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Nat Lipstadt Oct 2014
taking in early October
Vitamin D naturally,^
another too-oft-writ pretense that
Queen Summer yet smiles upon this
erstwhile, part-time,
nerve bundled human...

though facts contradict,
in summer uniform
he still emerges to bay and chair,
his confessional, his holy temple,
his Houdini escape chamber,
though the temperature
will not top 60 Farenheit

duplicitous as long as I can,
in this simple and so many other
lifetime items far-less-than-trivial,
incapable of obeying my brain's map
orders to cease and desist,
(or dress appropriately at least,)
to see the entirety of oneself
in the broadest of spectrum,
all colors unvarnished, fulsome,
truths rawer than any fictional 3D horror film...

what you do not know,
what you shall now know,
is Samuel Barber's Adagio For Strings
plays once more,
this time the strings
pleadingly command that now,
this time I write
unobfuscated and obtrusive...

(Ah,
those thrusting O words,
so employable, making a face shape surprised
into a rounded, somewhat circuitous
O)


decline to describe the decline,
the angle, the steepness
to-be-determined,
not to be denied for the extremities advise
the battle internal has commenced,
and without a band of brothers,
a solitary, wandering, knight-poet errant,
in search of a battle not,
for the embattlements within are
under attack...

yes errant,
off course,
of course,
the errant bay breeze
speaks to me one more time,
chiding the me-child like a goodly parent,
firm but gentle, modulating tween
just cold enough to make me shiver,
but enough not,
no, to drive me inside...

not knowing, that my inside nature
presently rebellious, all manner of riotous
transmissions beseeching pain medication

foolishness all this temporizing diversionary tactics,
the commencement is the commencement,
the beginning signal fires an ending,
a landing on runways unknown,

fear is not present,
how could it be,
I was warned once and then repeatedly,
so the brain begins yet another remapping,
contours of misshapen sensory inputs
distorted and then the  breeze
over my shoulders reads these words, and
disappears to comfort me by
unopposing the sun vitals,
letting them enter unimpeded...

so
smile creases appear
across poet's tempest face,
for though his hands
splayed and warped,
the trigger fingers stuck
and cannot pull,
the nubs obey the eyes
and solace him,
for as he promised himself,
to himself,
those poetic nerves
will write on
long after all the physical ones,
with errant breezes,
and summer peace,
gone, gone, gone...



~~~~~~~~~~~~~~~~~~~~~
^*(Oh! how that word personal,
Naturally, naturally
doth haunt me,
for mine own nature be the
leader of mine enemies allied)
Oct 5, 2014
Violet Wade Jan 2013
My bones are shattered porcelains
And Dr Frankenstein is recreating
My body from the toes up

I have more screws than tarsals
More plates than fibulas
More scars than cracked paint on derelict homes

Greens, yellows, blues, blacks and purple
Dye my leg in splendid hues
Plaster decorates my toes and pokes under my knees

Pins and needles tingle constantly
But these are made of steel as well as
Peripheral neuropathy

My hospital discharge form
Reads like poetry
Displaced tibea

Goes on adventure and brings back
Swollen instead of souvenirs
And crushed ligaments as testament

To broken steps they have fallen on
Perhaps it is not as profound as sunsets or romance
But I am finding beauty in pain

Intricacies in injury
And the limits of my creativity
To distract from nightmares

Of how this happened
And to drown out the hungry goblins
Deep in my guts demanding opiates

Like drunken teenagers
They loot my stash and trash my viscera
Legal or not I'm still a ******

Writing poetry rather than sleeping-
Confronting demons with stanzas.
Over screams I am armed with the arsenals

Of metaphor, personification and symbolism
Whatever the pain, my posse of poetry and prose
Has always got my back
Sean Aug 2012
And I feel this sludge
running down the long halls of my legs
a flood of viscous petrol jelly
slick sewage sick
patrolling artery walls

this metallic slide
so much molten lava
running down the mountains
of my thighs.

I'm a concrete machine
getting my mortar fix
tin woman hollow heart
methyl folate ******

Give me another hit
buffer my pain.  
Already I have diesel fuel juice
leeching out my tissues
lightning striking the brain.

It's hard to get your attention
with this leavening
pooling the blood in my feet
It's hard to say hello with
acid cuddled words.
I want to raise my arms
and touch you
but I'm too toxic I'll burn you.

This nausea has become me
this metabolic crash is
my stop-gap.
Short circuit pain
this neuropathy has hardened me
in the space between these synapses
I dream of nothing.

Doped up by the yellow stuff
Daddy sprays from the plane
I was a farmer's daughter but
the doctor says
You've got the mutant gene,
for heavy metal toxicity.

Another serotonin addict
with brains of saccharine and plastic
I might get a pink ribbon for surviving
if they call it disease,
but silently, inside

I feel this sludge
sick sewage slick
battening down the reflexes
backing up the pipes.

my body is the future body
I say.
because this deadly brigade
is eating up the human chain.

There were Chernobyl defects,
and the media loves lepers with lesions
but a blistered stillborn baby
is no face for nuclear policy

but we --we're the unsung mutant breed--
there are billions of us
mentally sick lazy *****,  
hypochondriacs
of pre-existing conditions
can't find work
not even at Walmart
for disability aid--

But when you check out,
please donate.

Drop another baby
in the cancer cup.
Doug Potter Jan 2017
The man sleeping in the diner’s back booth
will not care  if your mother suffers  from
plantar diabetic neuropathy or that your
children read **** and steal *****.  

No,  trivial matters will be of no worry
to him because he ****** himself while
dormant and leaving  without  others
knowing will be of primary concern.
wordvango Nov 2014
Mabel is breathing....
    no one ever visits.
She has tended flowers and done laundry all
    life for others.
No one needs her.
    She has a bad knee and
Neuropathy , subsists now on pain medication and sugars.
    No one calls her.
She envisions one day getting flowers.
    Or hearing again from that gentleman, who
twenty years ago smiled.
    Or her children or grand young ens';
but no one writes her one letter.
     In the cold she wears all those sweaters she knitted.
So no  people remember her, I will!
    I visit and bring the flowers I grew specially
for her,
    the prettiest yellow roses,
while she lives!
wordvango Jan 2016
ode to Mabel

Mabel is breathing....
    no one ever visits.
She has tended flowers and done laundry all
    life for others.
No one needs her.
    She has a bad knee and
Neuropathy , subsists now on pain medication and sugars.
    No one calls her.
She envisions one day getting flowers.
    Or hearing again from that gentleman, who
twenty years ago smiled.
    Or her children or grand young ens';
but no one writes her one letter.
     In the cold she wears all those sweaters she knitted.
no one remembers her.  I will!
    I visit and bring the flowers I grew specially
for her,
    the prettiest yellow roses,
while she lives!
Richard Riddle Jun 2016
Chances are, you have to do a 'search', then order one on line. If you're under 60 years of age, you probably never heard of it, anyway.

Walking in to a pharmacy, or drug store, asking a young clerk, who is in their late teens, or early twenties, or even 40's to 50's, knowing very well what their reponse will be before you ask the question, becomes'comical', seeing the puzzled expression on their faces, especially when the companies web site indicates the store has it "in stock. A"simple little tool", inexpensive, but to some, of which I am one, 'priceless.'  It can relieve a huge amount of frustration in seconds, put a smile on your face, make your day "bright" again, saves time, can help prevent being late for appointments, and it has been around for centuries, long before the 'zipper' was invented. Approximately eight inches long, solid handle, with a curved wire tip, two and a quarter inches in length. I introduce you, to,"The Button Hook!", Tah-Dah!

This "simple little tool" is used by many who are afflicted with such maladies, as arthritis, or have neuropathy issues in their hands, making it difficult to button a shirt, pants, etc. Just insert the wire end through the buttonhole, loop it around the button, pull it through.
Some tools have a 'hook' on the opposite end of the handle, to help pull shoelaces through the eyelets.

I realize this is not a poem, but there are many on the site in my age range that may have similar issues, or perhaps physical issues due to injury or illness. Just wanted to pass this on to you.(I posted a photo on my Facebook timeline.)

richard riddle 06-06-2016
Chandy Apr 2022
Sociopathy
Psychopathy
A thin line
Divides the two
To find the one
Ask them both:
Who would like to be part of history?
Kurt Philip Behm Nov 2018
I walked with Colby,
  he never walked with me

His spirit to guide us,
  his love in the lead

We circled the globe
  a time and a half

His tail was my compass
  to guide us steadfast

In all kinds of weather
  we stuck to the trail

Under sunshine and rain
  our forays prevailed

In May of last year
  he collapsed on our walk

And with valor he tried
  but his body would balk

Its been downhill since then
  with him not knowing why

The knowing inside me
  his neuropathy slide

I knew it was coming
  as he struggled to stay

And he fought till the end
  on this very sad day

As I looked in his eyes
  for the last final time

Willing to give up my life
  for his health to revive

The fates were against us
  his clock had run out

The pain in his parting
  —the joy I’m without

(Villanova Pennsylvania: November 9th, 2018)
‘Today, I lost The Best Friend I Ever Had’
Abilifuck

My soul was set inflamed
pinched nerves i thought i was dreaming
i took the neuropathy less travelled
this turned out to be bad
bipolar affective disorder BAD

But now (thanks doc)
I have the Abilify to do anything I want
I've made a Paxil to myself
to be as sane as I can be
Work in progress
You're not alone when the police are beating the **** out of you. They can never take that from us: our commonality, our soul connection, the fact that we're both in love with me. And then you called me bad names and stuck a pin through the back of a voodoo doll of me, and then you had a cigarette, and then you suffered a pain from where the horse made contact with your floppy lips south of Lima, Peru...This morning I awoke to wrens singing and boy, did I opine: "What a perfect morning this would be if only I had a box of wren poison strychnine." Oh, there you are...lonely, in a horse-renting mood ...and we'll shave nothing and tattoo nowhere...I'll bring Thuy and we'll have a big party with rice & fish heads! And Thuy will look around for others who look like her and she'll not find them and I'll take her hand and explain that Breanna is sad because she's from Hollywood. My back is getting better. We can go riding soon... maybe even on horses...
Vincent Singer Jul 2018
With the proceedings completed,
What remained was recollecting:

1, A Vigil

Where the mourners aligned themselves to weep or stare
Into the casket, amazed by the skills of the mortician,

“She looks at peace,” they said to us, calmly brushing her cool
Head before walking back to their seat, thinking about when they



Last saw our mom alive, something her
Friend Rhonda remembered vividly,

Barley able to walk from the diabetic neuropathy, Rhonda worked her way
Over to the couch where my sister and I sat, leaning heavy on her right
Crutch to outstretch her left hand:

“If I close my eyes, I can still see Kitty thumbing the tab of her Coke can at my dining table.
We were going back and forth about our New Years plans. She was a good woman, your mother, and a great friend to me. She will be missed by so many. I’m sorry.”

She was sweating and had swollen eyes, we smiled and
Nodded and squeezed her hand back, we said thank you and
Took the first opportunity to run downstairs,

Sarah McLachlan’s version of “In the Arms Of An Angel” played as
Theme music to the eulogies. One given by our dad, who reminded
Everyone that our mom worked nights at the hospital. He said by his
Count, she had probably held over 10,000 babies before she was sick,
10,002 if you included my sister and me. The thought lingered,
The silence persisted, and the song played again,

Now the background to a tribute given by our mother’s parents, who remembered
Raising a daughter that bought a motorcycle and decided to visit
Them on it as often as she could, no matter how much they disapproved, she was
A rebel but they loved her, they said they had six babies go to God
Before she came into the world, in the arms of an angel was the chorus of the song,
And they believed this is where their daughter was now,

In the parlor basement I overheard these snippets in between
The fizzy sounds of Coca-Cola being poured into my cup,

2, A Funeral

Everyone together in mass, listening to
“On Eagle’s Wings,” sung by the choir,

Everyone smelling the Holy Smoke being wafted
By the priest as he approaches the casket, now
Positioned below the altar and colored by the
Dappled light of the sun piercing through
The stained glass,

In sermon he says to double-down on worship, and rejoice
That Kathryn will soon be in the halls of Heaven, a sorrowful
Blessing, a product of the paschal mystery,

“It was her time,” he said,

Everyone prayed the Apostles’ Creed and the priest
Asked for us to focus on the part about ascendance
And everlasting life, how we will see her again when

It’s “our” time,

I focused on the part about descending into hell and
A three-day resurrection, I wondered if there was
Any way my mom could be stuck in purgatory,

Leaving me without her in that other world,

With my family and I in the center pews, we were
Surrounded by stares, everyone consoling from their
Various positions in the church, friends I played
Recess football with were now looking up at their
Parents crying for us,

Instead of meeting their eyes, I gazed straightaway at
The six-foot crucifix looming above my mother,
Sullen and skinny, pale and bleeding,

I wondered if it had ever fallen from its place,
And if so, whose job is it to remount our savior?

As the pallbearers lifted mom from below the
Altar and headed toward the door, my dad noticed
Me crying and said to not wipe the snot on my sleeve,
So I sniffed it up and proceed to leave with the congregation.

3, A Burial

In a five-car procession, all my family drove
From our house to the cemetery after a breakfast
Of sliced and sugared grapefruit, in memoriam  
Of her favorite way to start the morning,

Her casket was already on the lowering device
When we arrived, the wind was strong, pulling
The grass in between the headstones from left
To right,

I decided to wander around the
Other plots, spelling out the names
Of the dead and feeling in awe about
The fact that I’m standing over someone
That was buried in the 1910s,
I started to hear the bagpipes play “Amazing Grace”
When over my left shoulder I noticed my dad calling me
To throw a fistful of dirt as the grinding gears brought her
Casket down.
CJ Sutherland Dec 2023
Do we Ask The Silence Questions?

What is an acceptable quality of life?
Birth Defects;
Conjoined twins
Cerebral palsy
Down syndrome
Blind, Deft
Cleft palate
Childhood Cancer

At what point do we ask?
Are we Humans playing god?
Test tube baby acceptable
Just because we can
does it mean we should?

We are looking for the answers!

We need to see our way clear
Corrective lenses, Glasses
Cataract surgery
Retinal detachment,
Blind

Listening for hard truth, what will we find?

Hearing aids
Ringing in your ears
Deft

People speaking without hearing a sound


At what point do we ask?
What constitutes Contributing to life?

When is a person a Burden to society?

When limited Movement is painful;We Stop
Arthritis
Tingling, Numbness
Neuropathy
Degenerative disc disease
Fused vertebrae surgery
Paralyzed from the neck down
Bedridden

We Elect Surgery to regain mobility

Our desire for a better quality of life

Carpal Tunnel Syndrome
Total Knee Replacements
Hip Replacements
Physical Therapy
Walkers, wheelchairs, braces,

Losing Control, Fighting for your life!

Alzheimer’s
Schizophrenic
Bipolar
INSANE
At what point do we ask?

Who determines when a person is
Unable to comprehend life?

CANCER The “C Word “

At what point do we ask?
When the pain is unbearable?
Hang on, orLet Go!
Chemo therapy
Body rejecting medication
Breast Cancer, cervical cancer
Reconstructive augmentation

Allergies, coughing, asthma, COPD
Oxygen therapy  
Ventilator assisted breathing

At what point do we ask?
When Health Situations Demands Actions !

Taking stock Emotionally
Get your Affairs in order

Heart Attack
Pace maker, regulator, stent
Dialysis
Kidney failure
Kidney transplant
***** transplant
Metal plate in your head
Artificial limbs

At what point do we ask?
When do you pull the plug?
Coma
Brain dead
life support
Resuscitate
DNR do not resuscitate

At what point Do we ask
Are we NO LONGER  HUMAN
Are we creating A new species?

Where in your body does your Soul reside?

At what point do we ask?
When is this action acceptable?
Assisted suicide, Dr. Kevorkian
Hospice care is not life Care
Giving Up, Choosing to Die

At what point do we ask?
Is this acceptable?
  Even if we were healthy our entire life, the world is stacked against us!
Breathing, eating ingesting poison!

GMO, Genetically modified food
What are they doing to our body?
Chlorine 200+ chemicals in our water
Poisonous gases chemicals (chem) trails
at what point do we ask?
WHY?
Dr’s treat the symptoms But
Rarely look for The medical condition
Etiology unknown
Pill's that ****, ineffective treatment
The side affects are worse than the cure
Untested not approved Shots
Fake plan-demic Human  ginny pigs

At what point do we ask?
Will we ever know the long term effects.
The damage done To our bodies
Human experiments Without our Consent full understanding ,knowledge
Are Eugenic at play.?

We engage in conversations considering
the best possible solutions
However
There are Definitely more
Questions then answers!

At What Point Do we ask?
Where do we go from here?
Charcot–Marie–Tooth disease
Other names Charcot–Marie–Tooth neuropathy, peroneal muscular atrophy, Dejerine-Sottas syndrome

The foot of a person with Charcot–Marie–Tooth disease: The lack of muscle, a high arch, and claw toes are signs of this genetic disease.
Pronunciation
[ʃaʁko maʁi tuːθ]
Specialty Neurology, podiatry, orthopedics, physical medicine and rehabilitation
Symptoms Foot drop, hammertoe, peripheral muscle wasting of lower legs and lower arm/hands
Usual onset Childhood – early adulthood
Duration Lifelong
Causes Family history (genetics)
Risk factors Family history (genetics), high-arched feet, flat-arched feet
Diagnostic method Genetic testing, nerve conduction study or electromyogram (EMG)
Differential diagnosis Muscular dystrophy
Treatment Management to maintain function
Prognosis Progressive
Frequency Prevalence: 1 in 2,500[1][2]
Charcot–Marie–Tooth disease (CMT) is a hereditary motor and sensory neuropathy of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. This disease is the most commonly inherited neurological disorder, affecting about one in 2,500 people.[3][4] It is named after those who classically described it: the Frenchman Jean-Martin Charcot (1825–1893), his pupil Pierre Marie (1853–1940),[5] and the Briton Howard Henry Tooth (1856–1925).[6][7]

There is no known cure. Care focuses on maintaining function. CMT was previously classified as a subtype of muscular dystrophy.[3]

Signs and symptoms
Symptoms of CMT usually begin in early childhood or early adulthood but can begin later. Some people do not experience symptoms until their early 30s or 40s. Usually, the initial symptom is foot drop or high arches early in the course of the disease. This can be accompanied by hammertoe, where the toes are always curled. Wasting atrophy of muscle tissue of the lower parts of the legs may give rise to a "stork leg" or "inverted champagne bottle" appearance. Weakness in the hands and forearms occurs in many people as the disease progresses.[8]

High-arched feet (pes cavus) or flat-arched feet (pes planus) are classically associated with the disorder.[9] Loss of touch sensation in the feet, ankles, and legs as well as in the hands, wrists, and arms occurs with various types of the disease. Early- and late-onset forms occur with 'on and off' painful spasmodic muscular contractions that can be disabling when the disease activates. Sensory and proprioceptive nerves in the hands and feet are often damaged, while unmyelinated pain nerves are left intact. Overuse of an affected hand or limb can activate symptoms including numbness, spasm, and painful cramping.[8]

Symptoms and progression of the disease can vary. Involuntary grinding of teeth and squinting are prevalent and often go unnoticed by the person affected. Breathing can be affected in some, as can hearing, vision, and neck and shoulder muscles. Scoliosis is common, causing hunching and loss of height. Hip sockets can be malformed. Gastrointestinal problems can be part of CMT,[10][11] as can difficulty chewing, swallowing, and speaking (due to atrophy of vocal cords).[12] A tremor can develop as muscles waste. Pregnancy has been known to exacerbate CMT, as well as severe emotional stress. Patients with CMT must avoid periods of prolonged immobility such as when recovering from a secondary injury, as prolonged periods of limited mobility can drastically accelerate symptoms of CMT.[13]

Pain due to postural changes, skeletal deformations, muscle fatigue, and cramping is fairly common in people with CMT. It can be mitigated or treated by physical therapies, surgeries, and corrective or assistive devices. Analgesic medications may also be needed if other therapies do not provide relief from pain.[14] Neuropathic pain is often a symptom of CMT, though, like other symptoms of CMT, its presence and severity vary from case to case. For some people, pain can be significant to severe and interfere with daily life activities. However, pain is not experienced by all people with CMT. When neuropathic pain is present as a symptom of CMT, it is comparable to that seen in other peripheral neuropathies, as well as postherpetic neuralgia and complex regional pain syndrome, among other diseases.[15]

Atypical presentations of CMT can also lead to leg muscles, specifically the calves, enlarging.[16] This hypertrophic type of CMT is not caused by the muscles enlarging directly, but by pseudohypertrophy of the legs as fatty tissue enters the leg muscles.[17][18][19]

Causes

Chromosome 17
Charcot–Marie–Tooth disease is caused by genetic mutations that cause defects in neuronal proteins. Nerve signals are conducted by an axon with a myelin sheath wrapped around it. Most mutations in CMT affect the myelin sheath, but some affect the axon.[20]
Eshwara Prasad Jun 2020
Retinopathy
Neuropathy
Nephropathy
Myopathy
Cardiopathy

Unworthy­.

Trustworthy
Creditworthy
Sympathy
Thankworthy
Noteworthy

Prai­seworthy.
Sometimes Starr Apr 2018
I can't get the sun to rise,
I know, but it doesn't.
Because the same man sits in the same chair
And surmises that he's wise.

We are all enveloped by ignorance
Gilded with everlasting omniscience
So you know I'm the eternal poet-softie
Whom the reader knows is stronger and smarter than he seems, the defendant Valjean if you please

Police officers stand with their hands at their belts,
Proud and wrong.

Lawyers bob and weave through crowds,
Like sketchy guys at parties,
Making chemical connections.

Vendettas are had and crime is clad
In the full disguise of law

And the arrogant judge holds his holy opinion
high as hell

So my head hangs low and alone
It makes my blueish mind wander
Into fantasy worlds of others shouldering the weight
And our backs are at right angles to each other
In the fourth dimension, let it be.

And yet it seems we're one being suffering together for no reason at all,
(And I can hardly say I'm suffering,
But it is a kind of suffering)
And in me the sun does not rise
It flounders about in neuropathy
Even ordered motion is flailing about
All is skewed and null is king,
My Mother even said so.

— The End —