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Daisy Rae Mar 2018
they cover my face from forehead to chin
they rest in the most uncomfortable creases
they are red as a rash
and big enough as a bug bite
they stick out, they lie under my skin
they hurt and they sting when I try to scrub them clean
i’ve tried washes, creams, pills,
special oils, face masks, lotions,
the works
i don’t like the mirror because it makes me look at
these things that take up half my face
i don’t like to take pictures when my face isn’t clear
and makeup just makes it worse
i don’t like to go out
because I know others are watching
and wonder how someone could be so ugly
these pimples just don’t go away
no matter what I do
so please, if you meet me
and want to give some advice
i’d much rather you not
because, you see
i’ve already tried it all
and please do not utter that phrase
for I surely will blow up in flames
”oh stop acting like it’s such a big deal”
try living as me for a day
and you will see
that this feeling of dread
about the bumps on your face
never goes away
and you will surely see
that you look like this
and they look like that
and I promise you wouldn’t want to be me
Chronic acne is something I struggle with and what a lot of people also struggle with. A lot of uneducated people will assume that we aren’t trying hard enough. Dealing with chronic acne is not a walk in the park and needs a lot of work to be able to control it. Educate yourself before giving us your advice, we don’t need it.
Lydia Jan 2018
I wanted to ask you a question
But I collapsed when I went to pray
I was wondering why my fingers were so cold
My body shaking, suddenly drowning in the covers
Couldn't stand to sit on my knees
Could barely breathe,
I missed the pillow, hit the headboard instead
Younger me wanted to ask why she was sick so often
Why hospital rooms were so barren and how nurses could avoid falling in love
God, I wanted to ask you a question
But the room was fading away
Full tilt,
Gone
I wanted to ask why I couldn't hold my body up to speak to you
Why this white room is so cold
Every once in awhile, my body reminds me that I am still ill, and my mother reminds me that we can go to the hospital if we have to.
Please comment :)
Polly Jan 2018
I never thought it fair
The way we have life given to us
When maybe
The truth is
We were never meant to have it.

If the choice had been mine to make
I would have chosen a thousand skies
Trip across oceans and
never
Lay my feet to Earth.

Chained to an existence
When maybe I was never supposed
To be...
 Anything.
And now like a fallen bird who's wings are clipped
I can neither stay
Nor can I leave.
Lydia Jan 2018
I sat on the edge of the pool, heaving last Friday
"I thought this would be easy," I shouted at the lifeguard who was actually on duty in between heavy breaths
We've been mates for awhile I suppose, so I wasn't uncomfortable wearing almost no clothes in front of him
My relay partner was returning so I stood up, still breathing too hard,
Ignoring the bruises on my shins from the side of the pool
I jumped in, turning to face him (terminator style) as the water swallowed me,
Grabbed the brick, swam the fifty
Stood up on the edge right away this time, entirely focused on my body and my partner

I got lost on a mountain once
My friend and I had been climbing nearly straight up for an hour before we realized we'd lost the trail
We also realized that going down would be infinitely more challenging than coming up
Covered in scratches and bruises, with burs in our hair and the sun setting and no idea how we had lost the Appalachian, we called my dad
When I finally got home, with no help from him, he said,
"I'm glad you got lost. You learned something today."
The water I had hidden in his pickup truck may have saved our lives

A football player pushed me up onto the two foot side of the pool to do a tricep dip at the instruction of my teacher
This was the first time I realized how weak I was, pale and sickly and tired and trying to change
We have already done fifty nine pushups and sit ups and sprints on the deck
I passed out at six pm that night
And got up at six am the next day
Wrapped my wrists for English and chemistry,
And replaced the braces with grips when I got to the gym

I think disappointed was the only word I could come up with as my sister drove me to the ER the day before she left for college
She'd spent eighteen years growing up, and this was the first time I felt like she was still a child,
Scared and vulnerable, turning off the lights for me while we waited for the doctor and my dad
More CT scans,
"Lie still, don't move,"
I could swear I was in a mortuary, in my coffin, too young for my liking
This was before my second training session, and I was afraid I was going to have to quit

My girlfriend and I did our first run together, holding steady to her 11 minute-mile-pace
Except for the mandatory sprints on my training app
I took her in between trees and across the farmland I grew up on
There was no talking, we each had our own music
But she got to feel something I loved, and I got to be with her, sense her footsteps out of sync with my own
We got caught in the rain

"Excuse me, Coach, Sir," I said out of habit, when he told me to call him Coach and not Sir
It was the first time I passed my physical for a sport
He had me running three miles on the first day, and the second, and the third, and I got lost
(This became a running theme in my quest to "get better")
Suddenly, I wasn't the girl in the hospital gown anymore,
Although the one person on the team who knew me asked me if I had my medication every day
If I didn't, he stayed back with me
He was safe, for some reason
I ran my second 10k that year
This is my actual story. No characters. Me.

Please comment :)
Lydia Jan 2018
I treated my skin like a goddess
Legs shaved, hands moisturized,
Any spot of acne scrubbed away and covered over with pale sheets
But I hid from my spine, like a snake always a few inches behind me, waiting to strike
This skin there was a poorly applied veneer,
Exaggerating the flaws it was meant to hide
The snake is in constant motion, waving an S up the core of my being,
Displaying my instability
It's curved, like the ridges of the Grand Canyon
Only more unnatural,
Un beautiful,
More like a line you tried to draw straight
Only when it wavered just a little too much, you threw it away and started over
I cannot start over
My snake drags venom along its body, instead of drooling it into a bite
And he is always biting,
So the skin on my back has never been touched
Never been pampered, or savored.
There is no "positive message" to this one but it is not meant to be a downer by any means . Everyone has their own insecurities and challenges. I'm super tall so when I  was little I grew too fast and my body didn't quite compensate. I have problems with many other joints too but I'm actually a runner and a swimmer.  Please comment :)
Lydia Nov 2017
I wish my lotion had glitter in it
I also wish my head didn't hurt
I had a nightmare that I was back in the hospital the day my insurance company denied my medication
I can't afford it,
So I can't sleep now
But yesterday I dreamed I was back in the hospital like when I was a kid
I was only there a couple of times, for testing and for times I forgot my medication
There was a bit of a learning curve for a seven year old
But I'm moving out next year
I've already learned
I take my vitamins, I go to my doctor visits
I finally got my sports clearances,
But I can't drive a car without my medication
I can't work somedays either
So as I lay here, by myself, I can't help but remember the nurse who gave me a friendship bracelet in the emergency room on Christmas
The saline in my arm was cold, and they stopped giving me blankets because I had a fever
I was twelve years old and it was snowing in Atlanta for the first time in years
I couldn't tell from my windowless room
The nurse put lotion on my hands with glitter in it
I had a fever because I was dehydrated
I was dehydrated because I forgot my medication at home in Pennsylvania.
I do want to state that I am fine. I have a chronic medical condition. I've had it for my entire life, I was diagnosed as a kid. Most children grow out of it by age 12, I was that rare exception to the word "most" and so I still struggle with the same condition even as I go into college. I will have it for my entire life. It was only recently proven to be a real disorder and is now finally being properly studied, but my insurance hasn't caught up and listed the medication as necessary for my condition. I am currently in round two of appeal.
Laurel Leaves Oct 2017
So anyway
the world seems to fit this specific rotation
where I found myself sitting on this bar stool
ordering
well you know,
not alcohol because,
that one thing my body does so well
is shut down
start peeing blood
not process anything
it just kind of gives up,
constantly,
I mean you remember,
that time you took me to the ER,
How I couldn't stand up and they kept telling me it was going to be ok
but I just looked at you and bleakly smiled because I knew it wasn't
this is my
slow decline
incredibly painful,
younameit

so,

clearing my throat and saying
"just put some fizzy water in a glass and throw a lime in it, it's not that hard and don't look at me like that"


The dive bar
God, it was your dive bar
they were even playing that one song you
played for me on the car stereo
the happy one,
the one I always picture you driving with your one hand on the steering wheel
sun shining on us
that ******* one
and the bartender she rolled her eyes, walked off


I saw this reflection in the mirror
the one right behind the bar
while the neon red light
illuminated my eyes
in that moment
this whiskey taste hit the back of my throat
your sweat, your voice,
all of it, taking over my entity
without my consent I was stuck in
the notes that stung
tickled my tonsils
I could feel you
I swear
you had to have been sitting in this exact spot
an hour or so ago
and the reflection was so used to
you filling this space
it almost just shot an image back of you
at me

I wanted to call you
write you
send you one of those long emails
we used to spend hours typing to each other
to seem profound
to rationalize our mental health by simply stating
"well,
we're writers"
but then I remembered the last thing you said to me
it was more of a question
and I thought about
how selfish that was
"can
we
still..?"
the anger just bubbled from there

it rose to my chest
and I lifted my hand up and said
"actually can you make it a whiskey?"
"a double?

..?"
and I waited for her to roll her eyes again,
walk to the bar,
grab the cheapest well whiskey I've ever seen
and pour it heavy over two ice cubes


You would have liked that.
Im sure you're ordering that right now.

I pulled the shot back
waited for it to hit
quickly requested a Lyft to the nearest hospital

because I knew
in
ten minutes
it would
send me spiraling
and I would be there again
in that same room
where you laid still
and I tried to sleep
to not ***** on you
to kind of just pretend this wasn't a memory
I'd have to actively force myself to forget
as I frequented the same sterile supplies
day in
day out


the room where you chewed on the words
and spit them back out at me
detailing the world I actively live in
the one where
where my body is a ticking time bomb
and not a subplot for your novel

but as I rode with the windows rolled down

I still missed you
I hated myself
I wanted another whiskey
I wanted that reflection again
because at least


that would make this all
feel closer
This would all make a little more sense
and maybe I could forgive you
forgive myself
stop recreating each moment
like I was stuck in a perpetual hell
Because it had to have meant something
it shouldn't just sting.
*******.
Desmond the poet Sep 2017
by Desmond Makatu,

Your visits are unpredictable.
like a ghost, you're invisible.
The attacks are inevitable.
You come like a thief at night.
You seize me day and night.

"Epilepsy: an inevitable thief"

Cruelty unrestricted to age.
Victimising even toddlers.
Unrestricted to ethnic groups.
My life has time gaps.
Gaps, like discrete graphs.
Cracks depict thin line between life and death.
Grace bridges the gaps and life prevails over death.
Seizures still haunt me like a demonic wrath.

"Epilepsy: an inevitable thief"

Attacks are brief, bruises lasts forever.
You offer questions only God can answer.
Quest for answers is like probing for cure of Cancer.
Death seemed to be the answer but God thought otherwise.

First seizure shook like multiple earthquakes.
Followed by a pool of darkness.
woke up confused, crowd's ****** expressions said a thousand words.
Migraines raided my head, exposed to enormous pressure.
Officially baptised by wrath of seizures.

"Epilepsy: an inevitable thief"

You're a physical and psychological culprit.
Like a Yoyo, you take me into a roller-coaster of emotions.
Aftermaths of your theft are etched in my mind as if they’re on stones.
Behind my “poker face” lies devastating pains than physicals seen by the  crowd.

"Epilepsy: an inevitable thief"

Watch video on YouTube. https://youtu.be/VggXerYLOHY
Being epileptic for, I thought I should express how I feel about the condition.
Desmond the poet Sep 2017
Who are you?
Why are you leaving?
Where are you going?

I uttered these words during a seizure.
Imagining you puts my mind under pressure.
I quest for your identity like a hunt for treasure.
Am I haunted by a demon disguised as a seizure?

Seizure or not, I certainly spoke to you.
Begging you not to leave as if I knew you.
Still I ask: who are you?
Seized and captured by epilepsy, I couldn’t overtake you.

Overtake to see your face.
I woke up, you vanished without a trace.
In your next visit be bold and show your face.
A mysterious character within my seizures.

The next visit is unpredictable.
Seizures are inevitable.
Epileptic seizures, an obscure disability.
Like Epilepsy: will this mysterious image remain obscure?

A seizure lured me to a pond of muddles.
like a friend I pled against your departure.
Now I'm awake hence I plead for your departure.
Still I ask: who are you?.

https://www.facebook.com/EpilepsyandCpfriends/
Inspired by an epileptic seizure I had and within that seizure I spoke to a person pleading against his/her departure but didn't figure out who it was or if it was spiritual.
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