Nov 2020
Sun means a lot to me,
Sun might means a lot for many people like me.
Our day might start with sunlight landing on our sleepy face,
And we might consider the sun our personal fireplace.
But in this world among us live ,
Some people who have to give
The wonderful feeling of experiencing the warmth of sun,when winter is on the run ,
As xeroderma pigmentosum steals there freedom to go out in the sun.
They stay behind special windows, which acts like a cage,
From which they can barely see the brightness of the sun , for which they strive for most of their age .
As DNA once mutate does not fix easily in their body,
They are unable to enjoy the warmth of our energy producing celestial body.
There is no known cure for there disease yet,
So doctors advice them to stay away from the sun, if they don't want to regret.
Even the slightest ray of sunlight can take there lives,
Unlike us they cannot live a normal human life.
Sun will mean a lot to me,
Sun might will mean a lot to people like me,
We might cannot sacrifice our basic human rights.
But patients of xeroderma pigmentosum, with out being sure about their victory can only just fight for there basic human rights.
Sun might means a lot for many people like me.
Our day might start with sunlight landing on our sleepy face,
And we might consider the sun our personal fireplace.
But in this world among us live ,
Some people who have to give
The wonderful feeling of experiencing the warmth of sun,when winter is on the run ,
As xeroderma pigmentosum steals there freedom to go out in the sun.
They stay behind special windows, which acts like a cage,
From which they can barely see the brightness of the sun , for which they strive for most of their age .
As DNA once mutate does not fix easily in their body,
They are unable to enjoy the warmth of our energy producing celestial body.
There is no known cure for there disease yet,
So doctors advice them to stay away from the sun, if they don't want to regret.
Even the slightest ray of sunlight can take there lives,
Unlike us they cannot live a normal human life.
Sun will mean a lot to me,
Sun might will mean a lot to people like me,
We might cannot sacrifice our basic human rights.
But patients of xeroderma pigmentosum, with out being sure about their victory can only just fight for there basic human rights.
Xeroderma pigmentosum is a sun disease commonly known as XP this is a very rare disease in US . XP is genetic i.e. people are born with it , we cannot get XP unless we are born with it. As XP is not common I wrote this poem to make my readers conscious about a disease which snatches the freedom of a person to go out in the sun.
