They shaved my head and cut me open took my skull and my way of coping My life had changed in just a moment I can't decide but I might wish I hadn't done it. I can't play or practice I have to be careful. If I'm not cautious with my head I could instantly wind up dead. My headaches aren't gone and I'm still dizzy all you really took was half my aspirations. I hadn't much warning just a surprise. And when I could easily die every day is a compromise. More just had to be taken away because the last 13 surgeries hadn't changed my day to day. It's a brand new world I'm living in where all my dreams are limited and they're starting to run thin. so here you have me and I'm crying mercy.
six months ago I had a Chiari decompression on my skull. I finally have finished recovery. technically. But sill, my life is limited, and it always will be now. I can't get past that I'm 19 and I feel like I can't do anything. I know it will pass and I will get used to this and accept this with gratitude, but that day hasn't come yet /: