I went into work today,
straight away this boy wanted to play,
it brought a smile to my face,
I had only just walked into the place.
You need to get dressed first young man,
then we can make a plan.
So I helped him take a shower,
it only took us an hour.
He put on his favourite top,
and down the corridor he hopped.
Next thing he was lying on the floor,
he wasn't having fun any more.
I went and spoke to him to keep him carm,
I told him to tell it to go away, then it couldn't do him no harm.
his eyes finally focused on me,
and a little smile I could see.
Come on champ you wanted to play,
we can't do that if here we stay.
so he got to his feet,
whilst I thought of something as a treat.
how about we make a den?
then your can invite in your friends.
can we stay in for a snack?
I'm sure I can make some lunch packs.
We were just finishing the finally touch,
but today we weren't having much luck.
My little friend started to shake,
it made my heart ache.
This time it went on abit long,
and all his energy was gone.
so I helped him to bed
and got someone to give him some meds.
Just laying there so still,
I hated to see him so ill.
but a few hours later on
he was sitting up, singing a song.
I hated that I had to go home,
but I knew he wouldn't be alone.
just before I left,
this is what he said,
I'm sorry we didn't get to finish the game,
my illness is such a pain.
maybe another day,
longer ill be able to play.
This boy is amazing you see,
I don't thing I could be so strong if it happened to me.
He seizures are every day,
but not once have I heard him say.
That he isn't happy,
or that he's feeling ******,
he lives life to the full,
and gives everything he does he's all.