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Ella Burton Jan 2021
You ask me how I am
I say
I slur

You preach your 3 hours of sleep
As though it is a feat
A competition in your mind
I know I have already won
Yet mine isn’t so victorious

I have felt years of heavy eyelids pulled down by black fingernails, the bruised under eyes and lust for more sleep

A weak bag of bones is all I am now
Collapsed at a laugh
Or a cry
My muscles show no strength
Neither do I
Phoenix-Rising Apr 2020
the hallway bathroom and i
have recently become close again
she is a friend to me
in all of the worst ways

when my body grows too big,
the bathroom is always there
waiting for me to come back
to need her again

when no one wants to see my tears
she cradles me in her arms
lets me sit on her marble tiles
lean close to her porcelain seat

i whisper secrets to her
let her see all of my tears
and she comforts me
lets me empty everything into her

she tells me what i am doing
is alright, it won’t hurt anyone
my secrets are safe with her
but i don’t feel safe with her

no one else will hear me
no one uses the hallway bathroom
maybe that is why
she always holds me so tightly

she whispers secrets back to me
every once and a while
she’ll tell me that she’s missed me
that it’s been too long

or she’ll say that i am finally back
where I belong
with her, but still alone
and sometimes she’ll even give helpful tips

“it’s easier to ***** if you plug your nose”
“if you try one more time, you’ll feel better,
despite the burn in your throat”
“just once more, remember to breath this time”

we have always had a strained relationship
the hallway bathroom and i
but i always seem to crawl back to her
and she is always ready for me
Lily Feb 2020
I forgot how it felt to be hungry
How your bones rack for crumbs on the bottom of your heart
My bones feel like brittle; ready to break at a gush of wind
But Brittle is candy
Candy is a sweet delicacy of whom people like me refuse to have
Candy is what I believe I can be
Only if I change into one of those target plastic models
Perfect and pristine, standing as if they are mocking me
Making fun of my creatures in the dark
And my not-so-ideal summer body
I just want a summer body
I want to see what other people see in me
I want to be all that I could be if I was pretty
So I start dropping things off of my menu, drop by drop
First a side dish, then my sugary drink
That drink should go to hell for how much weight it makes me gain
I reach down my throat until my regrets come back up
Reminding me I cannot be pretty the way other girls get to be
Ducking to the restroom after a meal
Anxiety overwhelming every ounce of me as soon as I eat
There is beauty in pain, right?
Or beauty is pain?
Either way, they are correlated
That is good enough to allow me to turn myself in who I want to be
I was over this, I thought I was over being hungry
But then a man stared at me while I was walking to Walgreens
I do this to be beautiful for just a moment
But I also do this to disappear
Don’t look at me like that flesh of meat that day on that broken night
I want it to go away even if it means my bones shake on a sunny day
Even if my soul weeps at night
Even if my friends pick up on what’s wrong
Oh, please don’t pick up on what’s wrong
Can’t you see what you’re doing to me?
Let me be in control of my body
Watch me clatter to the floor and please don’t help me
Let me shake and quake
Watch me wear a heavy sweater and get out of breath walking
Let me substitute food for sweet vapor in my lungs
oooh it tastes sweet like brittle
Let me disappear
Please just let me disappear.
Trigger warning! This is a personal experience so please be nice :)
Peter Hark Jan 2020
Oh wow lookie there!
What a marvelous creature

If you look closely over there you'll be able to see it
a wild hidden disability!

Usually they are invisible to the untrained eye
But I, Stene Irwiv will show you how you can sometimes spot them!

Now all of them look different, but here are a few examples.

See that buddy over there? I've been watching over this lad for a while now
Notice how he walks slowly almost like a waddle?
He also stops to rest more often than the usual guy
He's not lazy! just sore.
Make sure to be careful and don't touch him unexpectedly!
See my friend here has Fibromyalgia, it causes widespread chronic pain.
It can also cause migraines, mood swings, and memory issues
but remember, since these symptoms are usually invisible on the surface
this disability is often overlooked or even called fake by strangers,
but also doctors! ******!

This next one is a doozy
my mate right here looks pretty average on first glance,
but if you look closer you might be able to spot what makes her so special.
This lovely lady right here has Ehlers Danlos Syndrome.
Because of the defect in her collagen,
her skin and ligaments are unusually stretchy.
if you were to touch her skin you might feel that it is very soft and fragile
and when she stands you might see her knees and other joints bend back farther that usual.
She's not just 'double jointed' though,
because of the stretchy ligaments, she and others with EDS are at risk of joint dislocations and chronic pain everyday!
EDS doesn't just cause pain though,
it can also increases a person's risk of ***** rupture or heart problems!
Double ******!

Remember though, these disabilities can't always be seen
so don't judge people prematurely.
You see, the person you think is lazy for sitting in the handicapped seats on the bus,
or maybe the person parked in a handicapped spot who appears to be fine,
or even just the people walking down the street,
any one of them might have an invisible disability.
but just because they are invisible, that doesn't mean they aren't real.
I hope you all enjoyed the show.
I'm Stene Irwiv, and this has been Chronic Illness Hunter.
When I park in a disabled spot or go out in public wearing my braces, I feel like people look at me as if I'm a strange exotic creature. My lovely inspiration for this poem came from when I was watching old Steve Irwin documentaries while I was stuck in bed on a bad flare day.
Peter Hark Jan 2020
Mama always said my body is a temple but if this is a temple then I never want to worship again
I was born into this temple with the foundation already cracked
The ceilings are caving in
The floor boards wail in pain even with the most gentle of steps
I reach for the handle of the front door to get out but the hinges crack and break leaving nothing but agony in my wake
the widow screen is ripped and the wires are sticking out
the glass is either in shards gripping to the windowsill or in a pile on the floor
I can’t get out of this **** temple but staying here is killing me
Temples are meant for praising God but I only want to curse him for trapping me here
I wish I could tear down this place buts its already doing a pretty good job of doing that on its own.
Let me out of this **** temple.
Peter Hark Jan 2020
My Cat jumps up onto my lap
I feel sharp pain
my rib goes snap
I cannot move I cannot *****
For in my chest is an awful stitch
My Cats behind is a lil too thicc
For my joints are as strong as a brittle old stick
It’s not her concern
How I wiggle and turn
I’m just trying to put back
That rib that made me go ack
My cat jumped up onto my bed. Because of  my eds, just her trying to get comfy made my rib dislocate
Peter Hark Jan 2020
I wake up to an alarm set ten minutes before I need to get up because I never know how long it will take me to get out of bed.

My leg is asleep because at some point in the night my hip did the hokey pokey and turned itself around right out of its socket

But hey, my joint problems make me cool because like a transformer I bend and expand putting my joints back into their place.

See I'm like a cheap Halloween decoration,
Because my skeleton is falling apart at the seams
and if that's not bad enough, the only person it's scaring is me.
Voices in my head constantly tell me I'm not enough, gorgeous enough, thin enough.
They tell me I should change who I am because I won't be loved looking rough.
They tell me I should have a smaller nose, smaller thighs, smaller everything.
They say "you're prettiest friends are your thinner ones. If you wanna be like them then stop eating every single little thing."
I'm disgusting, they say. I'm unworthy of love and I'll never find it.
The voices are cruel. They never let up. They tell me "All of your thin friends get the guys attention, you don't because you're ugly and fat."
"They never give you a second thought because you're too big." They spat.
I know I'm ugly and fat. I'm not thin. My mind is a toxic place so I'm giving up and giving in.
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