My autism's a part of me,

But it is apart, you see.

...

Who are you?

With your ‘normal’ view.

Are you just one thing, or are you a person

With thoughts & feelings, that are your own unique version.

Preferences, ideas, talents, and dreams?

That are bound by senses that meet at their seams.

Are you fat, short sighted or visually impaired?

Are you ever wondering why I just stood and stared.

Those may be the things that I saw the first time I meet you,

But you’re more than just your ‘normal’ diagnosis…. True?

As an adult, you have control over how you’re defined.

Your normality means your perceptions are refined.

So why would you single out one characteristic of mine that you can make known.

As a child, I am still unfolding, I’m not fully grown.

Neither you nor I yet know of what I am capable.

If you think of me as just one thing, then one thing’s inescapable.

You run the danger of assuming I have no chance of achieving.

And my heightened senses know this, it’s only you you’re deceiving

For I am not endowed with any ordinary sense.

You need to know this before I commence.

You take for granted sight, sound, taste, touch and smell.

Never once realising that these things can be as painful as hell

For me.

You see.

My world often feels hostile, and makes me so fearful.

I may appear withdrawn or belligerent, whilst others are cheerful.

Or mean to you, or antagonistic,

Defending myself, then going ballistic.

You tell me we’re going on a trip to the shops

And out of the world my safety net instantly drops.

My hearing, you see, is hyper acute.

But I’m put in the car, though I loudly refute.

At the shops, walls of people jabber and whoop.

The loudspeaker booms and adds to the soup.

Music blares and lashes and whooshes.

Tills beep and cough, a coffee grinder swooshes.

The meat cutter screeches, a baby starts wailing,

I’m starting to malfunction and am rapidly flailing

As trolleys pass creaking, and fluorescent lights hum.

I’m starting to panic, but also turn numb.

My brain can’t filter the input, the voltage is massive

I’m in overload with no chance of staying passive.

My sense of smell is stratospheric.

That fish on the counter is NOT atmospheric.

The man in front hasn’t showered today,

That Stilton cheese – someone take it away!

A baby goes past, it’s ***** needs changing.

Things are going faster and turning deranging

They’re mopping up pickles on aisle two with some bleach and a rag.

My stomach is churning, and I’m starting to gag..

And there’s so much hitting my eyes!

This trip has turned into the world's worst surprise.

The fluorescent light

Is not only too bright,

it’s that flicker.

The space seems to be moving, getting quicker and quicker.

The pulsating light bounces off everything and distorts what I am seeing.

I don’t know what I’m doing, or saying, or being.

There are too many items for me to be able to focus.

The world starts to drain me of my internal locus.

My eyes try to compensate by tunnelling my vision

Fans on the ceiling, twist my senses into nuclear fission.

All this affects how I feel just standing there,

and I can’t even tell where my body is in space, do I care?

You’re yelling at me now, and shaking my shoulder

But the fiery fog is down and is starting to smoulder

It isn’t that I don’t want to hear your instruction.

I just can’t understand, due to mass self-destruction.

You're shouting now, but what does "£$%^&&% NOW! !£$%^&*" mean?

My senses will **** me in a collusion so obscene.

Once we’re back at the kids home, it all feels less absurd.

And now when you speak, I can hear every word.

Simple instructions, that I know off by heart.

And I cling onto these so I won’t fall apart.

You tell me what you want me to do next and I’m able to reply.

Now I’m happy and it’s easy for me to comply.

Now I’m OK and I’m running about

And performing my ritualised songs, which I shout.

Then a visitor grabs me saying, “Hold your horses, cowboy!” – This means danger!

I can’t stop the horses, I’m me, not the Lone Ranger!

And I’m thrown into panic when what you mean is, “Stop running.”

But I don’t know that! Those stampeding horses are coming!!

That’s my life, you see, it’s not “a piece of cake”

When there’s no dessert in sight and you’ve made a mistake.

When you say, “its pouring cats and dogs,” I see pets flooding from the sky.

Tell me, “It’s raining hard,” so I won’t fear the animals will die.

Puns, sarcasm and allusion

Simply generate confusion.

Tell me facts and keep things clear

So I can live, yet not in fear.

It’s hard for me to tell you what I need when my senses are reeling

When I don’t have a way to describe what I’m feeling.

I may be hungry, frustrated, frightened, or perplexed.

But I can’t find the words, and lash out, angry and vexed.

Be alert for my body language, or my gestures and obsessions

Then you’ll handle my feelings like your own treasured possessions.

Watch out for me compensating for not knowing the right word

By mimicking my favourite film star, or something just as absurd.

Rattling off words or whole scripts, which will leave you confounded

That I’ve memorised from Disney, because they make me feel grounded.

They may come from the TV, or speeches, or a book

And though they make people give a funny look

I just know that saying them gets me off the hook.

Show me, show me! I’m visual, you see.

And I’ll understand rather than you just telling me.

And be prepared to show countless times.

I’m listening, despite my ritualised rhymes.

Visual supports help me move through my day.

They relieve me of the stress and I feel OK.

I don’t have to remember what’s happening next

For I operate on a visual text.

This makes for smooth transitions in my life

And we’ll finally progress without anger or strife.

I need to see something to learn it, because spoken words are like steam to me;

They evaporate before my mind's eye, and are gone instantly,

Before I even have a chance to make sense of them,

They've died in the ether, leaving me in mayhem.

I don’t have instant-processing skills.

Instructions and information are my life giving pills

Images can stay in front of me for as long as I need,

and will be just the same in years, for they'll never recede.

Without visual help, I live the constant frustration

of knowing that I’m missing big blocks of information,

Not to mention falling short, by being a misfit

And I'm helpless to do anything about it.

Unlike other people, I'm unable to learn

If it's normal interaction for which you do yearn.

I’m constantly made to feel that I’m not good enough

And people are stern and people are tough.

They think I need taking in hand and need fixing.

Never knowing the world and my brain are tranfixing

I avoid trying any new things, for I'm sure I'll get 'dissed'

And another grown up will be angry and get 'real ******'.

But no matter how “constructive” you think you’re being.

Look for my strengths, though they're hard for the seeing.

There is more than one right way to do most things.

It may look like I don’t want to play with the other kids on the swings

But it may be that I simply do not know how to start

They just think I'm weird, and set me apart.

Teach me how to play with others.

Remove my autistic shrouded covers.

Encourage other children to invite me along.

They might learn something of value from my life's different song.

And rather than spend my day as separate, secluded.

I might show an ethereal delight at being included.

I do best in games that have a clear beginning and end.

Random play is something my fears won't transcend.

And just one other thing, a sort of confession

I cannot interpret a ****** expression

Or body language, or other peoples' emotion

So in group situations I'm resigned to demotion.

I want to learn, I want you to teach me.

Reach into my mind and help me to see.

If I laugh when Tommy falls off the climbing frame,

It’s that I don’t know what to say, nastiness isn't to blame

Talk to me about Tommy’s feelings and teach me to say,

“Are you hurt, Tommy, I'll get teacher, then you'll be okay?”

If you don't I'll meltdown or blow-up, and get in a stew

And this is a thousand times worse for me than for you.

For my mind will go into overload

My sense of equilibrium will start to off-road.

For I'm well past the limit of my social ability.

As those off road lights glare at my own disability.

If you can figure out why my meltdowns occur, they can be prevented

And my behaviours will abate, less frequently lamented.

Keep notes about me and a pattern may emerge.

As your understanding of me will gradually converge.

Remember that everything I do is a form of communication.

It tells you, when my words cannot, how I’m reacting to each situation.

My behavior may have a physical cause.

Think for a moment, just have a pause.

Food allergies and sleep problems can affect my behaviour.

Just look for signs, for you might be my Saviour.

Because I may not be able to tell you about these things.

That blunt my affect and cause my mood swings.

Throw away thoughts like, “If you would just—” and “Why can’t you—?”

You didn’t fulfill every expectation your parents had either, that's true.

And would you like to witness a constant rewind.

Of the traumatic deficits by which you're defined?

I didn’t choose to have autism.

Or to live with this division

Remember that it’s happening to me, not to you.

But without understanding, my chances remain few.

With love and support, my horizons are broader

But I can't live my life by other peoples order.

Patience. Patience. Patience, are the three words we need to live by

For my dreams to be reached, and my confidence fly.

View my autism as a different ability

Rather than as a freak show disability.

Look past what you may see as limitations and feel for my strength

I may not be good at eye contact or conversations of length

But have you noticed that I don’t lie, or cheat at a game

Or pass judgment on people, and make them to blame?

I rely on you, if you can make me your personal vocation

All that I might become won’t happen without you as my foundation.

Be my advocate, be my guide

Be my strength, stand at my side.

Love me for who I am, and not what you know

And we’ll see just how far I can go.

Matt Revans 2014
©Copyright

Isn't it quite deranging
That every book,
Every song,
Every dream
Still speak your name.


F.Z.**N

Love is a rare and dangerous creature
That only shows face when the time is right now
Lust is a complimentary feature
Which keeps lovers guessing til both settle down

Not to say everyone settles for less
Love doesn't lie, but it leaves room for choice
Those who are willing to give it their best
Keep Lust in its place and let Love be the voice

Love is adaptable, constantly changing
It morphs and it breathes like a woman or man
Lust is impassible, always deranging
It puts up a wall and masks what it can

Nobody knows what happens to Love
When distance requires the mind to have faith
And stare at the images Lust conjures up
Alluding ideas of mistrust and distaste

Isn't it better to let Love be free?
To keep it confined would just let it die
Allowing the chains for which Lust has the key
To govern the feelings of comfort and pride

Be free, my love, to run through the brush
But always remember where you were at peace
And hurry on back when you've had enough
For I may not be here when your venture has ceased

It is no night to drown in:
A full moon, river lapsing
Black beneath bland mirror-sheen,

The blue water-mists dropping
Scrim after scrim like fishnets
Though fishermen are sleeping,

The massive castle turrets
Doubling themselves in a glass
All stillness. Yet these shapes float

Up toward me, troubling the face
Of quiet. From the nadir
They rise, their limbs ponderous

With richness, hair heavier
Than sculptured marble. They sing
Of a world more full and clear

Than can be. Sisters, your song
Bears a burden too weighty
For the whorled ear's listening

Here, in a well-steered country,
Under a balanced ruler.
Deranging by harmony

Beyond the mundane order,
Your voices lay siege. You lodge
On the pitched reefs of nightmare,

Promising sure harborage;
By day, descant from borders
Of hebetude, from the ledge

Also of high windows. Worse
Even than your maddening
Song, your silence. At the source

Of your ice-hearted calling --
Drunkenness of the great depths.
O river, I see drifting

Deep in your flux of silver
Those great goddesses of peace.
Stone, stone, ferry me down there.

Rings of light lowering from the skies I called my faith Godly and A universe is birthing somewhere; Transporting peace into this world everyone else infidel. Now I going extinct Dinosaurs in There! Ant-eating stick,

I emerged have divine rights to pillage all.

A galaxy few light-years away, A tool-making ape. And gave the Shoreless ocean knocking the heart. At this very moment, life first
key to St. Peter and walked, walked That I locked away behind a
door. peered at

the firmament of stars. Bequeathing hopers,

A light called forth and I walked forth A supernova ***** all light. memories down epigenetic lines. out a mollusc to the future But peace was alive all along. An arc. Epic. Exodusish. enroute a transcience
called man; Now

in the fear of a mushroom There is a God.

Too bland for our Tossing around in a centrifuge. clouds, she graces
the world in taste, lighting all hearts in peace-fires. Giant wheel. Merry-go-around. her dome-shrines dotting the wide
shores. And now

we like them, deranging conflagrations more.

Under frizzed hair,
The Conscious Operator,
Smacking gum,
Waits with her tails of living wire
To make connections
At Synaptic Central.

The reader
Tilts a page to catch the rays,
Scans for symbols,
Begins to send
And to receive
Electric fires of thought
Traveling in from
Senses Five -
Traveling out from
Schema Library's
Data files -
To meet and
To commingle
At the Board.

With octopal finesse,
The tireless Operator
Plies Neural Central,
Sending quick myriads of thought
To rest or to revive in living files.

Neurons snap and arc;
Their coded leaping fires
Surge message-full
Through cables sheathed
To Synapse Central,
Where in her nimble hands
Fire Control finds slots
And coordinates connections,
During and Long After
The Outward Reading's done.

Even when the Blinds go down
Synaptic Central's work goes on.
The frizz-haired friend steps out to rest;
Sub-Conscious moves into her place
And with unsteady hand
Plays seeming havoc at the Board
Rearranging and Deranging
Delightful dreams, or horrid.

This place is always a little lonely
At the weekends...no noise and life;
I like solitude,
But not in places
Where's there's recently been
A lot of people.
Reclusiveness protects you
From nostalgia,
And you can be as nostalgic
In relation to what happened
Half an hour ago
As half a century ago, in fact more so.
                                                            
I went to the Xmas party.
I danced,
And generally lived it up.
I went to bed sad though.
Discos exacerbate
My sense of solitude.
My capacity for social warmth,
Excessive social dependence,
And romantic zeal,
Can be practically deranging;
It's no wonder I feel the need
To escape...
                                                       ­     
Escape from my own
Drastic social emotivity,
And devastating capacity
For loneliness.
I feel trapped here;
There's no
Outlet for my talents.
                                                        ­    
In such a state as this,
I could fall in love with anyone.
The night before last,
I went to the ball,
Couples filing out,  
I wanted to be half of every one,  
But I didn't want to lose * * *.  
I'll get over how I feel now,
And very soon.
Gradually I'll freeze again,
Even assuming an extra layer of snow.  
I have to get out of here.

Under frizzed hair,
The Conscious Operator,
Smacking gum,
Waits with her tails of living wire
To make connections
At Synaptic Central.  

The reader
Tilts a page to catch the rays,
Scans for symbols,
Begins to send
And to receive
Electric fires of thought
Traveling in from
Senses Five -
Traveling out from
Schema Library's
Data files -
To meet and
To commingle
At the Board.

With octopal finesse,
The tireless Operator
Plies Neural Central,
Sending quick myriads of thought
To rest or to revive in living files.

Neurons snap and arc;
Their coded leaping fires
Surge message-full
Through cables sheathed
To Synapse Central,
Where in her nimble hands
Fire Control finds slots
And coordinates connections,
During and Long After
The Outward Reading's done.

Even when the Blinds go down
Synaptic Central's work goes on.
The frizz-haired friend steps out to rest;
Sub-Conscious moves into her place
And with unsteady hand
Plays seeming havoc at the Board
Rearranging and Deranging
Delightful dreams, or horrid.

there is a plurality in the times
for I cannot stop for death
it cannot stop for me
and I hear the roar of silent space
as it  hears the roars of me
driving one towards
visionary liberation
like a frenzied shaman
in his dance
deranging sensories to be found
yet still known in this trance
and punishment for poetry is not new
nor is the strangling of my hair
for we are all solitaries
placed, situated, somewhere
so I wish I was in Zanzibar
to walk upon its sand
to feel the impressions of words
explode within my hands
and to drink all the ink
that baths upon me and calls itself anew
it is the shimmer of this violet haze
that echoes in my view

What sordid devotions to identity and strife
Misguided, deranging
Place joy atop a knife

Only through eyes yet unopened
Can the single truth be gleaned
Unbridled, Undivided
Outstanding, Unseen