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Here I am, leg in plaster

Nurse with a needle, after me

Forgot the brake, can't go faster

Now all I get is woe and misery



CHORUS

I got those wheelchair blues

Suffering those wheelchair blues

Hear my wheelchair blues

I'm singing those wheelchair blues



Rushing to get that elevator again

Going quick and my hands are sore

I'm just too slow, because then

I end up crashing into the closed door



CHORUS

I got those wheelchair blues

Suffering those wheelchair blues

Hear my wheelchair blues

I'm singing those wheelchair blues



Showing off and think I'm clever

Should have taken my painkiller pill

You won't stop and wish I never

My fault for trying to go down hill



CHORUS

I got those wheelchair blues

Suffering those wheelchair blues

Hear my wheelchair blues

I'm singing those wheelchair blues



At last I can get out of the chair

But things will never be the same

Because now it just ain't fair

They've given me a Zimmer Frame



CHORUS

I got those wheelchair blues

Suffering those wheelchair blues

Hear my wheelchair blues

I'm singing those wheelchair blues



I got those wheelchair blues

Suffering those wheelchair blues

Hear my wheelchair blues

I'm singing those wheelchair blues



copyright Chris Smith
Raj Arumugam Nov 2011
Scene One



...some time in time... bare stage except for a square neon sign on left that reads: “Aged Care Home”...on right is a rectangular neon message display with full title of the play...Urgo and Burgo bring Raj Arumugam out on wheelchair...
*



Urgo: I am attendant 1. Often known as Urgo.



Burgo: I am attendant 2. Always known as Burgo.



Urgo:  You see this creature seated here
            in the wheelchair? 
Can you believe it?

            This creature once wrote poems
            
and its poems still inhabit cyberspace.


Burgo: Oh, this creature did that?


Urgo: Yes, this.


Burgo: I think I’ve read some.

             Not that I can remember any.
             
Not a word, not a title.
 But must have been pretty good, ha?
             
To write all those words, in verse...


Urgo: I don’t know about that.
           
It’s the girls who write. And sissies.
           
And for all that, you know
           
there’s just one word this creature can say.


Burgo: Really? Just one word?


Urgo: Yes.
All right, watch this.
           Come on, Raj-i.

           Hey baby...Burgo here wants to hear you.
           
Just one poem in your one word.
           
Come on, baby - or no soup for you tonight.



Raj: Baa, baa, baa

        Baa, baa, baa

        Baa, baa, baa

       Baa, baa, baa



(Burgo and Urgo clap)



Urgo: Baan-derful, Raj...
Now Burgo,
           let’s wheel the creature back in

           and dump him in
           his corner.



(Urgo and Burgo go out, Urgo pushing wheelchair with Raj in it)





Scene Two



...some time in time... bare stage except for a square neon sign on left that reads: “Aged Care Home”...on right is a rectangular neon message display with full title of the play...Urgo and Burgo bring Raj Arumugam out on wheelchair...






Urgo: Today, Burgo, is Exercise Your Vocal Chords Day.



Burgo: No problem - Ahhhhhhhhrrrrgggggooooaaaaa.....



Urgo: Not your vocal cords, Burgo.
           
It is Exercise Your vocal Cords Day
            
for our distinguished guest currently
            
on this wheelchair.



Burgo: Ahhh...I see...



Urgo: All right, Raj-i baby...
Exercise your vocal chords 

            and entertain us with your delightful voice...



Raj: Baa, baa, baa
        
Baa, baa, baa

        Baa, baa, baa
        
Baa, baa, baa



(Burgo claps)*



Urgo: OK - that’s enough exercise for the day!
           Let’s go






(Urgo and Burgo go out, Urgo pushing wheelchair with Raj in it)






Scene Three

...some time in time... bare stage except for a square neon sign on left that reads: “Aged Care Home”...on right is a rectangular neon message display with full title of the play...Urgo and Burgo bring Raj Arumugam out on wheelchair...


Urgo: Burgo!

Burgo: Sire!

Urgo: Sire? Where in the world
           did you get such a word?

Burgo: Sorry - I thought I was in a *****
             Shakespeare play.

Urgo: Have your head examined, Burgo.
            We’ll never make it there.
            All we have is this 3rd-rate one-act play.

Burgo: I understand. I’m just a little ambitious.

Urgo: Be realistic. Don’t be ambitious.

Burgo: That’s wise, Sire - I mean, Urgo.

Urgo: Well, this creature in the wheelchair,
            for example...It was ambitious...
            and it had a great fall...
            it never knew how to be realistic...
            But more of that, later - first, what Day is it today?

Burgo: It is We Tickle Your Foot Day, today.

Urgo: You learn fast, Burgo.

Burgo: Thank you, Urgo.

(Silence)

Urgo: Well?

Burgo: I’m very well, thank you.

Urgo: You idiot! I mean if you know it is
           We Tickle Your Foot Day, today -
           then what should you do next, you knave!?

Burgo: Oh. Ok.

(Burgo kneels before Raj, takes off Raj’s shoes and with a feather tickles Raj’s feet.)

Raj (laughing): Baa, baa, baa
                              Baa, baa, baa
                              Baa, baa, baa
                             Baa, baa, baa


(Burgo puts Raj’s shoes on again, and his feather back in his pocket and stands up.)



Burgo: You mentioned ambition
              and this creature that sits on the wheelchair.

Urgo: Yes, it is time to exercise my vocal chords.
           This creature forgot, like all creatures,
           we come alone, and we go alone.

Burgo: Ah, at last! - hints of a Shakespearean play
             albeit we’ll never make it into one.
            With ambition, loneliness and all the Lear madness.
            Will we have the lewd parts too
            and rich imagery of body parts?

Urgo: Perhaps...perhaps...but let us stick to the ordinary ...
           This creature was born in 1derLand
           but was washed ashore to foreign shores.


Burgo: Good, good...like Paris, son of Priam and Hecuba?
             O Paris, washed ashore to Sparta
             O so well-loved and nursed by Helen.

Urgo: Yes, except this creature is more akin to the Wanderer
            like Oedipus, or just the indistinct Mendicant,
            the Samurai with no master, a ronin,
             all cursed to wander the face of the earth...

Burgo: Oh - are we in Shakespeare yet?

Urgo: We are in deep ****! That’s where we are!
           We all are.
           Burgo - let us stick to the banal like hamburgers.
          This creature forgot that
          and dreamt of things like poetry, ideals -
          and therein is the moral of the story for you:
          we come alone
          and alone we go
          one at a time we come
          and each we own, and each faculty
          one at a time they go.

Burgo: So let us stick with the banal
             eat our burgers
             and pick our teeth after.
             Do they supply toothpicks at takeaways
             in your country, Urgo?

Urgo: No, we recycle them, Burgo.
           We just pick up discarded ones from the ground.
           Like some nations pick up cigarette butts
           from the bins.
           Waste not; want not.


Burgo: Oh, if this scene goes on any longer
             it might become Shakespearean, Urgo.

Urgo: Ergo - we must go.
          But let us allow Raj to have the last word,
           since this play is entitled
          “ Raj Arumugam, (a one-act tragicomedy)”.
          Idiot of a son! What kind of fool-writer will have a play
          with his own name as the title of his play?!

Burgo: So, Raj-i, you egocentric ******:
             You have the last word in this scene...
             You really put words into my mouth, you ****!

Raj: Baa, baa, ba
        Baa, baa, baa
       Baa, baa, baa
       Baa, baa, baa


Urgo: All right, Let’s go, Burgo.
           Bring him in -
           Let’s drop him in bed
           and may he drop dead!



(Urgo and Burgo go out, Urgo pushing wheelchair with Raj in it)




Scene Four



...some time in time... bare stage except for a square neon sign on left that reads: “Aged Care Home”...on right is a rectangular neon message display with full title of the play...Urgo and Burgo bring Raj Arumugam out on wheelchair...



*


Urgo: Burgo!


Burgo: Urgo!


Urgo: How long has it been since
           you started work here?


Burgo: 3 months, Urgo. Why?


Urgo: Well, show me a game...I’m bored...a new game...


Burgo: Well, have you played wheelie bin?


Urgo: No.
But Oh I love to delve into world culture.

           Show me.


Burgo: Well, let me show you.

             A wheelie bin is a bin with wheels
             and you put ******* in it
             
and you leave it outside on the kerb
             
and the garbage guy in his truck collects your *******.
             
So this is the game.



(Burgo pushes wheelchair round the stage and sings.)



          This is the way we 
wheel out our wheelie bins
           
this is the way we 
wheel out our bins
           
early every Thursday morning


           This is the way we 
leave our bins,
            our wheelie bins

            this is the way we leave our bins
            
out on the sunny kerb

            every Thursday morning



(leaves wheelchair on kerb)



           This is the way we empty our bins

           this is the way we empty our bins
           this is the way empty our bins
           every Thursday morning



(empties the wheelchair; Raj Arumugam  drops onstage)




Urgo
(joining in):
 This is the way we 
pick up our *******

                                  pick up our *******
                                  
this is the way we do it

                                  this is the way 
always we do it

                                  early Thursday morning!



(Urgo picks up Raj Arumugam and drops him in the wheelchair)



(Urgo and Burgo clap, applauding each other.)



Burgo:
And now, Urgo - for the ritual
             of 
Raj Arumugam’s final words in the scene...
Is that right?



(Urgo nods...)



Burgo:
  Sing, you Sir in the Wheelchair.



Raj: Baa, baa, baa
       
Baa, baa, baa

       Baa, baa, baa

       Baa, baa, baa




Burgo: Oh, you spoil the fun! Let’s go.






(Urgo and Burgo go out, Urgo pushing wheelchair with Raj in it)




Scene Five

...some time in time... bare stage except for a square neon sign on left that reads: “Aged Care Home”...on right is a rectangular neon message display with full title of the play...Urgo and Burgo bring Raj Arumugam out on wheelchair...


Urgo:
          Let's leave him here tonight;
         some fresh air might do him good

(Urgo and Burgo leave, leaving Raj on his wheelchair.)

(Long silence.)


Raj: Baa, baa, baa
       Baa, baa, baa
       Baa, baa, baa
      Baa, baa, baa



(Raj has a thought. His thought is broadcast as a message on the rectangular neon light display: “Hey guys, come back...Another word is coming back to me.”)

(Long silence)


Raj:
**** **** ****
**** **** ****
**** **** ****

(Raj has another thought. His thought is broadcast as a message on the rectangular neon light display: “Another one’s coming back...maybe my mind is coming back.”)


Raj:
**** **** ****
**** **** ****
**** **** ****

(Long silence. Lights fade. Darkness. Curtain...)
Wheels unstoppable
Enabled inspiration
Determined
The gentlemen called “WHEELCHAIR LOUIE”
He lifts heavy weight to keep in shape, and not look like an ape
Wheelchair Louie is into Wheelchair Bodybuilding to compete in Bodybuilding shows along with his brethren
Wheelchair muscles of the fittest
He trains at “ENERGIZE GYM” to work out and enhance his muscles into proportion
Transform and intensify growth
You would find wheelchair Louie posing in the mirror using his own wheelchair for support
Analyzing structural and definition in his muscles
Wheelchair Louie doesn’t see a handicap as he sees the will to try
Being movable and encouraged with a pursue and winning spirit
One has to give him merit in his efforts in not settling on his circumstance, but devoted to accomplish like anyone else not in a wheelchair
What is Wheelchair Louie’s advice for those in a wheelchair, Exercise and break all barriers of doubt and bring understanding with every try in accomplishing whatever your heart’s desire with a promise of fulfillment
Give Wheelchair Louie an applause in his quest for standing on his
solidarity and eyes on his own victory.
Trish Dainton Jul 2015
The progression of Huntington's disease often leads to the need of a wheelchair. My husband resisted using a wheelchair for many years, even though his poor balance and tiredness meant he was prone to falls. I didn't exactly pressurise him into using one. To be honest it was not just because it was another sign of loss of independence, but it would have been harder for me too in many respects.

What I wasn't prepared for, when the time came, was the social stigma attached to wheelchair users insofar as becoming a kind of non-entity! In a weekly blog I wrote in 2008 I wrote about the first time I took my husband out in a wheelchair. It angered me how peoples’ attitudes seemed to change overnight.

Walking down the High Street,
Hand in hand like lovers,
The couple blend into the crowd,
No different from the others.

As the years go by though,
His body having changed,
Has sadly meant a wheelchair,
Has had to be arranged.

Strolling down same High Street,
The woman now behind,
Her lover needing pushing,
Steep pavements so unkind.

Entering the bar now,
With awkward navigation;
People jump to open door,
Aware of situation.

“Thank you” says the man in chair,
When wheeled into the place;
“Welcome” say the helpers there,
But all avoid his face.

Carer gets the “Welcome” mouthed,
No looks with him they share;
Let’s treat this fellow human being,
As if he wasn't there.
Taken from the book 'Curse in Verse and Much More Worse. Written by me after the death of my husband - Steve - to Huntington's disease.
Terry Collett Apr 2015
Here Kid take this what is it? whats it look like? its a prayer book thing yes so take it and hide it under your jumper why? just hide the **** thing so Benedict hides the  black book with red ends under his jumper and follows Anne into the grounds out of the French windows Anne crutches herself across the grass and makes towards the round white table and chairs and plonks herself down in a chair tossing her crutches aside Benedict sits down in the next chair looking back towards the nursing home do you think we were seen? seen doing what Kid? walking across the grass no doubt liberating Sister Dumb-arses prayer book no Anne says Benedict turns around and stares at her dont keep looking around Kid or the penguins will guess youve been up to no good me been up to no good it was your idea to take the prayer book but youve got it Kid not me but you said take it and you did well done Kid Anne says smiling she rubs her leg stump and pulls the blue skirt down further what do we do now? Benedict asks looking at Anne tempted to turn around and look behind him sit tight Kid sit tight but I cant hide the book under my jumper all day he says pass it under the table to me so he passes the prayerbook to Anne under the white table and she opens it in her lap he looks at her his stomach tightening guess whose it is? Anne asks he shrugs dont know its only Sister Bridgets how do you know? has it got her name in it? no they dont own personal property its just that it has this prayer card in it with an image of St Bridget on one side and a prayer on the other and on the top shes scrawled Sr Bridget in her bird-**** hand writing God shell go ape he says looking round at the nursing home what do we do? shush Kid what do want them to know weve got it? he stares at the building imagines the nun galloping across the lawn towards them her black robes billowing behind her like Batman turn round Kid youll look suspicious he looks round and stares at her sitting in the chair as if butter wouldnt melt in her mouth on a hot day where are you going to put it? he asks out of the sight of their eyes she says where though? she pulls up her blue skirt and tucks the black prayer book in her navy blue underwear and pulls down the skirt and brushes out the any signs you cant keep it there he says why not my knickers she says are they going to search me there? she says now just go get my wheelchair and  we can go visit the sea out the back gate he sighs and wanders back towards the home trudging across the lawn leaving Anne sitting in the chair like some royal queen on her throne she lifts up her skirt and adjusts the book more securely just as well I wore the passion killers Mum bought me she says to herself and lets down the skirt again and sits staring towards the home as she sits a few of the kids come out and make their way to the swings and slide they know her and avoid her like a plague a nun comes out too Anne stares at her its Sister Lucy a young one green as grass more ****** that the Blessed ****** herself Anne says under breath the nun walks towards Anne her hands inside her black habit how are we today Anne? the nun asks smiling my ****** leg aches Anne says o dear the nun says looking at Annes leg visible under the table have you seen Sister Paul about some pain killers? no not yet Anne says anyway its not this leg its the one not there my stump leg o I see Sister Luke says staring at the unseen stump beneath the blue skirt I could pray for your leg if you would like me to the nun says might help Anne says putting on her pious pose its hurts so much I feel like crying she allows tears to dribble out of her eyes(shes an expert of conjuring tears out of her eyes) o my dear child the nun says coming around the table and placing a hand around Annes shoulders Ill ask Sister Paul about some tablets the nun says thank you Anne whimpers feeling the prayer book move slightly as she moves in the chair she tries to adjust it with her hand to a more secure position Benedict comes across the lawn pushing the wheelchair he sees the nun and his eyes enlarge and he senses danger have they suspected Anne already about the missing prayer book? he wheels the chair behind Anne the nun looks at him arent you a good boy she says yes hes my best friend Anne says smiling through the glassy eyes the nun smiles well I best get back Ill see Sister Paul about those pills the nun says and walks off towards the home that was close Benedict say she didnt mention the prayer book Anne says she just came about me and the ****** leg and offering prayers o I see he says gazing at the stump area thinking about the stump of her leg hes seen many times are you going gawk at my stump all day or are you going to help get in the ****** wheelchair? o right yes he says and helps her get from the chair and into the wheelchair holding it steady at the back make sure the prayer book doesnt slip out of my knickers Kid she says as she rises from the chair and plonks into the wheelchair she moves the book to a more comfortable position and pulls her skirt down pass her knee just as they were about to move away Sister Bridget comes across the lawn towards them like a rhino on heat hang on Kid here comes the penguin wait wait the nun says raising a hand Benedict pauses pushing the wheelchair and stares at the approaching nun keep cool Kid Anne says under her breath act innocent as the Pope at a nudist colony Benedict feels himself perspire the nun stands in front of Anne in the wheelchair a prayer book has gone missing the nun says gazing at Anne has it? Anne says in an innocent tone yes it was taken from the Common Room shall we help look for it? Anne asks have you seen it? the nun asks no not that I know of whats it look like? Anne asks as if butter wouldnt melt a prayer book is what it looks like the nun says eyeing Anne with her suspicious eyes black cover with red ends no cant say I have Anne says Benedict looks away at the trees behind of them at the avenue between them and you Benedict have you seen it? the nun asks staring at him her eyes over him like maggots he shudders no sister not seen it at all he hates lying to  a nun he feels as if she looks into his soul and at the minor sins lurking there like naughty children then the nun looks down in Annes lap gazes at the outline of the leg stump not hiding it are we? the nun says hiding what? Anne says my stump? no I tried hiding it but its always there each morning I wake up the nun screws up her eyes and peers at them both no I mean the book where is it? no idea Anne says Benedict looks down at Annes lap where have you hidden it? the nun says havent seen it Anne says one of the children says she saw you take it the nun says me? Anne says you cant take the word of child I believe what the child tells me Benedict looks at the outline of the leg stump the child says you have it about your person she saw you from the upper bedroom window the nun says sternly must be mistaken must have seen me rub my stump they always watch me rubbing it so nosey the nun sighs and gazes at Annes lap and at the stumps outline show me your leg stump? the nun says hands on her hips Anne pulls up her skirt to reveal the stump Benedict looks too wondering if the book outline could be seen under the knickers the nun looks away where have you put it? put what? the book the prayer book the nun says I havent seen it Anne says as innocent as she can muster innocence lies will get you to Hell the nun says and walks off across the grass like a bad tempered bear what now? Benedict says Anne takes the book out of her knickers and hands it to him warm and scented what do I do with it? he asks shove it on that other chair under the table and were off to the beach so he puts the book under the table and pushes Anne off in the chair off out of reach.
A BOY AND GIRL IN  A NURSING HOME IN 1959 SUSSEX.
If you ever fall in love with someone who is in a wheelchair remember this:
I am in love with you and the chair is not you;
Loving someone in a wheelchair is not about the chair at all.
It is about changing their perspective, from always looking down and straight ahead,  to around and up.
Holding their hand when they think they are not normal
Take them to the movies
dinner
Travel and go places
Laugh
Talk
Cry
And when the two of you fight,  don't treat him/her as a fragile piece of glass.
Say what is on your mind
And mean it.
Apologize afterwards regardless.

I have been struck;  falling in love with him.
He is always there for me and we are the best of friends.
He doesn't know that I love him
Even though I tell him as often as I can that he is my hero.
He has always stood up for me--
He is my superhero

The pain he feels every  moment makes me want to trade places with him so he can walk
Dance at his wedding
Even if it is not with me
To actually stand up to hug his family
To be more active
(Let's go out)
Happy
(I'm alive)
But he makes sacrifices because of his body

If I could take away your pain
I'd trade your sorrows for a day
That you can walk in joy and life
A single day without your strife
And if I could trade longer, I would
So that you can live
A life with two legs and arms
I have a best friend who is in a wheelchair paralyzed from the mid-chest down. I dedicate this poem to him,  and even if he does not feel the same,   I am still his best friend and I will remain by his side for as long as he wants me to.
Terry Collett May 2015
Anne crutches herself onto the green lawn of the nursing home and sits at one of the metal white painted tables and in one of the white metal chairs and drops her crutches beside her Benedict whom she called Skinny Kid follows her and sits at the same table looking at her his hazel eyes focusing on her on her black straight hair and dark eyes other children are playing on the swings and slide or sitting at other tables a distance away don't want none of those other sick kids here Kid Anne says they're sneaks and tell tales and moaning Minnies and such but you Kid you're all right you’re possibly the only one here I can tolerate and O those pesky nuns ****** penguins walking about poking their noses into things saying have you had a motion today? have you passed water? yes I said to Sister Agnes I did a dance on one leg as a motion and I passed the running water tap on my way to breakfast what did she say​?Benedict asks she said manners Anne we must have manners and asked me again and I said both and plenty of them and she went off in a huff her black habit gown flapping behind her like some ****** bat one of the kids comes to the table and says can I sit here? of course you can sit you've an **** on you but no you may not Anne says shooing the girl away like she was a dog the girl went off looking back pulling a face how's your leg? Benedict asks missing and aching and driving me to distraction Anne says the ****** stump throbs and gets hot and it makes me a miserable sod can I see it Benedict asks what its like? you're a one aren't you always after seeing my stump later maybe not here with the nosey penguins gawking at everything we do a nun walks down to the table her eyes like black dots behind her wire spectacles ah Anne have you been upsetting the other children again? are you asking me or telling me? Anne says rubbing her leg eyeing Benedict Lina says you swore at her and told her to sit elsewhere the nun stares at Anne then at Benedict well? what happened the nun asks I never swear Sister I never swear I just said she could sit elsewhere be better for her I may have an illness she may catch and may bring her out in yellow spots the nun doesn't smile or move a muscle in her face her dark eyes move over Anne then Benedict well Benedict were you here? what happened and I want the truth or you'll not go to Heaven if you lie the nun says eyeing the boy scarily she didn't swear the boy says just said to go elsewhere the nun stares at Anne do not be horrible to other children they've as much right to sit here as you do now behave or I’ll report you to Sister Paul and then you'll know it the nun says and walks off like a rook unable to fly Anne farts and smiles sums her up that she says Benedict nods and looks at the table want to go to the beach? I can push you in the wheelchair? how old are you Kid? she asks ten nearly eleven he says she muses looks at him do you know how old I am? she asks eyeing him his quiff of hair the hazel eyes the skinny frame no idea Benedict says I’m twelve Kid although my mother says I’m big for my age got ******* and such Benedict looks past her head at the avenue of tree behind and the path to the beach got ***** hair too she adds to see if he'll blush what's that? he asks what’s what? Anne says ***** hair? he says that'd be telling wouldn't it spoil the surprise although you could always ask the good sisters and say dear Sister Paul what's this ***** hair stuff? she laughs to herself well Kid go get the wheel chair and off we go to the beach the boy smiles and gets up and walks quickly towards the nursing home Anne watches him go she winces and rubs her stump with her hands backwards and forwards she watches the other kids at play at the nuns walking here and there then Benedict comes across the grass pushing the wheelchair at a fair speed she smiles as he comes up to the table here we are one wheelchair he says slightly out of breath right bring it round here Kid and so he pushes the wheelchair next to her and manages to get herself in comfortably and rocks about until she's settled right then Kid did anyone stop you? yes he says Sister Agnes asked me where I was going with the wheelchair and I said you had need of it and she pulled a face then walked off with a face like a pinched behind Benedict says good on you Kid now let's' to the beach and away from the peasants and sickly she says so Benedict gets behind the wheelchair and pushes away from the table his arms outstretched his hands gripping the handles and off they go over the grass and onto the pebbly path between the trees and the sound of birdsong and the smell of the sea filling their noses and out the back gate and onto the path along by the sea the sounds of sea rush and waves and gull cries and people calling out and laughter and kids calling and crying and she says O this it Kid this is ******* living breathe in that air breathe in deep and Benedict breathes in deeply as he pushes her along the path smooth and easier and his thin legs pushing along the pathway and as he pushes he gazes down at her black haired head then at the red dress with the one leg sticking out the stump not visible but only the outline of it being there and the smell of the sea and salt in the air.
A ONE LEGGED GIRL AND A BOY IN A NURSING HOME IN 1959
Ashley Centers  Dec 2014
Human
Ashley Centers Dec 2014
Let's hold out hope for the crippled.
Hope for the crippled?
No thanks, this crip doesn't need your hope.
This crip needs you to stop.
Stop labeling me.
Stop feeling sorry for me.
Stop pitying me and my 'poor life'
Just ******* stop!
No, really, I'm okay. I don't need you.
I don't need you or your miracles.
Don't tell me God works miracles
And to hold out hope
Because maybe one day I'll walk
Or maybe I'll get to see from both eyes
Because God works miracles
But you're too busy fixing what isn't broken that you forget
If I was truly made in his image this crip doesn't need healed.
This crip doesn't need your prayers or miracles.
This crip doesn't need your God or your salvation.
This crip doesn't need your hope.

Poor soul, she's diminished by her disability.
Diminished by my disability?
The only thing I'm diminished by
Is your inability to understand
That before anything else I am human.
I make mistakes and have flaws.
I feel, probably more than most,
And sometimes those feelings get in the way.
I empathize but I am done sympathizing.

You say my wheelchair is a blessing in disguise.
Why can't it just be a blessing?
A blessing that comes with lots of lessons.
Some that I learn the hard way and some that come easy.
But this wheelchair doesn't need a reason
To teach me (or you) a lesson.
Sure, it frustrates me when a wheel breaks or I fall on a broken sidewalk
But it teaches me humility and patience.
And there's no reason to disguise that this wheelchair is a blessing.

So, please take your hope and pity
Your guilt and salvation elsewhere
Because they're defeating the purpose. They're detracting from the point.

I am not diminished by my disability.
I am not to be quieted or pitied
I am not your reason to feel guilty
I am not a burden
I am human.
K Balachandran Apr 2017
1.This wheelchair never was a River,
even when powered, it did splutter
yes, it's equivalent in movements,
listening silently it always sits out,
away from the flow to the ecstatic sea.
A wheel chair is a caricature of loneliness.

2.Ever tried to see it for what it really is?
"We don't remember, doesn't catches the eye"
Not like a chair of any other kind easily does,
A chair regal looks up, straight at the face
in the manner it demands what it wants,
"Let me tell you this, listen or leave"

3.A wheel chair keeps on looking at it's
arrested feet apologetically and sighs,
if you have an inner ear sensitive, hear this,
I am not even a chair, an apology
for movement,spoken in a voice stiffed.
It speaks incessantly, in a voice within itself,
wordless to a world, that has closed it's doors.

4.A wheelchair easily forgets things as
it can't keep bitterness alive always.
who cares to speak a few words to a wheelchair?
all it is to be done is push it in silence through aisles .
from a destination of pain to any other, slightly higher.
Stairs of every kind, for a wheelchair is a foreign land.

5.Yet in impeded wheelchairs moves many a dream,
broken before their time or crusted with force.
Or remains of a day, too long and  busily spent.
On every wheelchair a heart adamantly beats,
"I would, I would" it beats with a rare grit.
Dedicated to all differently abled people whose dream each one of us has to help fulfill..
The woman in the blue Chevy said: “Just five dollars please,” as I pumped two more dollars of Sunoco 260 into the aging four door sedan.  As she paid me and then left, I looked at the Croton Chronograph Watch on my wrist that I had gone into hock for last fall.  5:15, SHOOT!!!, I only had 45 minutes to jump on my bike and make it the fifteen miles back to West Philadelphia to class.

I was taking night courses at St Joseph’s College (St Joseph’s University now), and my first class started at 6:00 p.m.  Why? I asked myself again did I always cut it so close?  Deep inside I knew the answer, but I told myself it was because I was a good employee.  I had been pumping gas and renting U-Haul Trucks at an Arco gas station in North Hills Pa. for the past two years. The station was open till 6 p.m. every day, and it seemed I never got out of there until after 5.

It was owned by a good friend of mine, Bob, whom I had met in Ocean City New Jersey while living in the rooming house that he and his wife Pat owned at 14th street and Asbury Ave.  Every day at five o’clock, Bob would yell out to me on the gas island — “time to leave!” He knew how long the ride was back to school during rush hour and that I never seemed to get out by 5.

The real answer as to why I was always late was that I liked the challenge. I loved the ride through the small section of Fairmount Park and then the river town of Manayunk always trying to get back to my apartment at 54th and Woodland Ave in the Overbrook section of Philadelphia before six.  54th and Woodland was right across the street from St Joe’s, and I would literally race into the driveway in front of my apartment house, drop the bike’s kickstand run inside to change and then head for class.  Many times, I would not even change out of my Arco jumper (uniform) before heading over to campus.  I often didn’t have the time.  I wondered what some of the other people, especially girls, must have thought of the strange aroma that I brought to the class on the nights when I didn’t change.

            To Their Credit, No One Ever Complained

I had always secretly wanted to road-race motorcycles, and this twenty-minute ride both to and from work every day gave me a chance to indulge my fantasy.  Tonight, I would be cutting it very close and not even have time to stop at my apartment.  I would have to park under the tree in front of my classroom building and run up the stairs to the third floor and do it all before six o’clock. It was an advanced Philosophy class, Ethics and Morality, and the professor, Dr. Larry McKinnon closed the doors promptly at six.  If you were late, you didn’t get in — no exceptions!

I raced through the park on Bells Mill Road and hit the cobblestone hills of Manayunk with 15 minutes still left on my watch.  I then raced up City Line Ave and caught only one red light as I saw the lights of 54th and City Line straight ahead. The light was yellow as I leaned over hard and made the left turn on 54th St. I raced up past the basketball arena and turned right on Woodland Ave. I would normally have gone straight a half block to my apartment, but I had cut it too close and didn’t have the time. I pulled up in front of the Villiger Building, chained my bike to the tree I always used, and ran for the stairway door around back by the track.

This building had no elevator, so it was up two flights of stairs to the top floor and then left down the hall to where my classroom was the one farthest on the right.

As I rushed through the back door of Villiger, the first flight of stairs was blocked.  An elderly man with a Gulf Oil Hat on was struggling to pull his son in a wheelchair up the 26 stairs.  He had the entire stairway blocked, and I had less than two minutes to get by him and into McKinnon’s class.   His son in the wheelchair was in really bad shape.  He was in a total body brace that went clear to his head, and as he looked down at me, I heard him say: “Hey Moose, grab the front, and we’ll both make it to McKinnon’s class before he shuts the door.”

With that, I grabbed the small front wheels and lifted, as we both carried the wheelchair up the two flights of stairs to the third floor.  We entered the hallway just as Dr. McKinnon was shutting the door.  The kid in the wheelchair yelled out, “Wait for us Doc” as we raced for the closing door.  I took the handles of the chair away from his dad and pushed the chair inside.  We had made it but not any too soon.

I wondered to myself if McKinnon would have denied entry to this kid who had been stricken with polio if he had arrived just two minutes later. It would have taken at least that long if his dad had tackled those stairs alone.  I parked his wheelchair next to my desk on the far left as the professor started his lecture.  When it was over, I pushed his wheelchair outside to where his dad was waiting.

“Ed Hudak,” his father said, “and this is my son Eddie.  Thanks so much for helping us up the stairs. I got out of work late and had to race home to the Northeast section of Philadelphia, pick Eddie up, and then race back down here to get him to class.”  Mr. Hudak worked at the Gulf Oil Refinery in South Philadelphia.  To leave work at four o’clock and get all the way up to the Northeast, pick up his crippled son, and then race back down to West Philadelphia made the little twenty-minute jaunt that I did every day seem like child’s play.

His son Eddie then asked me where my next class was. “Dr Marshall’s ‘Rational Psychology,’ I told him” as he said, “mine too, you can push me over there and my dad can go to the student union and get something to eat and rest for a while.”  School had only started last week, and somehow I had missed seeing this crippled kid in both of my classes.  He told me he had seen me though because of the strange jumper I had on and the helmet I carried into class.  When he told his father about me his dad said: “That kid must work in a gas station and be paying for school himself.  Cut him some slack if he doesn’t look real presentable on those days when he’s late.”

Eddie and I finished both classes together and I got ready to push him back outside.  As we passed the vending machines on the first floor, I told him that this was where I usually stopped to have dinner before going home.  He asked me, “What’s your favorite?” and I told him, “the Dinty Moore beef stew.”  The machine had three different varieties and that was usually all I had until breakfast the next day.  Eddie said he would like to wait while I ate and that his father would be fine outside for a few more minutes.  He seemed to know something about our new relationship that would take quite a bit longer for me to discover and sort out.

                  Eddie Always Seemed To ‘Just Know’

I asked Eddie what his major was, and he said Literature, and that he had been a student here for almost six years.  Again, I wondered, how could I have missed him in that wheelchair with someone always pushing him to where he needed to go?  I hoped I hadn’t refused to see him in his diminished condition with my eyes always looking away.  These kinds of things always bothered me, and I was squeamish around handicapped people, especially children. My mother had volunteered at the St. Edmond’s Home For Crippled Children in Rosemont for many years, but I was still uncomfortable when I saw those kids, not much younger than I was, in wheelchairs and leg braces.

                Eddie’s Condition Was Much Worse

The only thing handicapped about Eddie was his body. His mind and spirit were stronger than any five, so-called, normal people.  His father had made sure of that.  His dad had been racing from work to home and then to school for almost six years devoting whatever spare time he had to what his son wanted to accomplish.  He would drop Eddie off at class and then, most nights, go sleep in his car in the school parking lot.  Many nights, the temperature in that parking lot was below freezing, but this sixty-year-old man NEVER complained.


        Who Was Really Handicapped, Eddie Or Me?

As much as I marveled at how well Eddie did in spite of being disabled, his father amazed me even more.  He was like so many heroes that we never hear about standing off in the shadows so that someone else can thrive.  After I finished my stew, I pushed Eddie outside to where his dad was waiting.  He shook my hand and said: “Son, without your help tonight, we’d have really been in a terrible fix.”

                               He Called Me “Son”

As I watched him wheel Eddie back toward their car in the parking lot, I pushed my long hair back and pulled my helmet over my head.  The chinstrap I left unbuckled on these short rides because it always got tangled in my beard.  I rode the two short blocks back to my apartment with the sight of Eddie and his dad burned into the front of my psyche.  I knew I had witnessed something special tonight, I just didn’t know yet how special it truly was or would then become.

Now, I had an entirely new reason for getting to school on time.  I was not going to let that diminutive older man pull that wheelchair up those stairs one more time — not if I could help it.  I was never late again for the rest of that semester, as Eddie and I became fast friends with he and his dad even visiting my apartment on more than one occasion.  I became a real master at pulling that sled of his up the stairs, and we often got help from other male students as we made the climb.

Eddie told me in confidence one day that I had been good for his dad.  I thought he was referring to the physical exertion I had save him, and Eddie said: “No, it’s more than that. My dad has never liked anyone with long hair and a beard, and he told my mother the other night that you were the first.  He then went on to say that maybe it was just hair and that he shouldn’t let things like that bother him anymore.”  I was both flattered and gratified that he saw something in me, something that I still may not have seen in myself.

Mr. Hudak had been a World War 2 veteran and participated as a Chaplain’s Assistant in such major conflicts as D-Day and The Battle Of The Bulge.  His Jeep had sunk in deep water during the D-Day landing, and he and the Chaplain had to swim two hundred yards to shore amidst enemy fire.  He was a great man in the tradition of all great men who provide unselfish and heroic service while asking for nothing in return. In many ways, I secretly wished that he had been my dad too.  

My father had also been in World War 2 as a Marine and fought many engagements in the South Pacific.  He was a hero to me, but the difference between my father and Mr. Hudak was, my dad loved me, but he didn’t seem interested in my life now.  He didn’t approve of my studying Philosophy, and he couldn’t understand why I hadn’t chosen a more conventional career path like the sons of so many of his friends.

  In Ways I Couldn’t Understand, I Think I Embarrassed My Father

What my dad didn’t know was, that underneath the long hair and beard, my beliefs were a little to the right of Attila The ***. Unfortunately, we never had a serious conversation where he could have discovered that.  

The semester finally came to an end and the Christmas holidays were now upon us.  It was cold weather to be riding a motorcycle but, when that’s all you have. then that’s what you ride. On the last day of class before break, Mr. Hudak pulled me aside.  “My wife Marge and I are having a little party next Saturday night, and we’d like you to come.”  Everything inside me was trying to find an excuse not to go, but all I was capable of was shaking my head yes and thanking this great man for the kind invitation.

It wasn’t that I didn’t want to meet his family. It was that I literally had nothing to wear and only the motorcycle to get me there.  My entire wardrobe consisted of two pairs of jeans, three t-shirts, and one beige fisherman’s knit sweater that I had bought at a local discount store.  I still hadn’t worn the sweater, and the tags were still on it.  I kept telling myself I was saving it for a special occasion.  Well, what could be more special than meeting Mr. Hudak’s family. The afternoon of the party I removed the tags from the sweater and ran down to the Laundromat and washed my newest jeans.

Eddie had told me that the get together would start around seven, but I could arrive anytime I wanted.  As I pulled the motorcycle up in front of their brick row house, I looked for a place to park the bike where it wouldn’t stand out. I already looked like a child of the sixties, and the motorcycle would only give them something else to focus on that might be misleading.

My fears were totally unfounded as I walked through the front door.  Mr. Hudak greeted me warmly, as Eddie yelled out in a voice all could hear: “My buddy Kurt’s here.”  My buddy Kurt! Those words have stayed with me and have provided sustenance during times when I thought my life was tough.  All I had to do in those moments was think of Eddie and what he and his family had been through, and my pity party for myself ended almost quicker than it began.

                         “My Buddy Kurt’s Here”

No sooner did I wave to Eddie than Mrs. Hudak came bouncing out of the kitchen.  Literally bouncing! This tiny woman of 5’1’’ came bounding across the dining room floor and immediately reached up and threw both of her arms around my neck.  She squeezed hard and it felt good.  It was real and she wanted me to know that.  Eddie had also explained to me how physically strong his mother was. It was the result of having to carry him up and down two flights of stairs from his bedroom to their recreation room in the basement below.  She did this several times a day.

I don’t know how high the heat was set to in their house that night, but I had never felt so warm — or accepted.  To an outsider like me it even looked like love, which I was to find out shortly is exactly what it was.  I wanted to take my heavy sweater off, but I had nothing on underneath but an old t-shirt.  Mrs. Hudak’s name was Marge, and she was from an old Irish family named McCarty. When she first saw me earlier, after I had removed my jacket, she said: “What a lovely sweater, shorin it tis.”

                                It Felt Like Love

I spent that night getting to know everyone, and in no time felt like one of the family.  At ten o’clock the guests started to leave and Marge took me into the kitchen.  “Can you stay a little while longer, because at eleven there is someone who I want you to meet?”  I said sure, as she fed me more cake and cookies telling me that they were baked special by the evening’s mystery guest.

At eleven fifteen the front door opened with an “I’m home,” coming from a young woman’s voice.  As I stood up, a flash of white turned the corner and entered the kitchen.  There in her finest nurse’s regalia, stood Eddie’s younger sister, Kathryn, who had just finished the evening shift at Nazareth Hospital in North Philadelphia.

“WOW, WAS SHE SOMETHING,” is all I could hear myself saying as she took her first look at me.  “So, this is the guy I’ve heard so much about huh,” she said as she walked to the refrigerator.  “Based on my brother’s description, I thought you would have been at least ten feet tall.”  Mildly sarcastic for sure, but I was smitten right away.

Later, I heard her on the phone with someone who sounded like her boyfriend.  They seemed to be fighting, and I sensed from the look on her dad’s face that they weren’t crazy about him either.  He said: “I hope it’s over,” and in less than a minute Kathryn came into the living room with tears in her eyes.  As she ran up the stairs to her bedroom, you could hear her say, “What A ****!” I prayed she wasn’t referring to me.  

Her mother ran up the stairs after her but before she did, she asked me not to leave.  Ten minutes later she came back downstairs and said: “You haven’t finished your cookies and cake in the kitchen.”

Marge was right, and I really wanted to finish them, but I was now starting to feel uncomfortable and in the middle of something that wasn’t for me to see or hear. Not wanting to seem rude, I followed her back to the kitchen table and sat down as she refilled my glass with milk. “So, what are your plans for the holidays,” she asked, as I wolfed down the sweets.

“Oh, nothing much,” I said, “just schoolwork and my job at the gas station.”  “And how about New Year’s Eve she asked?”  “Oh, nothing planned, probably just go see my grandparents and then watch the ball drop on TV in my apartment if I make it till twelve”.  “Why don’t you ask Kathryn out” she said, as her eyes twinkled? I thought I must have been hearing things and looked baffled, so she repeated it again…

                  Why Don’t You Ask Kathryn Out

This kindly woman, from this great family, was suggesting that I take their pride and joy daughter, Kathyrn, out for New Year’s Eve.  I didn’t know what to say. “Why don’t you think about it?  I’ll bet the two of you would have fun. I think based on tonight she is now free for New Year’s Eve too.”

I was literally in shock and not prepared for this.  I had recently broken up with a long-term girlfriend who I had dated all through high school and college.  I had convinced myself that I needed a break from girls for a while, and now here I was faced with dating Mr. Hudak’s only daughter.  In a few minutes, Marge walked out of the kitchen and Kathryn walked back in. She was now dressed in her pajamas and robe. If I had been smitten before, I was totally taken now.

I knew the first thing I said might be my last, so after a long pause I uttered: “So, I hear you’re not doing anything for New Years Eve?”  Not the best ice breaker as she yelled out to her mother: “Mommmmm, what did you tell him.”  Her mother didn’t answer.  I said again: “Kathy, please don’t take it the wrong way, I don’t have a date for New Year’s either.”  She looked at me for what seemed like an eternity, that in reality lasted for just a few seconds, before saying: “And just where do you propose we should go, Mr. Wonderful?”  Thank God I had an answer.

                           The Ice Had Broken

“Zaberers,” I said: “They’re open twenty-four hours. They have dinner and dancing and then a big show right after midnight.”  “Zaberers, huh,” she said, as she looked at me once more.  “All right, you can pick me up at eight.” With that, I didn’t want to push my luck.  I thanked her parents for the wonderful evening and wanted to say good night to Eddie, but he had already gone to bed.  That was what Marge was doing on her second trip upstairs — what a woman!!!

                          What A Woman Indeed!

Kathy and I had a great time on that first date on New Years Eve. All we really talked about was her father and about how hard he had struggled to keep the family together and how lucky he was to have found a woman like Marge who was the love of his life.

Kathy and I were engaged to be married just nine weeks later on March 5th,, and then married that fall on September 22nd 1974.  I was now a real part of the family that I had admired from afar.  Kathy and I had two children, and Marge and Ed were the best grandparents that two kids could ever have hoped for. They were lucky enough to see both of their grandchildren grow into adulthood and attend their college graduations. They were also able to proudly attend the wedding of their oldest grandchild, our daughter Melissa.

We lost Ed Hudak, my father-in-law, my guardian, and my friend, last December, and the world has been a little less bright with only the memory of him here now.  In many ways, he was the best of what we are all still trying to become, and his spirit remains inside us during the times of our greatest need.

For me though, I’ll never forget the time of our first meeting. That late September afternoon when I looked up those stairs at St Joe’s and not a word needed to be said. Here was a Saint of a man doing what real men do and doing it quietly. With humble dignity, his spirit reached out to me that day and filled an empty place inside of me with his love.

Now, forty years later, that same spirit occupies a bigger and bigger place in my life. From somewhere deep inside my soul it continues to live on, and I know for as long as I can remember — it will never let me go.

                           And I Called Him … ‘The Chief’

— The End —