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Jan 2023 · 134
Broken Intuition
Aphasia Jan 2023
I listened to a love song
Sang along like a prayer
Let my guarded heart feel something
I never have before.

Now the song echoes like an elegy
And a sinking spinning world moves on
without me.
He said it needs to be emotional, that it's impossible if you're overly logical, so for the first time ever I put aside my analytical side and followed my heart despite everything. I took a leap, but I didn't stick the landing.
Apr 2021 · 147
Hope (v2)
Aphasia Apr 2021
Is a thing with feathers
And that is what terrified me
Who put feathers on the thing
I am always most worried will fly away.
Mar 2021 · 154
Inevitable
Aphasia Mar 2021
I spend my whole life waiting
for the other shoe to drop.
I agonize the moment
For the moment has to stop.
I fear the coming evening
And the certainty of night,
I have no choice but courage
When the biggest fear is fright.
Mar 2021 · 137
Even if
Aphasia Mar 2021
I give you permission

to write that poem
even if it really isn't all that good

to tell that joke
even if you always mess up the punchline

to wear that outfit
even if those boots really don't go

to feel proud of yourself
even if you're only scraping by

to love yourself
even if you acknowledge your shortcomings

to accept yourself
even if you've told yourself that
everyone who respects you does so because they don't know everything

to be imperfect
even if you dream of being someone so great and feel like you're so small

I give you permission
to be a poem
even if it won't be a very good one.
You don't have to be perfect to be deserving of love. Give yourself permission to love yourself even if you aren't who you know you could be.
Mar 2021 · 304
Hidden Disability
Aphasia Mar 2021
I live in split reality
unreconciled duality
And wait with anxious, twisting hands
For someone to say they understand.
Straddling two worlds is exhausting. "Sick me" wants compassion and flexibility, "healthy me" wants independence and the same high standards from others. Juggling both identities is a daily challenge.
Aphasia Mar 2021
Tumbling, crumbling
So heavy and yet so fragile
Each question crashing on the other
The missing piece remains elusive
Mar 2021 · 1.0k
How's your mood?
Aphasia Mar 2021
Oh, not too bad
(I haven't slept)
Y'know, on and off
(I mean this week I haven't wept)
It used to be worse
(I'm not in despair)
I'm holding up
(I won't let myself go there).
Some days are hard
(I feel so drained)
I think everyone's struggling
(I've numbed the pain)
Yeah, I'm okay
(I can't keep pace)
Thanks, I'm alright
(I miss my okay place).
Feb 2021 · 474
For you
Aphasia Feb 2021
Sometimes this world is a little too big,
Sometimes the day is a little too long,
Sometimes the room is a little too loud,
Sometimes the words are a little too wrong.

Today all the walls were a little too small,
Today when you said you were scared to go home.
Today when you could have just buckled and fell,
Today when you said that you'd face it alone.

Tonight will be phone calls.
Tonight will be protective services.
Tonight will be investigations into the people who are supposed to love you and keep you safe.

Today you are 18.

Maybe tomorrow will be sunny.
Feb 2021 · 133
This Morning
Aphasia Feb 2021
"Everybody get down!"

Those were the words that started my day.
Running feet, closed lights, locked doors.
Don't panic. Don't panic.
Silenced phones and shaking hands.
Whispered assurances in a darkened closet.

Not a drill.

All is still.

A false alarm.
Feb 2021 · 116
Hope
Aphasia Feb 2021
Hope is a thing with feathers--
TOO many feathers.
That flutter and flap inside me,
Threatening to expose
My crippling fear
That things may just get better.
I'm scared to hope, and scared not to.
Aphasia Jan 2021
I live in split reality
Unreconciled duality
I feel my mind and body split
I'm one part healthy, one part sick.

I struggle with my different roles
The things I can and can't control.
To be so alive, and still aware
I may never live a life without fear.

The doctors have no easy say
I take each moment as today
And wait with anxious, twisting hands
For someone to say they understand.
Another day, another doctors appointment. I struggle so much with how huge my health is as a part of my life and my personal identity, but so many people who know me have no idea about my health situation. I'm lucky to have such good quality of life despite what I've experienced, but I struggle with this duality in my self-perception of  seeing myself as strong and capable, but also as chronically ill.
Jan 2021 · 126
Special Child
Aphasia Jan 2021
'How can I love him?'
She asks me--
Not for the first time.

Like I'm the patron saint of
Unlovable children,
Having embraced my place
as the central fulcrum
of Autism Wonderland.

She shows me a picture
and my heart swells and breaks
for the that little boy
Lost in his own little world.
His birthday bliss,
As, slowly reaching for milestones,
He doesn't know he's missed
reaching
The hearts of family
Who are supposed to love
Unconditionally.

'You know I'm not like that,'
She tells me,
Asking not to judge,
To accept her wholly,
The way she can't
Accept him.
Children and adults with down syndrome have as much love and light to share as every other human. We need only be receptive to it.
Jan 2021 · 1.1k
The day after
Aphasia Jan 2021
It hurts
The pain echoes through my skull
Bouncing around like a ****** rubber ball
Bang
Bang
Bang
I want to feel better
I want to feel normal
And all the regular things from yesterday
Feel so, so far away
Like nothing will return to how it was
And the fear will linger forever
Migraine is not a headache. I don't know if I can see now, and my entire body is worn out. There is so much pain and fear and uncertainty.
Dec 2020 · 104
"I've missed you"
Aphasia Dec 2020
What a strange way to tell me
That I haven't been myself lately.
I wonder how much earlier
You noticed
Than I did.

Thank you for waiting,
Not knowing when I'd be back.
Sometimes it's hard for me to catch myself withdrawing until all of a sudden I realize that I haven't slept normally in a month and my phone conversation with friends are quiet and one-sided. When I finally start taking care of myself again, I wonder how much earlier they noticed the decline.
Dec 2020 · 100
Partnership
Aphasia Dec 2020
Like two falling figures
We spin wildly out
Fingers not quite touching.

Like coordinating catastrophes
One good day one bad
Episodic endurance.

Like the consistent click-clack of a Newton's cradle
Colliding energies
Creating orchestrated consistency.
Dec 2020 · 187
rhyming poetry
Aphasia Dec 2020
That eight beat slam across the page
It coddles like your sweater hood
To shield you from your fear of age
Predictability feels good

Familiarity's your hutch
So sweet a place to build a bed
Swaddled by your written crutch
To ease the noise inside your head
Nov 2020 · 2.5k
Worry's Deceit
Aphasia Nov 2020
The scientists
and pragmatists-
mathematical analysis-
can say it all won't come to pass-


(probably.)
The study in question: https://doi.org/10.1016/j.beth.2019.07.003
("Exposing Worry’s Deceit: Percentage of Untrue Worries in Generalized Anxiety Disorder Treatment")
Nov 2020 · 522
Don't Shut Down
Aphasia Nov 2020
When the water reaches overhead,
Your lungs can't gasp beyond the dread,
You've broken down, you've cried and bled,
but don't shut down.

When the floor falls 'way beneath your feet,
Your dry mouth has no words to speak,
The rhythm fails, you missed a beat,
but don't shut down.

I coax you from your corner cave,
I drag your mind far from the grave,
And all I had to give, I gave;
Please.
Don't shut down.
I reach out to you again and again. I never gave up on you, and I cherish your growth.
When you have those dark days, it hurts to watch you shut down again.
Nov 2020 · 336
Victory Lap
Aphasia Nov 2020
Mudslide muscles
Coax me into the couch
The cloud of distant ache
Coursing rivers in my legs below.

I welcome the pain with warm embrace.

Yesterday
I felt well enough to run.
For some, sore muscles are a minor distraction post-exercise. For me, the sore muscles increased an already significant fatigue. But I'm grateful for it, because yesterday I felt healthy.
Nov 2020 · 999
Medical Memory
Aphasia Nov 2020
How real are they? These faded dreams
The line between
Anxiety and reality
twists
Like the knife I know
Was entered into me
Found in emails to doctors
I've forgotten I'd written.
Sometimes awe and trauma battle for the same headspace.
Nov 2020 · 263
Late Night Poetry
Aphasia Nov 2020
I want to write a poem
Because poems are.
Poems talk
Poems throw themselves across the page with all the fierceness of an unhinged toddler
Poems are careful
Poems **** people off
Poems shred the written word and scatters it in rhythm you either love or despise
Poetry is the song you forgot the lyrics to
And the words
And the singer
But not the mood.
I want to be a poem.
Quarantine. Isolation. A podcast about Goodnight Moon and the history of children's literature. These are the ingredients to bring a long gone poet back to paper. One impulsive poem, maybe more to follow.

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