All my prayers were answered
when my doctor finally wrote the
letter to the neurology team
this week after being rejected by them twice
in one year my persistence to get myself
feeling better is finally paying off
the optcians, pharmacy and adhd team
have all been equally amazing and have all
supported me as well as my family,
daughter and partner too through
these tough times.  
My pineal cyst symptoms
have been more extreme
in the last 9 months to the point
where I get migraines
most days, really sensitive
to lights in the room or outside
which can make my eye lids
spasm and my eyes will even burn a bit
even wearing light sensitive glasses
if sunlight enters them too which
is an horrible experience.  
I wear light sensitive glasses
to deal with these unpleasant
feelings; hoping to get some pain relief medication which will help treat the face, brain and eye pain's as this really really hell
I'm much more sensitive to smells
and even normal sounds can be more maginified
and intense which can overwhelms me
and trigger tremors or shaky hands
I often have to wear headphones just to alleviate the pain's
I get from the noise levels around me
and the constant tinnitus I experience in my ears a lot of the time.
I always hear a random humming and buzzing sound
it follows me around and don't always
hear too well when people are speaking
to me hoping to get an earing aid which will
help with this issue once I worked it all out
with the specialist team.

I also can not stand hot / cold weather
and my face and eyes will ache,  get brain
fog and feel a lot of pain through out the day;
I keep going with everything though and have
a very positive attitude through it all;
it won't beat me but I do experience some
good / bad days it makes my brain
feel constantly numb and just tired
from fragmented sleep which
I'm really hoping to sort
this all out  
its best to stay positive
and keep trying just hoping I don't have
to wait too much longer for my treatment.

I really don't want it to get any worst
as it makes my life much more difficult;
I know there isn't a cure
I want to do the best I can
for my little girl,
and get myself feeling better again
my prayers have finally been answered
and I'm happy there is some hope
and reason to smile  just hope I
don't have to wait for too long.