All the silence does not mean
You are alone,
It is the world waiting for you
To listen;
And in the darkness you are
Found by the light
Of your hope.

And in the tears of your
Pain you are born,
There you become stronger
And it creates order.

Pick up your flesh as your spirit
Lifts,
And speak your happiness
As if the tip of your tongue
Was the mountain's peak
Speaking at the sky,
The burden is a caged bird
And only the conscious can set
It free.
And sing to yourself so that
You know you are never alone
In your body.

Know that your crazy is beautiful
Because it makes you YOU,
Wear your skin like
Your cozy blanket and cuddle
In the warmth of yourself.
     You are not broken,
But scattered like the night
With pieces like stars shining,
    Open your pain and yourself
To the wound of the world and heal
Whatever you choose.

you fall down, you have no choice but to get back up.
when you get back up, you lose something; a piece of your strength, energy, will... something. keeping on is not free.

you spent the day in bed. too exhausted to get up. you're so sick of bed. your body feels angry for being so still. you just didn't have it in you to move around today. this is fatigue. it isn't fair. in fact, it's cruel.

there is no feeling good anymore. there are what some poor souls refer to as "good pain days" which is just another way of saying
"I know what it's like to be in such bad pain that you want to die, and I'm just thankful today's pain was at least not the worst it has ever been"

you're on no kind of schedule. it'd be a blessing just to eat and sleep at normal times, with some regularity. you feel like crap all the time. you gain weight and lose muscle. you feel weak and heavy.

lie in bed. peace of bedtime is a foreign concept,  your body aches to be comfortable, and you may doze off for 3 seconds before jerking awake by inconsiderate muscles that don't really care that you haven't had a solid hour of rest in 2 days.

pills are a blessing and a curse. relief and side effects. they allow you to rest and they mess with your brain. you'll get so sick of taking pills and you'll begin to hate them for needing them.

the very best you see in your future is surviving. that's what fibromyalgia is. your job is getting through the days of pain and exhaustion, the physical and mental detriments that come with it. your life is a fight, and you are so, so, so, so tired of fighting. you always, always, always feel you have no more fight left in you.



you're 21 years old and you fondly and bitterly remember a time (not too long ago) when you thought some things in life would just be givens; career, family, adventure, accomplishments.... health.

you're 21 years old and you learn that you get none of the above. you're too tired, you hurt too much, and this disease seems to only get worse... it seems to have taken everything from you

and then it takes some more.

You were the ocean
infinite in some ways
mysterious and dark, impossible to reach the bottom

Powerful, pushing me and shifting my weight from standing to floating

You were the ocean
large, expansive
But so soft, a carrying presence
I knew you would never set me down

That fateful day
I was standing on the shore, picking tiny shells out of the sand to give to you, lifting my skirt so as not to get it wet

I saw the wave growing in the distance, but I didn’t think to move
As it grew closer, I did not panic.
10 feet, 20 feet, 30 feet tall. A wall
and when your freezing cold wave crashed over me
I still didn’t think to move

You could never hurt me.

Under your abyss, I could see my red hair turn to kelp
Thirty feet long, rooted in the ground

I begged you to release me, swallowing salty seawater
But you held fast

You were so beautiful
you could never do a thing like this

I always thought you would be the ocean under my boat
The wind in my sails
The love in my heart


But I drowned that day


I am still trying to determine
If I will ever grow gills

Mold me a helm of platinum.
Plate my neck in ornate roses
and arc both ******* in tongues of steel.
Spill an hourglass of silver sheets
to silhouette each torso curve.
Sculpt iron vines over each hip.
Caress my keep in chastened press;
form gold like liquid down my legs.

Engrave a crest of two joined doves
upon my hexagonal shield.
String leather sheathes with your golden hair.
Equip a morning star with spires
that mock the dullness at your rest,
yet forge my sword of diamond strength
formidable as your excited state.

Look on me where I stand armored.
Embrace away my fancied suit.

Please…
lay me down, Love, gently Love,
and place a flower in my hair.

I sit here looking through my window
At the early morning mist and mizzle
My mind is still sluggish and half dreaming
Drifting through memories and images
Without purpose or reason
And from nowhere
I remember a night in the past
When I awoke crying a name
And my secret was betrayed to the moon
And the name was your's

                                               By Phil Roberts