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Error 404: Higher brain function not found
We are sorry to inform you,
But the thought machine is out of order
Please, step back and remove your quarter.
We are taking your thoughts Tough Mudding
They must now swim through wet cement to reach your consciousness,
But fear not
There are legions of them 'Worming their way through your soft tissues
In between apathy and emotional volatility.
What's that?
You say you're going crazy?
Oh, my darling,
Nothing but a case of spontaneous dyslexia
Words and numbers were made to be in motion,
Slipping through your grasp and changing location
Just a spot of fun
It hurts to think
To exist is to be locked in a dance of exhaustive hyperactive misery
There is something wrong with my thoughts
Please, I do not want to listen to myself think
I am often told that love will leave me breathless,
But I hope I never know a love so greedy as to steal the air from my chest,
For I have memories of a time when my body was oxygen starved
And my lungs unable to draw in breath,
Bogged down under soupy pneumonia that clung to my innards
With vice-like, snotty grips.
My mind is sometimes lost in the sensation of frantically
Drawing air inward,
******* it into my chest with great gasps that never alleviated the burning of my lungs
Or the way pins and needles tingled down my limbs.
My brain cells were consumed with desire to force O2 to bind with the red blood cells churning in my veins.
The air surrounding me was dense with particles that refused to aid my survival,
No matter how much effort I exerted to the contrary.
Sweat dripped off my too thin form and pallid skin
As I drowned slowly from the inside out in a room full of doctors
Until they finally placed the tube back into my throat to breathe for me.
The pain receded as oxygen raced back into my cells,
And I marveled for a moment at the fact that I could not feel myself breathing,
Couldn't feel the rise or fall of my chest.
The mark of my vitality was absent,
And yet,
I was very much alive.
I remember what it was to be truly breathless,
The blind panic that seized me before finally giving way to a wish for death.
It's because of this I hope love never empties my lungs.
I want a love that makes breathing feel safe and exciting,
A love that feels so gloriously alive that I am acutely aware of my chest rising.
Love should always make breathing feel like both a right and a privilege.
It is a privilege to love her and be in her presence.
But I hope she never leaves me breathless.
I am being suffocated by pain
That demands to be felt
But refuses to acknowledge its origin or cause.
How do I tame a beast
Whose name I do not know?
This season always brings with it emotional turmoil,
The joys of daylight's manipulation of bipolar disorder,
But this creature that weighs down my chest
Has not uttered its name.
Like all demons,
It must be named to be exorcised,
And it will not be cowed by my speaking in tongues.
Back ye foul beast
From whence you came.
By hook or crook
I will learn your name.
Night falls like a heavy blanket
As the smell of rain wafts off the pavement,
Wheels of my father’s truck carrying us homeward.
The mountains stand like shadowed specters,
Black against a cloud covered sky,
Moon too shy to peak out from behind
The curtains of leftover moisture.
I hum a choked-up rendition of
Stairway to Heaven that plays across the radio waves.
Tonight, we are driving home from celebrating my grandmother’s
90th birthday.
My soul aches with the joy of sharing this occasion with her
And the sadness of watching as age catches her in life’s race.
I count my blessings that I have been gifted this moment,
For one never knows how many lie around the corner.
She is the most amazing person I’ve had the opportunity to meet.
If I could be granted the rest of my life be spent in her company,
It would still be too short.
Love reminds me that sometimes the best things in life
Are the ones that hurt the most to lose,
Yet I would not trade a moment’s loving her
For an ounce less pain.
It is worth it to love her so completely
For as long as time will let me.
Do not conflate mortality and morality.
You can die a sinner,
Or you can die a saint,
But we all die just the same.
Thinking about the notion that being "good" can save people. Feeling like it's better to strive to be moral for the sake of being moral and not because there's some promise at the end of the line. Death comes for us all eventually.
At 7 years old, I told my mother,
"You're not my real mom.
You're my Earth mom,
And at night when I'm asleep,
I go back to my home planet."
As the years sped onwards,
I conceptualized myself as a three headed alien,
A Poet From Another Planet,
Acutely aware of my innate differences.
No explanation had I other than being extraterrestrial.
Those around me, too, seemed to sense I was "other."
Playground insults supported by adults who floated labels like
"Lazy," "Difficult," "Rude," "Deliberately Obtuse"
Over my head as if they were a crown,
Signifying I was queen of kingdom "Unlike Us."
No one looked deeper at the poor social skills ,
The rigidity, sensory difficulties, challenges with executive dysfunction.
It was easier to pretend I was in control,
Choosing the route of difficulty and belittlement.
It was only after I nearly succeeded in killing myself
That someone assembled the whole picture.
My story is not unique among women
Born into bodies and brains whose operating system is Autism.
We are the forgotten, the alienated, and plastered with assumptions,
Lost under the blind eye of those who spin tall tales of
"Only straight, white little boys can possibly be autistic!"
Generations of autistic women have known not a name for their difference,
Bogged down under self-loathing, eating disorders, and suicides,
Anything to cope with a world designed to break them
For the differences everyone noticed but no one could see.
Now that women are finally coming onto the scene,
A subtle shift in the awareness that the clinicians, teachers, doctors
Were missing a whole population of autistic people,
Answers are gate kept behind assessments that are thousands of dollars
And diagnosticians who've yet to see the error of their ways.
Peace of mind seems to be a right only of white autistic men
Who are lucky enough to have the "profile" of autism modeled after them.
It took 19 years, two suicide attempts, including 10 days in a coma
For someone to finally "see me,"
And I'm one of the lucky ones.
Answers were finally mine,
But understanding one's own brain should be a human right.
I think we can all agree:
The price of a diagnosis should not be your life.
The neighbors seem so vivacious
As they mull about outside my window,
Sun kissing their skin.
The mothers cling to their children,
And sweat clings to the aching muscles of workers
As they bustle,
Hustling mattresses out of the house
And building supplies in.
We exchange cautious smiles
As I sit here in the staleness of my room,
The monotony of this routine.
They are so alive.
I wish I was too.
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