#lymedisease
ID has lost her identity
There is no more sense of me.
The world's turned scary and dark
Once bright, now, not even a spark
Lyme seems to be the cause
My life interrupted, on full pause
Fear holds me prisoner all the time
Is it mental illness or is it Lyme
So many years so many tears
So many threats so many texts
Turn the light back on to my life
I've endured over 4 years of strife
God see me, release me, set me free
From pain and sameness beautiful tree
A professor's brain gone insane
It is cruel, ironic, and will not wane
I could never have envisioned this hell
A book to be written, stories to tell
Finally...committed, will be its name
Perhaps it is only myself I have to blame.
I don't want to die. I want to live.
There is little left for others to give.
It is up to me to reclaim an identity
Super ID crushed and I'll let it be.
Aug 11, 2020
Aug 11, 2020 at 11:41 PM UTC
I did
I think
But it's been years
Years
Years
When I was not
And I don't remember
quite
What being well
is like
I mean
I mean
I am always well
I am
Always moving
Because an object at rest-
I've said this already
So I'll rest when I'm dead
Or I'll die when I rest
And I'm not ready
yet
I haven't made my mark
yet
I haven't swelled my voice
With the chorus of those
who came before me
yet
I haven't heard that note
One note
In a symphony
The glorious harmony
I
Haven't drawn a breath
and
Heard the empty space
and
Felt the sharp ***** of awe
That the gap
Is for me to fill
Little me
Little
Gap
And that
I think
Holds me here
Roots my feet to the ground
To Earth
Because humans
Are delicate
It would not take so much
To flee this mortal form
But
I am not ready
It is not my time
I am secure
Knowing my days are numbered
Measured out
By One
Who does not lose count
Lose thought
Think
All in the wrong order
At all the times
Which are
Most inopportune
It is my greatest honor
It is my greatest humbling
And anyways
I am well
Well enough to sing
To dance
Well enough for joy
To light its fire
Bursting pyrotechnics
In my chest
Except
Of course
When I am not
Not when my thoughts
Take the wheel
And I am caught in loops
Loops
Loops
"Shape without form
Shade without color"
I drift
In monochromatic waves
Clinging to the memory
And hope of hues
Beyond my mind's walls
I drift
In soft piano melodies
And synesthesia winds my senses
In a great tangle
Melancholy tastes like apple
But un-achored
Only smells like dust
Looping and twirling in the breeze
Over the ocean
Invisible
Under the too-wide sky
Over the too-bright sea
Until it hits city
And the city
Brings it back down
Tears it into a million
Tiny
Fragments
They used to be it
They used to be whole
They were once
But now
Not
And just like that
The conclusion
Brings me down
With a jolt and a bump and a thud
Like a plane
Or the clanking chains
Of a rollarcoaster
My stomach is doing rollarcoaster loops
Loops
Loops
I used to be well-
(i've said that too)
-But sometimes
I am well
Now
And I forget
That with a breath
I can be
Not
It is terrifying
But I am not scared
You know
Part of life
Is living it
May 25, 2018
May 25, 2018 at 9:54 PM UTC
It lies there dormant at times
Waiting for a chance to escape
Patiently plotting what next to do
Knowing soon that I will break
Slowly it emerges from sleep
Flowing freely through my veins
Settling in to rest within me
It is whom I blame
It mocks me with every twist and turn
A Symbiotic relationship I wish not to have
Invading every fiber of my being
Making this once proud rebel a slave
No longer am I able to be
That strong person I was
In place now just a fragile shell
Who does nothing but withdraw
Maybe soon there will be a cure
For this evil that is within
Before my body is faded and dead
And I can regain my life again…
Jul 2, 2015
Jul 2, 2015 at 11:21 PM UTC