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L  Nov 2013
scoliosis
L Nov 2013
I didn't ask to be this way.
this curved.
this deformed.
this insecure.

but I like to believe You made me this way for a reason.
maybe to tell my story to others.
maybe to give others the strength to have surgery.
maybe to let others know that two metal rods in your back is normal for someone with scoliosis.

but maybe
there isn't a reason
at all.
Dorothy A Dec 2011
A rose in the middle of December is what I saw outside. Instantly, I connected this odd occurrence with my life. The thought hit my thoughts like a ton of bricks. That is what I am, I had thought to myself. That describes me.

As I looked out my living room window on a sunny, but freezing, Saturday afternoon, I was surprised to see this solitary rose that had bloomed on my mini rose plant.  Providing me with a few salmon colored roses each season of its bloom, without fail this plant regrows again and again in my garden. I first planted it there since forever ago, or so it seems.

Usually, such a flowering occurrence should be no big deal, nothing major or out of the ordinary. Certainly, I would not find this as something really noteworthy to write about. Rose plants do that kind of thing all the time.

But it was frigid cold outside, and the middle of December.

What a strange, yet amazing thing to behold! Maybe there is a proper explanation for it, but I don’t care. The petals were just as colorful as ever when really they should have wilted awy from the cold. All the other flowering plants in my garden surely did! It didn’t really make sense, but its presence was pretty awesome.

I eagerly went to find my camera to take a picture of my sweet, little rose. The grass was dotted with tiny patches of snow to show that-yes indeed-winter is really only days away from its official entrance. Plant activity and growth really should be over. Isn’t that right? I know we have had some warmer days during the previous month, but the icy cold seemed to have come to stay for a while. It surely defies logic to think of blooming flowers on such days.

I often look for “God moments”, as I call them, in which God gives me something to hold onto that reveals His love to me. Not looking for anything earth shattering, I see often see God in the little things, in the details of life. And I don’t even always look for such things, for sometimes I doubt God really cares or really is that effective in my life. You see, that is not uncommon for someone who deals with chronic depression. I learned early on in life that nobody is there for you, not really. I know Christians aren’t supposed to feel this way, but if I can be bold to be honest, I am. Often, I just think I’ll get by on my own. If I can’t get by on my own, I often try to put up with it instead of turning to God for help.  But lately I was feeling desperate.

Suffering with depression all of my life, and with managable anxiety, the thought of the approaching Christmas had been especially difficult for me. I know that people are “supposed to” feel uplifted with the holiday, but I was not. To reveal this is a source of shame to me, and I have learned to mask such uneasy feelings, trying to fake it for the sake of showing the world that I really am OK inside. It is like I expect everyone to look at me and say, “What’s the matter with you, loser!”

I knew I could find two things that would appeal to me—Christmas music and lights. Yet the music that I often love could not do it for me. The lovely Christmas lights, shining in the dark of night, didn’t matter either. I was feeling dejected, and I was growing weary with life—again. When not obligated to go anywhere, I felt like hiding from the world, feeling safer from anxious thoughts by myself. And as safe as I tried to feel in my comfort zone, this was frightening to me. This did not feel like living to me.

Is this how I am going to live out the rest of my pitiful life? This was one of my kinder thoughts.

I usually get through Christmas OK, making the best of it, but my losses often feel bigger than my blessings. In 1998, I lost an estranged brother to suicide. In 2005, I lost a father to Alzheimer’s, a few weeks after Christmas. In 2007, my mother had to spend Christmas in a nursing home recovering from major surgery. That year, I struggled through that season with very hopeless feelings, for my mother was in jeopardy of never walking again. She spent almost half a year in that place—a woman with sever scoliosis, and chronic back pain, who cannot stand for very long. In my hopelessness, I seem to forget the miracles in my life, for my mom’s return home seems like one to me.

I also see my father’s experience and death from Alzheimer’s as something far more than a tragedy. For many years, I avoided my father, wanting really nothing to do with him. Grudges surely seem larger than life over time, and although I wanted to forgive my father and seek reconciliation, fear often stood in the way. Even though my dad grew remorseful for how he raised his children, it took my brother’s suicide for me to find forgiveness for a man I thought never supported me or believed in me. For over two years, while my dad was ill and dying, the bond between us grew into something special. I know from personal experience that even in the difficult times, there are larger purposes involved.
  
No doubt, I have been provided with some huge challenges in life. Thankfully, I always pulled through when I surely felt that I would crumble into pieces. I clung to my faith in God, even when that faith felt like dying embers in a fire, for it seemed to be all that I had. Nothing else worked. Nothing else satisfied for very long. And when it did last, I wanted more and more, like a drug addict looking for his next fix.  

I have often been plagued with self doubt. What is my purpose in this life? Why am I here? I knew I was not alone in this thinking, reminding myself that I am not the most unique person in my suffering. So I searched the internet, a convenient source to turn to when you can’t seem to face people, and the world.  

Not wanting to live or value your own life is a horrible state of mind that I would not wish on anybody. I have relied on a depression medication since my brother died, and still do, but there had to be something more to help me. Deep down inside, I did not want to die, but I didn’t know how to live either. The heart of the matter was that in my worst bouts of depression, I was just so broken inside. I survived enough to go through the motions, but I felt like I was losing the battle—and really did not want to win the war anyhow.

I still remember the “God moment” I had when I was in London, England in August of 2011. At that time, life felt like an adventure as I went on my very first overseas trip to Europe. I have yearned to go to Europe since childhood. It was a Sunday morning in London, and a religious program was on. From what one man was saying on TV about his experiences, my ears perked up and I hurriedly scribbled some things down on a pad of my hotel paper before I forget some of his statements that stood out to me.

During my short stay in London, I was experiencing a cold. I wanted to feel Gods presence as I felt the swallowed up feeling of being a stranger in a faraway place. As intruiged as I was,  in the huge, bustling metropolis, I admit I was feeling a bit overwhelmed. I find big cities as places in which people pass others with no concern other than to go about their way. London was fascinating, but I am a suburbanite, for sure!

The things this man was saying on TV really impacted me at the time, and I now carry that scrap of paper around with me in my wallet. Little did I know that a few months later that these statements would help to pull me through from reaching into despair. That despair began a few months after that trip when I was quite sick with the flu, twice in a row, and feeling very isolated and weary.

Sometimes, we have to get into that place where all there is is God.

It is not that I did not believe in God. I did not think God believed in me.

Sometimes, we grow best in hard times.  

All my crooked crutches and phony props, as I call them, weren’t working. If the computer wasn’t taking up much of my free time, television was numbing my senses from the stark reality that life felt empty for me. Where was God? Logically, I knew I had no reason to be bitter, for I knew the answer. I felt so far away from Him, helpless and hopeless—yet I clung to this hope—God never moved at all. I was the one who walked away, but like the prodigal son in the Bible, God would be waiting there for me with a joyful expectation. I truly believe that even though I often wonder how God puts up with me.

It has been a long time—if ever—that I fully trusted in God alone. Yes, I believed in Him, and trusted in Jesus as my savior, but I often held back. I was still so angry and hurt about the past. Why didn’t God rescue me from such a horrible childhood? Why was I bullied in school? Why didn’t I have a better family? Why did loneliness and insecurity plague me as it did? Why wasn’t I beautiful? Why didn’t I have a better life? Why this and why that. Even though I logically knew better, in my hurt and wounded soul, life felt like a big, horrible mistake. God must have not cared about me. I may not have consciously acknowledged it, but my actions proved otherwise.

We live in a world where you got to be stronger, you got to be better; you got to be tougher; you got to be faster; you got to be more successful. The media pounds this into our brains all the time in many different forms. How many of us feel like we can never measure up? I am sure I am not alone in feeling the inadequacy. Yet I could not concentrate on anyone else’s pain when I was so wrapped up in my own.

A rose in the middle of December—I put it all into proper perspective. What a fragile looking thing, but an enduring one! It symbolizes to me the invincible, indelible human soul in the midst of an often perplexing world. When all around seems bleak, when life takes a toll on you, that remains unscathed, untouched by the trails we often have to face.  When we die, I wholeheartedly believe, it will be the only true thing that remains of us. When our bodies decay into dust, our souls will be like that rose, brilliant and beautiful.    

Besides myself, there are two groups of people, near and dear to my heart, which I could compare to that symbolic rose in my garden. My current job is working with special needs students, usually with autistic children and young adults. I worked 19 years in a bland office job, and could not ignore the constant nagging feeling to get the courage and desire up to do something more fulfilling with my life. With fearful, but bold determination I thought: It’s now or never.  Maybe it was not the wisest thing, but it felt so freeing to say to my boss, “I think I quit”, without another job to back me up. I basked in the encouraging applause of many co-workers who wished they had the guts to do the same, but soon the panic set in.

What do I do now? What can I do now?

Never working with children before, I felt a call to work with them, and I absolutely have a greater sense of purpose. Many of these children cannot talk. Many of them cannot walk. Many of them accept people just as they are, for I believe they want the same in return. Their lives teach me what really is important in life—and that is compassion.

Other than children, I also love the elderly, sensing their desperate need for love and compassion. Forcing myself to get my mind off my own troubles, I heeded my pastor’s call to not simply “go to church” but to “be the church”. I knew I had talents. I knew could open my mouth and carry a tune. From what I went through in my life, I knew I had the compassion. After all, I dealt with my dying father in a nursing home. With a nursing home ministry in my church, and a nursing home right across the street, it was obvious—there are others out there that need hope and they need love. So what was my excuse?

In this world that expects you to be stronger, better, tougher, faster or more successful, there are those that live in the world that they don’t fit any of these categories. But yet they are here. They exist. Can they be ignored? The answer is surely, yes, and they often are.  Perhaps, the world is uncomfortable with them, does not know what to do with them. They don’t fit into the false demands for perfection. They don’t fit into push and shove to get ahead of everyone else, but they remind us, sometimes to the point of discomfort, how fragile the human condition often is.  

Lately, I have had such a hunger that food cannot satisfy. I yearned for a peace, one that only God can provide me with. I found two uplifting stories on the internet of people who struggle on and whose lives defy the idea of a perfect world. One of them was about an Australian man, Nick Vujicic, who was born without arms and legs. He was picked on at school because he was perceived as a freak, as someone who did not seem to have any real chance at living a normal life. And he was angry that he did not look like, or function like, most everyone else. At about the age of eight he wanted to end it all, thinking he had no purpose in life. He eventually gave his life to Christ, and now lives a full life, reaching out to others with his incredible story of hope and perseverance.

Another woman, Joni Eareckson Tada, continues to amaze me. She is a quadriplegic from a diving accident gone horribly wrong. Her story touches many people with her hopeful attitude and her amazing faith in Christ. She, too, wanted to die when she thought her life had no more meaning. Recently, she has even fought breast cancer and chronic pain that has added to her decades of struggles with immobility.  She touches so many lives with her honesty about her suffering, giving people hope in times that seem hopeless.            

I wanted what these two people had. No, I did not want their afflictions, but I wanted to be able to reach out to others and touch their hearts, as well.  I wanted that faith, desperately, a faith that will not back down in the face of fear, in serious doubts, deep sadness, and pain. These people had little choice but to turn to God. The alternative was utter bleakness, a lack of purpose, and a slow death. But they defied the odds and etched a life out of faith, helping countless others to endure their struggles and to find meaning in life. There were plenty of times when I did not pray to reach out to a God that I gave my heart to many years ago. I bought into the belief that God was as inadequate and ineffective as I was feeling.    

Sometimes, we have to get into that place where all there is is God.

It is not that I did not believe in God. I did not think God believed in me.

Sometimes, we grow best in hard times.  

With plenty of tears, I cried out to God. It was a gut wrenching cry of someone with nothing to give but a broken heart. I wanted that kind of faith, and I meant that with every fiber of my being. Deep inside, my faith wasn’t gone. It never really left me, but only God had the ability to grow it, to prosper it, and to produce “life” back into my life. The battles might have felt overwhelming, at times, but I have always been a survivor. In spite of heartaches, and from what they actually teach me, I can be an encourager to others. Instead of just wanting to make everything go away, I can look forward to new chapters in my life.  

I know there will still be times when I will struggle to want to face another day, yet with my faith in God, I can.

So a rose growing outside may be not a big deal. Writers and poets have seemingly exhausted the topic, hailing it the most precious of flowers, the most perplex, with such lovely fragility, yet sheltered by stinging thorns. My inspiration to write on the same subject may not be unique, but as a rose blooms, and its glorious petals unfold, so does my story. I admit I hesitated to finish writing this, not sure I wanted to expose these things about my life. It takes a lot of guts to admit how imperfect you are in a world that seems to shun or poke fun at such things. But if I can encourage even one person, who has similar struggles, I will gladly try to be an encouragement.    

For almost a week now, existing in a stark contrast of its surroundings, that little rose remains, cold winter weather and all. Every day since, for about a week now, I continue look for it outside and find it going against the grain.  All the other flowers in my dormant garden are long gone. It will be gone eventually, but I am still enjoying my “God
Lydia  Jan 2018
Scoliosis
Lydia Jan 2018
I treated my skin like a goddess
Legs shaved, hands moisturized,
Any spot of acne scrubbed away and covered over with pale sheets
But I hid from my spine, like a snake always a few inches behind me, waiting to strike
This skin there was a poorly applied veneer,
Exaggerating the flaws it was meant to hide
The snake is in constant motion, waving an S up the core of my being,
Displaying my instability
It's curved, like the ridges of the Grand Canyon
Only more unnatural,
Un beautiful,
More like a line you tried to draw straight
Only when it wavered just a little too much, you threw it away and started over
I cannot start over
My snake drags venom along its body, instead of drooling it into a bite
And he is always biting,
So the skin on my back has never been touched
Never been pampered, or savored.
There is no "positive message" to this one but it is not meant to be a downer by any means . Everyone has their own insecurities and challenges. I'm super tall so when I  was little I grew too fast and my body didn't quite compensate. I have problems with many other joints too but I'm actually a runner and a swimmer.  Please comment :)
Lexi Hailstone Jun 2014
I'm bent, not broken,
Hear the words that are spoken.
There is this pain I go threw,
If only someone knew.
From my back to my hips,
I feel like i  may trip.
Some one catch me...
One..Two..Three..
I'm gone ..I'm gone
Now you'll move on..
JB Claywell Oct 2016
Ol’ Long and Tall sits
uncomfortably in the
seat next to mine.

It is obvious that his
back is bothering him
this morning.

‘Hey, dad…”

This is how it always starts.
Anytime he wants to talk,
he opens with this salvo.

I think it’s like using a turn signal
when changing lanes or something,
and who really knows what lane my boy
is in as he hurtles down his own highway?

It’s not that I don’t know him,
or care what’s on his mind, not
at all.

We’re both thinkers,
Alex and I, it’s just that
he gets a little bit tangled up
now and then, and just goes blank,
but never dull.

I think “Hey, dad…” offers a bit of a reset;
just a moment’s pause for organization,
such as it is in Alex’s case.

“Hey dad…” he starts.
“Did you know…?”

He goes on to tell me
some facts, which I forget
now,
about Hawaii.

Soon, that folder is empty
so he begins telling me tidbits
about the migratory process
of monarch butterflies.

“Where did you learn this stuff?”
I ask.

“At school.”
“On the internet.”
he states.


“Good.”
“That’s good.”
I assure him.

“There’s more to the internet
than You Tube and Minecraft;
and you found it.  I’m glad”

“Yup.” he says and grins his squinty grin
at me.

I nod and keep driving,
it is a school day and we’re on
the highway.

No radio this morning,
just talk.

I wait.
5 seconds
10 seconds
15 seconds

“Hey dad…”

*
-JBClaywell
©P&ZPublications; 2016
*for Alexander Jacob
Sam Hain Oct 2015
With curvy spines grow all the trees,
    As though they passed round scoliosis
Like people pass a cold and sneeze,
    Or swine-flu, or tuberculosis.  

O.O
Trinity O Apr 2012
I am your denial, your Lent fast
The mania in your DNA,
the way the helix twists around itself.

I am the finger-shaped bruises on the inside
soft of the thigh, the color of ripe plums
that you can’t stop pressing

because it hurts just right—
like us, the way we crack our knuckles.

The scoliosis question mark,
bent spoon of your spine like
Scandinavian silverware, its unfunctioning beauty.  

The snow of a thousand dandelions gone to seed.

The sugar sacks of fat around my body
that I love to touch and hate to see.

I am the thrift store of your desires,
a polyester pantsuit resold.
The starch of morning arthritis.

The dark under your nails
that isn’t really dirt.

The yellow smoke smell in a jacket.
A mango eaten off the pit,
stringy mango veins that stay in your teeth.

A washing machine that doesn’t drain.

A man cursing in his native language,
foreign words that don’t translate.
Eryca  Feb 2019
Scoliosis Spine
Eryca Feb 2019
I once had a twisted spine,
But my curved back is now aligned.
With bolted screws and titanium rods,
I was lucky enough to beat the odds.
I went through not 1, but 2 surgeries.
At the best hospital in the world Children's Mercy.
I couldn't have imagined what I would have done,
If I didn't go to your hospital which I say is #1.
For what they do for kids like me,
Who have a curve of 44 degrees.
Thank you,
because my back wouldn't even have 1 *****.
They told me your a survivor Ms. Zaiser.
I said I wouldn't have been if it wasn't for people like you doing things that most people wouldn't even do out of the blue.
Words can't describe how lucky am I
Even though the pain was so bad I had tears in my eyes as I cried.
Asking why can't I just say goodbye and die!

But on June 9th, 2013 is when my recovery was finally over,
I knew I would never again have uneven shoulders.
Written and published in “Creative Communications: A Collection of Poets” in 2013.
Seeker  Nov 2017
This Is Us
Seeker Nov 2017
Attention Deficit Hyperactivity Disorder
Anemia
Thyroid
Lordosis
Scoliosis
Diabetes
Asthma
Depres­sion
Anxiety
Post Traumatic Stress Disorder

This is my brain
This is my iron
This is my back
This is my pancreas
This is my lungs
This is my mind
This is my experience
This is my health
This is me

Not having perfect health
Is nothing to be ashamed of
It is something to be proud of
Look, I have so much going on
And I am still here
Standing tall
Taking life day by day
Getting through school
And work
While dealing with all of this

No one has perfect health
And if they do,
They are lying

Life was not meant to be easy
Life was not meant to be a breeze
Life was not meant to be clear
Or make sense
We may question life
We may question a higher power
We may even question ourselves
But
Just keep pushing
Because I believe anyone can get through anything
When the
Proper health
Is provided

I am not a doctor
I am a student
Who is young
And has her whole life ahead of her
IF she remains healthy
I am not educated on the human body and its functions
But I know
From experience
That hardships come
And that effects you
Physically
And emotionally
I am not a doctor
But I am here
And I am spreading my word
And offering my shoulder
To those who want or need it

This is me
This is my health
This is my experience
This is my mind
This is my lungs
This is my pancreas
This is my back
This is my iron
This is my brain

Post Traumatic Stress Disorder
Anxiety
Depression
Asthma
Diabetes
Scoliosis
Lordosis
Th­yroid
Anemia
Attention Deficit Hyperactivity Disorder

This is me
This is us
brooke Jul 2014
let's be honest
sometimes I turn
towards the wall at
night and close my
eyes, I can see your
hairline, a fracture
of scoliosis in your
curved spine, I can
almost trace
the bumps of
your vertebrae
through that
thin cotton
sweater

let's be honest

you start to turn over
before I lose you in the
geometric dark, sometimes
our eyes play tricks on us and
we see colors, well, sometimes
mine play jokes and I see you.
(c) Brooke Otto 2014


inspired by this poem: http://hellopoetry.com/poem/765878/boy-meets-world/
Jedd Ong Nov 2014
God
Might move the deadline
For our Chinese script
But I'm still mad at him
For keeping me up
At the grand hour of 11

In the evening graphing
Over (and over)
Again business charts that
Have crooked smiles almost
As blank and bleak

As their returns on investment.

And speaking of which,
This extra eighty grand I spent
At this school, ogling at textbooks I could
Never work up the courage to read,
Is finally starting to break my back.

Weakly, I'll tell you
How much I hate school—
How her consonants sound synonymous
To "scoliosis,"
And peel off my shirt and prove it to you

But that would be careless.

And careless is something in me hand-bound
By iron clad futures and
Graying dreams,
Perhaps that of a dead stock broker
Feet dangling off the roof of
The Philippine Stock Exchange,

And even then that's
Straying too far from home:
A cardboard box business
Resting by a
Tuberculosis-riddled sea.

— The End —