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Scarlet Niamh Oct 2017
My father's obsession became increasingly apparent
with every visit I made to him.
The clocks, their hands,
their beautiful, twisted fingers
dancing to the co-ordinated sound of
ticking - he couldn't take his eyes from them.
Over the years I began to see
his irises shifting like clockwork,
miniature minute hands
beating at the doors,
ticking
ticking
ticking.
They are knitting,
knitting a fabric so tight it's a shroud,
pulling it over his head and waiting
for him to sink into the waters of embalmment.
Epitaphs, mad men entitled to nothing.
He formed the millions into gears,
expectation of a smooth, working machine
which he could grasp in his fingers
and hold up to the ***** sky,
moving, scurrying,
ticking. A better place, or so it seemed
to him, where men didn't speak in tongues
and life answered
to something beyond chance.
It was different when he first came here
but then so was he,
it was a version that made more sense.
A version where black birds with missing
feathers patrolled the skies,
where he ran his hands through his hair
to leave straggled clumps between his fingers -
balding velvet. He forgot
so much more than he had remembered,
even me. Eyes still glazed white
looking right at me, he was cold-limbed
and vacant and filled me with a filthy,
cruel hollowness that takes
and takes, relentlessly, for no gear,
or system, or rhyme, will pull
the books from the shelves. I won't find
a ransacked home with shattered furniture
and broken glass littering the floor,
only a clean, aching, vague room
that is blue and sterile and so empty
it leaves trails of goosebumps
along my arms and burns its way
into my dreams in the depths of the night.
I won't find you crying over empty photographs,
only a shell,
staring, dead, at the whitewashed walls.
~~ Exhume me from the burden of memory. ~~
Scarlet Niamh Oct 2017
She is winding her way in front of my eyes,
dancing and weaving ivory linens around my neck.
They look like fog and I can't remember,
can't remember the touch, or taste,
if it was your soft hands holding onto me
that October night. I can see my eyes,
so blue - were they always this murky
and dull? There was something between
them, is it commonplace to have a comma
in a full stop's place? Clumsy.
I hold onto my mother with weak, calloused
hands, calling her name. What was her name?
I don't know her face. I only know the fog,
the **** fog, and I can't remember-
why can't I remember? I want to know
the call of the damp, apologetic starling
who pecks holes in the sun so he can ride
with the circus. I want to know my hands,
rough like glass over the furrow of your brow,
but the far away tomorrow is coming for me
and I know that I won't remember
my name, or trace, or the reason
my lips rhyme with the seasons,
in time to save me becoming the fog
which stretches itself over my eyes
like soft, ivory linen.
Eleanor Aug 2017
I know you are lost,
I really want to find you.
It's been so long,
Since I have seen you.

I know you are lost,
I promise I'm trying.
I feel the pain of the lost,
Is that the worst thing?

How does it feel to be lost?
Do you know where you are?
I'm afraid I'll never find you,
I think you've gone too far...

Do you miss me?
I miss you.
I will always love you...
Even if I get lost.
Hayleigh Aug 2017
Every three seconds someone in the world is diagnosed with dementia, that works out as 9.9 million new cases of dementia world wide each and every year. In 2017 the number of sufferers was said to be just under 50 million, this number is set to almost double every 20 years.

I am walking for a world where people do not have to live in fear of losing themselves before they lose their lives. Where the only wandering that takes place is not up and down corridors, in streets, or in care homes but is that wonder of what life was like for those that suffered. Where the only reason that questions are asked is because people don't have to experience what it's like to have to lose a loved one to this disease. Where hands can feed their own mouths, where brains don't shut down, where people recognise the sound of their own voice, their reflection, where mirrors don't scream rejection.

I am walking for a time when people have a sense of time, of the date, of the year, where they don't live in fear of a diagnosis that stamps them with an expiration date, that defines and underlines the heavy hearted fate they are yet to await.

Where the only memories lost are the memory loss of what these symptoms and statistics sound like.
Where the only thing misplaced is the difficulties faced, because no one has to endure this illness anymore.
I am walking for a world without dementia.

Any and all donations welcome.

Thank you.

https://www.justgiving.com/fundraising/mw266787
Feggyr Citack Aug 2017
-on an old person's incredible patience

How strange you are,
hugging and kissing me.
I dare not stop you,
you may turn against me.

You must be someone else,
a person I have never met;
and I'm not pleased to meet you
since the first time that we met.

I wish you let go.
Just let me be...
Just-let-me-be.

This isn't me, you know.
It's really me
that's just not me.
Alzheimer tears apart any relationship. Much of this song applies to both partners; we can't tell who suffers most.
Chui Choo Aug 2017
Po Po wakes up in the middle of the night
She’s scared, her eyes – unusually wide
She checks the gate three times
Until she’s contented that it’s bolted, safe from the outside

When she did that she told my uncle
To always remember so that they’d be guarded from the robbers
You never know if they’re hidden in the rubber trees
All around; it’s so easy to deceive  

She has forgotten, that she’s in the present
Her children all grown now
Enough to scare away any plunderer or thief
The area still scattered with rubber trees, but no longer dangerous like it used to be

You see 40 years ago she raised
Nine children on her own, her husband away
Working in the city to provide for the family
It was inevitable; yet she must have still felt lonely

A woman alone, nine children in a tow
She was fearful for their safety
In that time and place – understandably so
She didn’t know what could happen, if she didn’t lock the doors

So every night without fail she did
How scared she must have been
Laying wide awake in bed
Hoping that in the morning, everything would be okay

Just the other day she asked my father
A worried expression, but her words did not falter
Are you doing well, she asked
Reminded of the rough times he had in the past

She has forgotten that in the present
My father runs, successfully, his own business
It is tough sometimes but goes well enough
To provide for me, my mother and brother; he has built a comfortable life for us

The same happened to my father’s siblings
Four brothers, four sisters – all with their own families
When they realised what and why she was asking
I imagined that they all stopped and realised something

“Lao ren chi dai” is what they call it in Mandarin
A common condition for the ageing and elderly
Dementia I realised is what Po Po has
It’s no wonder she has the tendency to forget

This we all accepted easily
Life went on – that is how my family is
Stoic and accepting of whatever happens
Stereotypically Asian? I guess that is how we reacted

What made me sad though was not that she forgot
But that she remembered the bad times, and her thoughts
From those parts of her life are very telling
Of the uneasy and difficult experiences she was reliving

How hard it was for her I will never fully understand
I’m lucky enough to live a life very blessed
But I wish I could shoulder some of her burden and her stress
If that would even help at all; for I cannot prevent what happened back then

~

When she passed, I will never forget
My youngest uncle, his eyes so kind
They teared up, I swear I saw him cry
It was the strongest display of negative emotion I had ever seen
In my short, but whole life of knowing him
This doesn't have the "-" in the title, because it's a personal story.

Both my grandmothers experienced dementia before they passed away. My paternal one, who I affectionately called Po Po (Mandarin for grandmother), lived a difficult life. My father told me that until the very end she kept getting worried about my aunts and uncles – her children. She kept asking if we had any financial troubles or if we needed money. And she was worried about the gates, whether it was locked or not, not just in the night anymore but also in the day. I remember seeing her fiddle with them in the afternoon and wondering what was going on.

I can't imagine the fear she felt then if that was one of the key feelings that was triggered because of her dementia. How lasting was it and how deeply had it impacted her?
freeing the mind Jul 2017
The creaking of that old chair is all which they could hear,
''take a seat'' he said and move it near,
he would tell a story of which he was very fond;
it included a bike, an old friend, and a huge duck pond;
He spoke these words time and time,
no remembrance of telling it but, once more would be fine,
He chuckled and chuckled at the top of his lungs
telling of his friend and how off his bike he was flung,
With a smile, he glanced at the family around
a sudden moment of silence;
'' Whats your name?'' he frowned
A nervous laughter from his daughter he heard :
But the man? he just stared.
Unsure of these people who once more came to visit,
''story telling is my job, so your problem what is it?!''
His voice he projected, confusion portrayed;
great sadness in his family, but by his side they stayed.
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