Be near me when my light is low,
  When the blood creeps, and the nerves *****
  And tingle; and the heart is sick,
And all the wheels of Being slow.

Be near me when the sensuous frame
  Is rack'd with pangs that conquer trust;
  And Time, a maniac scattering dust,
And Life, a Fury slinging flame.

Be near me when my faith is dry,
  And men the flies of latter spring,
  That lay their eggs, and sting and sing
And weave their petty cells and die.

Be near me when I fade away,
  To point the term of human strife,
  And on the low dark verge of life
The twilight of eternal day.

My name is Ashly (yes spelled without
the E)
I was born without a windpipe and was 3 months premature.
I underwent surgery for a tracheostomy and died on the operating table.
I was revived.
I was hooked up to many machines and my parents were told I wouldn’t live for more then 3 days...
If I would survive more then 3 days I would be hooked up to machines my whole life and be in a “vegetative state”
Doctors told my parents and family “I would never live to see my 18th birthday.”
I lived in the hospital for almost 2 years.
At age 2, I myself, ripped out my tracheostomy (which could have killed me)
My family rushed me to children’s hospital and the doctors decided to let the hole in my neck close and see what happens.
My doctors don’t know how I made it through the night or days after.
I went home after a couple weeks and that’s when I started living my life as a “normal” child.
All of my sisters were involved in dance classes, my parents( doctors didn’t agree) enrolled me in to classes.
        THATS WHERE MY LIFE CHANGED
Dance became my passion, along with gymnastics and musical theatre.
Something my family, doctors or even myself never thought I would EVER do.
On my 18th birthday it was a mixture of emotions.
I made a milestone that no one said I would ever see.
I competed in dance and gymnastics until I was 19 years of age as well as did over 60 musicals at my local theatre company.
I never thought I would ever have a boy love me because I had “too many problems” or even get married for that matter.
Fast forward, I am now almost 33 ( June .11th is my birthday)
Married for almost 8 years to my best friend.
Happy doesn’t even cover what I feel everyday waking up next to my love.
We may not have a “family” of our own but we are happy and in love over the moon with one another.

So why did I just ramble on with this?
Because I’m a MIRACLE and a SURVIVOR.
Even though I don’t remember much from my childhood and what I and my family had to endure, I have been fighter since my first breath.

I’M A SURVIVOR and I’VE MADE IT....

If I could love
the limping
ugly
afraid
part of me
That I drag through the mud
and thorns

If I could let
the transparent
clawing
screaming
silhouette speak
Instead of kicking it
into the basement

If I could put
my deepest human essence
onto paper
for everyone to see

Then.
Then, I could be free.

ＪＪｓｂｄｋｓｎｄｋｋｄｍｘｍｊｓｈＪｕｓｔｌｅｔｍｅｄｉｅｍｍｍｋｂｈｂｘｊｄｎｘｎｂｄｊｘｂｄｎｘｎｎｘｎｘｎＩｍｓｏｔｉｒｅ­ｄｏｆｔｈｉｓｎｓｊｓ ｎｋｋｓｂｄｎｄｎｂｄｔｈｅｓｅ ｔｅａｒｓ ｗｏｎｔｓｔｏｐｊｄｊｄｎｎ ｚｎｊｓｎｎｄｕｄｎｄｋｄｋｎｆｋｄｍｓｓｎｆｎｊｄｎｄｎｎｄｂｄｂｄｂｄｎＷｈｙｔｈｅｐａｉｎｓｔｉｌｌｌｉｖｅｓｉｎ ｍｙｈｅａｒｔｊｊｘｎｘｊｘｊｄｎ ｍｙｋｄｊｄｖｊｓｎｄｊｃｊｎｄｎｄｎｃｎｘｋｘｎｋｘｎｄｋｄｋｊｄｎｓｋｘｈｊｓｈｄｊｄｄｎｄｅＩｍｓｏｆｕｃｋｉｎｇｔｉｒｅｄ­ｍｓｎｎｄｋｓｎｘｏｎｓｈｘｉｄｎｋｘｎｄｊｓｊｄｂｊｄｋｓｌｍｓｎｄｊｊｄｂｄｉｓｂｄｊｊｄｋｓｎｄｊｄｈｂｓｎｄｎｎｄｊｄｊｄ­ｎｄｎｄ


Ｙｏｕｌｌｎｅｖｅｒｕｎｄｅｒｓｔａｎｄ ｍｅ

we slide through times
of nothing really
they’re delicate reminders –
i grew up learning cycles
with outlines hard to break

we vanish further –
unsurprising –
intentions fading footnotes
without the strength to leap
we’re shapeless
intermissions

the quiet ones for worse
caressed yet empty-handed
and waiting
with no end in sight

time
without
sunshine
means
dull
and
gray
landscape
gray
and
dull
means
sunshine
without
time