it has no home for
pleasured sharing and goes wasted, excreted
in tears and exhalations without destination

condition incurable, and the doctor advises,
projects, a life span rangebound from

imperative that this love be
disbursed, pressure relieved,
fluid and gases shared,
send it forth,  
Doc behests,
you’re a decent human,
tell your tales,
follow your motto,
write those love poems,
always leave them laughing,
and give them love in smiles
bringing joyous relief to your clogged arteries,
all this the bare minimum,
for you must moreover grasp and clasp
your body to another, for this
the best transfer transfusion
of all your needed love needs

go be needed, be great, be lessened,
be all three
and never walk alone,
with just hope in your heart,
for the heart, automatically refills,
and this the best, medical opinion…
for all those with too many love poems
requiring expulsion and extrusion
rayma Oct 2022
to some, i am a person worthy of righteous protection,
the blind spot beneath the tree where
dandelions sometimes get trampled.
i am never enough yet always too much—the
drive-by friend you can wait to see.
on the inside lies a multiverse of
goods and bads, talents and failures.
sometimes i’m pretty, sometimes i’m not,
but i am always something to behold.

and to you?
the one who changes the focus like an optometrist,
“one…or two?”
until my multiverse unites.
a good writer, a good singer, a good friend;
the little things others don’t find funny that always make you laugh;
the validation i’ve been searching for,
an honesty that lets me trust myself a little more.

to you i hope to be an eternity,
a couple of shambling girls united against a world
that doesn’t always have space for people like us.
for verity, my partner in crime, the other half of a shared brain cell, united in one chronically ill dynamic duo
Alex May 2023
here, another night
I should be asleep, comfortable
I should be… normal
instead I writhe
or I lie so ******* still trying to pretend
trying to will it away
inside I am clawing to get out of this body
inside I picture myself flailing, jerking,
thrashing, punching, kicking
I visualize breaking my own bones with how hard I fight the pain
I see it in my mind, I let loose and walk away bloodied, bruised, all cut up… but I won.
in my mind.
in reality I have no energy to thrash.
i lack the spoons to fight,
and this,
is an unwinnable war anyway.

so I lie still.
or I writhe, sigh, and cry.
rayma Oct 2022
the way i interact with people gives them bite-sized pieces –
a wince, a sigh, a rant about the last appointment.
i catch myself in surprise when i say i was at the doctor
and they ask if i’m okay, two question marks in their voice,
and i can’t help but laugh before i say yes.
i guess most people go to the doctor for physicals and check-ups,
maybe for strep throat or a sprain,
and not for half an answer,
weeks of waitlists,
maybe they’ll even see me tired,
puffy-eyed and curled up on the couch like i came with it,
feeling like a drag when i shake my head and say i’ll stay while they go.
in little moments, if they’re looking, they’ll see me labor up the stairs,
an amused echo of ‘but you’re so young!’ flashing through my mind
as each step sends a sharp pain through my knees.
“you go first,” i insist, hanging back with a smile
before climbing in their wake.
Rosie May 2022
I wish to not feel the aftershocks of the war occurring inside,
To not make one move that crushes my whole day
under the weight that tears my joints apart.

And yet,

Doctors smile and tell me nothing is wrong
Doctors smile and state that my pain tolerance is just too low
Doctors smile and run the same **** tests
that produce the same **** results
They smile while I rip my hair from my scalp.

The days bleed into one as the clouds covering my brain
chain me to the bed and make raindrops fall from my eyes,
Friends start to believe that I just don't care when I leave their messages covered in dust,
dying in a graveyard called my will to live.

I want to be there for them,
my soul needs to be present with them,
but when you have to box a heavy weight champion inside your own veins just to be able to take a single step,
you got nothing left to give to anyone else.

I'm stumbling through this performance titled life
not even knowing the identity to the puppet master pulling the strings,
fighting an invisible battle against a nameless warrior
and somehow meant to smile and bear it.
Undiagnosed chronic pain is like living in a hell that no one can see.
KyleB Apr 2021
I hear it
Again and again
I do not “function“
Like the rest

Every day
Is a battle
Will I hurt?
Will I move?
Nonetheless, I have to function

Even when I can‘t

I eat pills
For breakfast
Like greed personified
I swallow them - I do not chew.

I eat pills like candy but how can I help it?

My body is aching
My muscles are trembling
Is this addiction
Or is this dependence

How am I different
From someone who cant
Live without drugs
Because it causes them pain
When I eat my candies
To dull my agony

I eat pills like candy
I must be a sweet tooth
Yet I don‘t enjoy it
But others believe that I have to
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