My body betrayed me in ways I never thought possible
I can’t eat, I can’t emote, I can’t exist
Not without itching, tingling, wheezing, gasping for air
I’m rapidly losing control over my life
My world was already so small—and now it’s getting smaller
The list of foods I can’t eat is growing as my will to keep going…shrinks
Why must struggles beget even more struggles?
Why can’t I be allowed to be happy?
Exist in a beautifully carefree manner?
My spirit screams to express but my body says no
You’re not allowed
All I can do is tearfully write my feelings on a page while I agonize at all I have lost and will lose
I am missing out on the human experience I crave
I just want to be well
I want to breathe easy
I want to be healed
Yet I am here, in my bubble, alone
Forever
This is a poem about MCAS. I’m becoming allergic to life more each day. I have to leave behind so much. I have to miss out on so much. It’s so painful to live this existence.