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19. Born out of love, build out of pain and heartache.

Poems

Matt Revans  Oct 2015
Autism
Matt Revans Oct 2015
My autism's a part of me,

But it is apart, you see.

...

Who are you?

With your ‘normal’ view.

Are you just one thing, or are you a person

With thoughts & feelings, that are your own unique version.

Preferences, ideas, talents, and dreams?

That are bound by senses that meet at their seams.

Are you fat, short sighted or visually impaired?

Are you ever wondering why I just stood and stared.

Those may be the things that I saw the first time I meet you,

But you’re more than just your ‘normal’ diagnosis…. True?

As an adult, you have control over how you’re defined.

Your normality means your perceptions are refined.

So why would you single out one characteristic of mine that you can make known.

As a child, I am still unfolding, I’m not fully grown.

Neither you nor I yet know of what I am capable.

If you think of me as just one thing, then one thing’s inescapable.

You run the danger of assuming I have no chance of achieving.

And my heightened senses know this, it’s only you you’re deceiving

For I am not endowed with any ordinary sense.

You need to know this before I commence.

You take for granted sight, sound, taste, touch and smell.

Never once realising that these things can be as painful as hell

For me.

You see.

My world often feels hostile, and makes me so fearful.

I may appear withdrawn or belligerent, whilst others are cheerful.

Or mean to you, or antagonistic,

Defending myself, then going ballistic.

You tell me we’re going on a trip to the shops

And out of the world my safety net instantly drops.

My hearing, you see, is hyper acute.

But I’m put in the car, though I loudly refute.

At the shops, walls of people jabber and whoop.

The loudspeaker booms and adds to the soup.

Music blares and lashes and whooshes.

Tills beep and cough, a coffee grinder swooshes.

The meat cutter screeches, a baby starts wailing,

I’m starting to malfunction and am rapidly flailing

As trolleys pass creaking, and fluorescent lights hum.

I’m starting to panic, but also turn numb.

My brain can’t filter the input, the voltage is massive

I’m in overload with no chance of staying passive.

My sense of smell is stratospheric.

That fish on the counter is NOT atmospheric.

The man in front hasn’t showered today,

That Stilton cheese – someone take it away!

A baby goes past, it’s ***** needs changing.

Things are going faster and turning deranging

They’re mopping up pickles on aisle two with some bleach and a rag.

My stomach is churning, and I’m starting to gag..

And there’s so much hitting my eyes!

This trip has turned into the world's worst surprise.

The fluorescent light

Is not only too bright,

it’s that flicker.

The space seems to be moving, getting quicker and quicker.

The pulsating light bounces off everything and distorts what I am seeing.

I don’t know what I’m doing, or saying, or being.

There are too many items for me to be able to focus.

The world starts to drain me of my internal locus.

My eyes try to compensate by tunnelling my vision

Fans on the ceiling, twist my senses into nuclear fission.

All this affects how I feel just standing there,

and I can’t even tell where my body is in space, do I care?

You’re yelling at me now, and shaking my shoulder

But the fiery fog is down and is starting to smoulder

It isn’t that I don’t want to hear your instruction.

I just can’t understand, due to mass self-destruction.

You're shouting now, but what does "£$%^&&% NOW! !£$%^&*" mean?

My senses will **** me in a collusion so obscene.

Once we’re back at the kids home, it all feels less absurd.

And now when you speak, I can hear every word.

Simple instructions, that I know off by heart.

And I cling onto these so I won’t fall apart.

You tell me what you want me to do next and I’m able to reply.

Now I’m happy and it’s easy for me to comply.

Now I’m OK and I’m running about

And performing my ritualised songs, which I shout.

Then a visitor grabs me saying, “Hold your horses, cowboy!” – This means danger!

I can’t stop the horses, I’m me, not the Lone Ranger!

And I’m thrown into panic when what you mean is, “Stop running.”

But I don’t know that! Those stampeding horses are coming!!

That’s my life, you see, it’s not “a piece of cake”

When there’s no dessert in sight and you’ve made a mistake.

When you say, “its pouring cats and dogs,” I see pets flooding from the sky.

Tell me, “It’s raining hard,” so I won’t fear the animals will die.

Puns, sarcasm and allusion

Simply generate confusion.

Tell me facts and keep things clear

So I can live, yet not in fear.

It’s hard for me to tell you what I need when my senses are reeling

When I don’t have a way to describe what I’m feeling.

I may be hungry, frustrated, frightened, or perplexed.

But I can’t find the words, and lash out, angry and vexed.

Be alert for my body language, or my gestures and obsessions

Then you’ll handle my feelings like your own treasured possessions.

Watch out for me compensating for not knowing the right word

By mimicking my favourite film star, or something just as absurd.

Rattling off words or whole scripts, which will leave you confounded

That I’ve memorised from Disney, because they make me feel grounded.

They may come from the TV, or speeches, or a book

And though they make people give a funny look

I just know that saying them gets me off the hook.

Show me, show me! I’m visual, you see.

And I’ll understand rather than you just telling me.

And be prepared to show countless times.

I’m listening, despite my ritualised rhymes.

Visual supports help me move through my day.

They relieve me of the stress and I feel OK.

I don’t have to remember what’s happening next

For I operate on a visual text.

This makes for smooth transitions in my life

And we’ll finally progress without anger or strife.

I need to see something to learn it, because spoken words are like steam to me;

They evaporate before my mind's eye, and are gone instantly,

Before I even have a chance to make sense of them,

They've died in the ether, leaving me in mayhem.

I don’t have instant-processing skills.

Instructions and information are my life giving pills

Images can stay in front of me for as long as I need,

and will be just the same in years, for they'll never recede.

Without visual help, I live the constant frustration

of knowing that I’m missing big blocks of information,

Not to mention falling short, by being a misfit

And I'm helpless to do anything about it.

Unlike other people, I'm unable to learn

If it's normal interaction for which you do yearn.

I’m constantly made to feel that I’m not good enough

And people are stern and people are tough.

They think I need taking in hand and need fixing.

Never knowing the world and my brain are tranfixing

I avoid trying any new things, for I'm sure I'll get 'dissed'

And another grown up will be angry and get 'real ******'.

But no matter how “constructive” you think you’re being.

Look for my strengths, though they're hard for the seeing.

There is more than one right way to do most things.

It may look like I don’t want to play with the other kids on the swings

But it may be that I simply do not know how to start

They just think I'm weird, and set me apart.

Teach me how to play with others.

Remove my autistic shrouded covers.

Encourage other children to invite me along.

They might learn something of value from my life's different song.

And rather than spend my day as separate, secluded.

I might show an ethereal delight at being included.

I do best in games that have a clear beginning and end.

Random play is something my fears won't transcend.

And just one other thing, a sort of confession

I cannot interpret a ****** expression

Or body language, or other peoples' emotion

So in group situations I'm resigned to demotion.

I want to learn, I want you to teach me.

Reach into my mind and help me to see.

If I laugh when Tommy falls off the climbing frame,

It’s that I don’t know what to say, nastiness isn't to blame

Talk to me about Tommy’s feelings and teach me to say,

“Are you hurt, Tommy, I'll get teacher, then you'll be okay?”

If you don't I'll meltdown or blow-up, and get in a stew

And this is a thousand times worse for me than for you.

For my mind will go into overload

My sense of equilibrium will start to off-road.

For I'm well past the limit of my social ability.

As those off road lights glare at my own disability.

If you can figure out why my meltdowns occur, they can be prevented

And my behaviours will abate, less frequently lamented.

Keep notes about me and a pattern may emerge.

As your understanding of me will gradually converge.

Remember that everything I do is a form of communication.

It tells you, when my words cannot, how I’m reacting to each situation.

My behavior may have a physical cause.

Think for a moment, just have a pause.

Food allergies and sleep problems can affect my behaviour.

Just look for signs, for you might be my Saviour.

Because I may not be able to tell you about these things.

That blunt my affect and cause my mood swings.

Throw away thoughts like, “If you would just—” and “Why can’t you—?”

You didn’t fulfill every expectation your parents had either, that's true.

And would you like to witness a constant rewind.

Of the traumatic deficits by which you're defined?

I didn’t choose to have autism.

Or to live with this division

Remember that it’s happening to me, not to you.

But without understanding, my chances remain few.

With love and support, my horizons are broader

But I can't live my life by other peoples order.

Patience. Patience. Patience, are the three words we need to live by

For my dreams to be reached, and my confidence fly.

View my autism as a different ability

Rather than as a freak show disability.

Look past what you may see as limitations and feel for my strength

I may not be good at eye contact or conversations of length

But have you noticed that I don’t lie, or cheat at a game

Or pass judgment on people, and make them to blame?

I rely on you, if you can make me your personal vocation

All that I might become won’t happen without you as my foundation.

Be my advocate, be my guide

Be my strength, stand at my side.

Love me for who I am, and not what you know

And we’ll see just how far I can go.

Matt Revans 2014
©Copyright
Another Graceful Mentor guides my Side
To ensure my Skills fly in Good Respect
Those Rivered Words; Service and Satisfy,
Two Stone Codes to keep Clients out of Debt
And fortunate I was to keep this New
Thanks to your Report of Knots I un-weave
Press well on Speed; But keep Quality true
To hear Smiling Faces before they leave
I'll keep my Silence; And Pray all goes well
As the Bond between in Profession last
A Basket I learned from your Talents sell
With hope that Demotion will come to pass.
All which I gathered, I'll keep in my Bank,
The worthy Deposit your Aid I thank.
jonchius Sep 2015
entering year 2000
rewinding vhs tape
installing napster client
anticipating victorious gore
bursting dot-com bubble
blocking tomorrow's nostalgia
commemorating festival tragedy
examining supersonic concorde
watching election coverage
recounting inconvenient truths
puzzling interface design
booing nuc-u-lar president

rising black monolith
editing non-linear encyclopedia
feeling inaugurally bushed
reliving century's dawn
unchanging state flag
processing royal massacre
escaping insane asylum
sensing impending collapse
perusing city guide
collapsing contemporary structures
initiating quixotic peacekeeping
ignoring conscription threats

entering year 2002
reporting unfortunate pearl
relaxing shotgun porch
exploding roadside bombs
addressing thousand followers
hugging financial meltdown
writing resembling skylines
shocking archipelagic bursts
processing theatrical disaster
tightening homeland security

entering year 2003
proliferating elegant telegnosis
rejecting freedom fries
blazing wartime trails
toppling dictatorial statue
unfurling "mission accomplished"
handling continental blackout
ejecting coronal masses

entering year 2004
flashing multiple sobriquets
populating dorm-roomy website
high-grossing aramaic movie
generating tunnel vision
rushing national anthem
parading goth athletes
letting games begin
accepting soviet passports
continuing obscure flumadiddle
lunar-eclipsing world series
two-terming republican regime
declining personality cult
glowing orange revolution
eroding periglacial drumlins
inundating lacustrine basins
exciting geomorphological processes
enduring tumultuous tsunami

entering year 2005
blasting "galvanize" repeatedly
unforgiving cyclonic scenario
printing controversial drawing
sketching cartoon prophet
overturning hurricane alphabet
rigging medal count
preparing new horizons
rejecting flash sites

entering year 2006
setting plutonian destination
synchronizing new horizons
sighting stellar foison
maintaining feudal system
emerging microblogging service
reading ancient tweets
rotating golden statue
mounting social debt
protesting planetary demotion
forecasting catastrophic recession
executing "innocent" dictator

entering year 2007
declining share prices
building ruby railroad
lifting presidential term-limits
perpetuating oil-rich dictatorships
falling interstate bridge
slugging giant bonds
clothing blackwater mercenaries
disappearing internet personalities
unforgiving writers strike

entering year 2008
stealing variable thunders
relaxing domain names
letting games continue
exploding sunrise propane
requesting birth certificate
electing another suit
disappointing orthodox republicans
microblogging maximal meltdown

entering year 2009
inaugurating new president
encountering bear markets
cackling risible laughter
dying pop king
deleting neolithic internet

entering year 2010
collapsing presidential palace
prospering cinematic avatar
pronouncing eyjafjallajökull effortlessly
"kettling riot police
flaming cop cruiser"
blasting text-based vuvuzelas
leaking diplomatic cables
fading pre-twitter memories
self-immolating street vendor

entering year 2011
"enervating nine-point quake
propagating harbor wave
inundating nuclear plant
irradiating unclear fates"
raging mid-eastern spring
throwing body asea
locating trojan asteroid
penetrating financial throughfare
resonating oral amplifier
blazing verdant material

entering year 2012
rising chubby dictator
gentrifying weird twitter
exploding next month
intriguing "fake" passport
proliferating single-hued avatars
surging sandy cyclone
inhabiting alternate universe
manipulating another election
rigging people's ballots
perpetuating manipulated world
fulfilling megalomaniac urges
surviving previous apocalypse
surviving another baktun

entering year 2013
descending rogue meteor
encoding festival weekend
obfuscating's very own
approving snow den
searching yaya island
soaking wet veld

entering year 2014
missing plane geometry?
annexing peninsular territory
printing powdered medication
forecasting meteoric boomtime
prevailing monochromatic identity
avoiding aviation accidents
determining auspicious date
revising deactivation plans
reliving years 2000-2014