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Peter Hark Jan 2020
Oh wow lookie there!
What a marvelous creature

If you look closely over there you'll be able to see it
a wild hidden disability!

Usually they are invisible to the untrained eye
But I, Stene Irwiv will show you how you can sometimes spot them!

Now all of them look different, but here are a few examples.

See that buddy over there? I've been watching over this lad for a while now
Notice how he walks slowly almost like a waddle?
He also stops to rest more often than the usual guy
He's not lazy! just sore.
Make sure to be careful and don't touch him unexpectedly!
See my friend here has Fibromyalgia, it causes widespread chronic pain.
It can also cause migraines, mood swings, and memory issues
but remember, since these symptoms are usually invisible on the surface
this disability is often overlooked or even called fake by strangers,
but also doctors! ******!

This next one is a doozy
my mate right here looks pretty average on first glance,
but if you look closer you might be able to spot what makes her so special.
This lovely lady right here has Ehlers Danlos Syndrome.
Because of the defect in her collagen,
her skin and ligaments are unusually stretchy.
if you were to touch her skin you might feel that it is very soft and fragile
and when she stands you might see her knees and other joints bend back farther that usual.
She's not just 'double jointed' though,
because of the stretchy ligaments, she and others with EDS are at risk of joint dislocations and chronic pain everyday!
EDS doesn't just cause pain though,
it can also increases a person's risk of ***** rupture or heart problems!
Double ******!

Remember though, these disabilities can't always be seen
so don't judge people prematurely.
You see, the person you think is lazy for sitting in the handicapped seats on the bus,
or maybe the person parked in a handicapped spot who appears to be fine,
or even just the people walking down the street,
any one of them might have an invisible disability.
but just because they are invisible, that doesn't mean they aren't real.
I hope you all enjoyed the show.
I'm Stene Irwiv, and this has been Chronic Illness Hunter.
When I park in a disabled spot or go out in public wearing my braces, I feel like people look at me as if I'm a strange exotic creature. My lovely inspiration for this poem came from when I was watching old Steve Irwin documentaries while I was stuck in bed on a bad flare day.
'n lewe in konstruksie...
dis tog die mees logiese manier om dit te beskryf...
ons bou en bou en bou,
en toets dan die produk.

Maar aan die einde, as ons klaar gebou het...
wat is dan daarvan te kom.
                        'n Lee huis...
                                       'n stil pad...

en wat het ons van onself geleer?

En wat leer ons van die wereld en mense om ons
             , vasgevang in die stryd teen tyd...

niks nie.

Ons het net voor onself uitgekyk
                   na die vaal stene
                                   en die slukkerige sement.

Watter vreugde het dit vir ons gebring.

Niks nie.

Nee,
         ek weier.

Ons is tog hier geplaas met vrye wil.

En iewers langs die pad,
                                          raak almal die pad duister...
en word dan deur die samelewing verdoem.

Die mensdom besluit dan wat van hulle sal word...
In daardie oomblikke is God meer vergete
deur die skares wat saamdrom op die rand van die pad...
                                                                ­                                      die wat lag en vinger wys...
                                                                ­                                                      die wat klippe gooi,
                                                         as deur die wat die prentjie aanskou.

Soms kort ons 'n perspektief van uit die donker,
                          om die lig rerig te verstaan...

Soms moet ons eers die genadelose aanraking van die koue voel,
                           voordat ons die sagte streel van die son oor ons gesigte kan waardeur.

Daar le wysheid in die donker,
                                      want dit is in die donker waar jy aleen is,

                         met niemand om in jou oor te fluister wat reg of verkeerd is nie.

                                                                ­                                                      Net die wind om jou siel te sus,
                                                                ­                                               die stilte om jou uit te rus...

                                                 en niemand wat jou god kan wees
                                       of sy woorde
                                                          ­      en planne
                                                                ­                   vir jou kan uitmessel nie.

Die pad het die gevaar geraak.

Dis koud en korrupt.
                                     En ons is dankbaar,
         dat ons die kans gekry het om dit te sien,
terwyl ons stadig verswelg word deur die skadu's
                                                                ­                                             en wegsmelt in die donker...

want nou weet ons dat ons pyn maar net 'n gedeelte van die werklike hartseer was...

                                                               ­ ons is die gelukkiges...

en hulle loop op die pad na verdoemtenis
persefona Apr 2016
onda kada mislim o lepim a propalim secanjima,
kada ponekad sebi to dozvolim
najstrasnije se kaznim.
kidam i ljustim sebe razlozima
dopustam samo jednoznacnost.

onda kada mislim o njihovoj liniji
isprekidam je
tako su mi prazni
tako nedostizni
njihova linija obecanja, strahova, velikih saka i praznih stomaka
uzasava me.

onda pomislim  kod onih drugih mora da je bolje, toplije i neznije
mozda tamo more postoji

stene

istina


onda, opet setim se plavog vrtloga
onda, opet kaznim se

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