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Daniel Ross Jan 7
Oh wow lookie there!
What a marvelous creature

If you look closely over there you'll be able to see it
a wild hidden disability!

Usually they are invisible to the untrained eye
But I, Stene Irwiv will show you how you can sometimes spot them!

Now all of them look different, but here are a few examples.

See that buddy over there? I've been watching over this lad for a while now
Notice how he walks slowly almost like a waddle?
He also stops to rest more often than the usual guy
He's not lazy! just sore.
Make sure to be careful and don't touch him unexpectedly!
See my friend here has Fibromyalgia, it causes widespread chronic pain.
It can also cause migraines, mood swings, and memory issues
but remember, since these symptoms are usually invisible on the surface
this disability is often overlooked or even called fake by strangers,
but also doctors! ******!

This next one is a doozy
my mate right here looks pretty average on first glance,
but if you look closer you might be able to spot what makes her so special.
This lovely lady right here has Ehlers Danlos Syndrome.
Because of the defect in her collagen,
her skin and ligaments are unusually stretchy.
if you were to touch her skin you might feel that it is very soft and fragile
and when she stands you might see her knees and other joints bend back farther that usual.
She's not just 'double jointed' though,
because of the stretchy ligaments, she and others with EDS are at risk of joint dislocations and chronic pain everyday!
EDS doesn't just cause pain though,
it can also increases a person's risk of ***** rupture or heart problems!
Double ******!

Remember though, these disabilities can't always be seen
so don't judge people prematurely.
You see, the person you think is lazy for sitting in the handicapped seats on the bus,
or maybe the person parked in a handicapped spot who appears to be fine,
or even just the people walking down the street,
any one of them might have an invisible disability.
but just because they are invisible, that doesn't mean they aren't real.
I hope you all enjoyed the show.
I'm Stene Irwiv, and this has been Chronic Illness Hunter.
When I park in a disabled spot or go out in public wearing my braces, I feel like people look at me as if I'm a strange exotic creature. My lovely inspiration for this poem came from when I was watching old Steve Irwin documentaries while I was stuck in bed on a bad flare day.
Daniel Ross Jan 5
Mama always said my body is a temple but if this is a temple then I never want to worship again
I was born into this temple with the foundation already cracked
The ceilings are caving in
The floor boards wail in pain even with the most gentle of steps
I reach for the handle of the front door to get out but the hinges crack and break leaving nothing but agony in my wake
the widow screen is ripped and the wires are sticking out
the glass is either in shards gripping to the windowsill or in a pile on the floor
I can’t get out of this **** temple but staying here is killing me
Temples are meant for praising God but I only want to curse him for trapping me here
I wish I could tear down this place buts its already doing a pretty good job of doing that on its own.
Let me out of this **** temple.
Daniel Ross Jan 5
My Cat jumps up onto my lap
I feel sharp pain
my rib goes snap
I cannot move I cannot *****
For in my chest is an awful stitch
My Cats behind is a lil too thicc
For my joints are as strong as a brittle old stick
It’s not her concern
How I wiggle and turn
I’m just trying to put back
That rib that made me go ack
My cat jumped up onto my bed. Because of  my eds, just her trying to get comfy made my rib dislocate
Daniel Ross Jan 3
I wake up to an alarm set ten minutes before I need to get up because I never know how long it will take me to get out of bed.

My leg is asleep because at some point in the night my hip did the hokey pokey and turned itself around right out of its socket

But hey, my joint problems make me cool because like a transformer I bend and expand putting my joints back into their place.

See I'm like a cheap Halloween decoration,
Because my skeleton is falling apart at the seams
and if that's not bad enough, the only person it's scaring is me.
Voices in my head constantly tell me I'm not enough, gorgeous enough, thin enough.
They tell me I should change who I am because I won't be loved looking rough.
They tell me I should have a smaller nose, smaller thighs, smaller everything.
They say "you're prettiest friends are your thinner ones. If you wanna be like them then stop eating every single little thing."
I'm disgusting, they say. I'm unworthy of love and I'll never find it.
The voices are cruel. They never let up. They tell me "All of your thin friends get the guys attention, you don't because you're ugly and fat."
"They never give you a second thought because you're too big." They spat.
I know I'm ugly and fat. I'm not thin. My mind is a toxic place so I'm giving up and giving in.
Makenzie Marie Jan 2015
My body betrays me
Every day
But can I complain?
What can I say?
If I'm honest,
I've betrayed it myself.
Makenzie Marie Dec 2014
There's a war on
inside me
Raging on
And I'm fighting.

But I'm not free.
And never will be.
I battle my body...
So everyone can see
(Especially me)
that this war will not end in defeat
Longing for clouds in shallow ground.
To go back to the place i was found.
The whispers of wind crossing my breath.

In every instant I can see the clocks turn.
Have i come to myself to learn?

In these times of cloudy days iv learned to frown.

Become a clown...
Cover my face...
Live in secret....
In a nightmarish place.

Its all i can do to survive in this space

There is no grace in this empty place
No space.....
No space at all....
In this empty place.

Looking back threw the pages I awaken the memory.

I live in my thoughts in an enigmatic place.
Not clear where the others are.

Its all i can do to survive in this...
There is no space in this empty place.

No space....
No space at all....
In this empty space.

In dream my reality is delusion...
In walking my delusions are dream.

So cold of dreams I welcome to finally fill.

The chill has become so sharp I cant take this part.

Its all i can do to survive in this.....
There is no space in this empty place.

No space.......
No space at all......
In this empty space.

Have i come to myself to learn?

I have to face.......
that someone else needs to fill that space.

No space......
No space......
In the empty space.

Not clear where the others are..... I have left that place.

Left that place......
Left that place....
That painful place.

Clouds in shallow grounds.

*Living with Chiari Malformation, Ehlers-Danlos syndrome (EDS) and Dysautonomia
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