Birds chirp outside my window before the sun even appears
Interrupting my nightly rewind of 38 years
Or did I spend time in the future instead
With decisions not yet made, and words so far unsaid?
Slowly the fog drifts from my mind; my thoughts are no longer far
Wearily I rise from sleep, and grab a drinkless bar.
With a routine borne from endless practice, I move into my wheeled cage
Simultaneously what I need to survive, and a source of rage
Not due to the physical need; limits are never a shame
But because it puts me steps behind in the middle of life’s game
Some say I should be glad it is visible at first sight
With laws and support in place, I guess they may be right.
This topic feels conflicted as verses leave my head
Like following a path that someone else led
Supportive family and friends, a job, and outside interests too
All of these are mine, and yet there feels much more to do
I know myself well enough that part of my drive
Involves shutting people up and continuing to strive
Shattering expectations has always been fun
Now it’s more like a chore that never gets done
A clock in my head that just won’t stop ticking
Decisions seem to just get made without anyone picking
Days go by faster than the roadrunner’s blur
And yet things seem to end up back where they were
Work always goes well; at least by what’s in writing
They don’t have a front row seat when my head and heart are fighting
Feeling like I must always be “on;” a perpetual switch
Wishing more people knew I can truly be a son of a *****
That may seem like an odd thing to say
But just stop for a minute and see things my way.
Can’t drive on my own, dress or shower without an aide
Nobody even considers that I want to get laid.
“You think about *** they ask in shock
As if not walking means I don’t have a ****
The confusion all across their face burns me to my core
And gets me enraged enough to go hire a *****
I have no shame for this hope; though some would say I must
The only harm is not acknowledging that everyone has lust
I’m TIRED of feeling like these impulses have to hide
I just can’t find someone crazy enough to take the ride
In my darkest moments, paying seems the only way
I watch, we ***** and they don’t get to stay
But my thinking head knows that won’t solve the issue
So I guess I’m still stuck cleaning up with a tissue
“Don’t try so hard,” well-meaning people say. “It will happen when it’s Fate.”
Hard to believe when you can’t even get a date.
Single women say they trust me, can tell any secret, and know I'll be there
So why the hell do they disappear without a care?
“You give such great advice and always know what to do.
I wish my boyfriend was more like you.”
Well, he could be, don’t you realize?
Get your head out of the clouds, and stop believing his lies!
Another one starts with “My family doesn’t even know this; you’re the only one I’ve told.”
I thank her for trusting me; the move was truly bold.
Down the line, I ask if one day sparks could fly,
“Nope, I’ll never see you that way, Goodbye!”
It’s not just about the *** either; that isn’t quite right.
Sharing hopes, dreams, fears, and laying together at night
No matter what obstacles or fortunes lie ahead
Not snapping out of a dream on one side of an empty bed
This isn’t depression, although I understand the concern
Just endless frustration wondering when will I learn
Actions don’t speak louder than words; they all have the same pitch
Why does the story ALWAYS end with me feeling like a *****
Even six year old nieces get in on the act
Asking when I will make the lifelong pact
She doesn’t even care about gender; it could be the same
Unless of course, I want to hear a baby cry out his daddy’s name
Children has always been a true lifelong dream
But I’m a few steps behind and time is short it seems
At least my brother has a son to carry on our line
I know the future isn’t written, but give me SOME ******* sign!
Would I even be good at it? Could I raise them well?
Who knows the kind of lives they’d lead, or stories they could tell?
I can’t say this for certain without a crystal ball
So instead I’ll be present for everyone here now, and help them through it all.
It may seem like these are things a true “man” shouldn’t say
And I admit to thinking the same a few times, even still today
After all, can’t do home improvements, fix cars, or plant a stupid tree
What on earth would any real woman have to do with me?
THAT’S the worst part of being in a chair
It allows you to think that no one else will truly care
Or that deepest dreams should remain hidden for no one else to see
Because, after all, you have a disability.
Sometimes these thoughts go too deep in my brain
Just gaining speed in my life like a runaway train
And I try to breathe slowly, stop and look around
Because of treasures I have already found.
The only person who will read these lines; “best friend” is WAY too weak a word
Family in all but blood; she urged my voice to be heard
Put out her hand, shared my laughter, dried some tears
Without question, my best decision these last five years.
Parents who drive me insane and often make me scream
But at the end of the day, we’re all on the same team
A brother and sister who tortured, teased and played along
Because in the end, bonds forged are lifelong
Nieces and nephews I could not love more if they were my own
Relatives whose love is not only stated but truly shown
An education with two degrees no one thought I could achieve
Even though they do not mean hard times and troubles will leave
Music and DVDs stacked from wall to wall
Even though I’ll never have time to play them all
A sense of humor that passes most people right on by
Maybe they’ll see me one day, stop in, and wonder why
As night falls once more outside and the page gets ready to turn
I can’t help but wonder what next lesson I will learn
Will it cause happiness? Sadness? Surprise? Fortune? Alarm?
Will I be able to keep the peace or have a desire to cause harm?
Do I have the skills necessary to keep on fanning the fire?
Without feeling like I’m walking a tightrope wire?
It’s like telling one last joke no one’s ever heard before
Will they boo me offstage, or stand up for more?
As I look back through my life, regrets seemingly zoom by at great speed
Ten years wasted on the wrong girl, not taking charge when I need
More independence than I’ve ever had before
But not enough courage to leave my parent’s front door
How will I explain these questions to people in my life?
What will potential girlfriends think? Or (God forbid) a wife?
There are times when these thoughts fill me with physical pain
And endless tears slide off my face like nonstop torrential rain
All these endless riddles without answers in sight
Life’s milestones like road signs passing in the night
A sense of unease and worry permeates my head
Still, only one option open, full speed ahead
There’s nowhere left to run, nowhere left to hide
Just gotta have the right people standing at my side
And no matter what today’s outcome, draw, lose or win
They’ll help me get up tomorrow and do it all again
Dec 27, 2018
Dec 27, 2018 at 9:52 AM UTC
Birds chirp outside my window before the sun even appears
Interrupting my nightly rewind of 38 years
Or did I spend time in the future instead
With decisions not yet made, and words so far unsaid?
Slowly the fog drifts from my mind; my thoughts are no longer far
Wearily I rise from sleep, and grab a drinkless bar.
With a routine borne from endless practice, I move into my wheeled cage
Simultaneously what I need to survive, and a source of rage
Not due to the physical need; limits are never a shame
But because it puts me steps behind in the middle of life’s game
Some say I should be glad it is visible at first sight
With laws and support in place, I guess they may be right.
This topic feels conflicted as verses leave my head
Like following a path that someone else led
Supportive family and friends, a job, and outside interests too
All of these are mine, and yet there feels much more to do
I know myself well enough that part of my drive
Involves shutting people up and continuing to strive
Shattering expectations has always been fun
Now it’s more like a chore that never gets done
A clock in my head that just won’t stop ticking
Decisions seem to just get made without anyone picking
Days go by faster than the roadrunner’s blur
And yet things seem to end up back where they were
Work always goes well; at least by what’s in writing
They don’t have a front row seat when my head and heart are fighting
Feeling like I must always be “on;” a perpetual switch
Wishing more people knew I can truly be a son of a *****
That may seem like an odd thing to say
But just stop for a minute and see things my way.
Can’t drive on my own, dress or shower without an aide
Nobody even considers that I want to get laid.
“You think about *** they ask in shock
As if not walking means I don’t have a ****
The confusion all across their face burns me to my core
And gets me enraged enough to go hire a *****
I have no shame for this hope; though some would say I must
The only harm is not acknowledging that everyone has lust
I’m TIRED of feeling like these impulses have to hide
I just can’t find someone crazy enough to take the ride
In my darkest moments, paying seems the only way
I watch, we ***** and they don’t get to stay
But my thinking head knows that won’t solve the issue
So I guess I’m still stuck cleaning up with a tissue
“Don’t try so hard,” well-meaning people say. “It will happen when it’s Fate.”
Hard to believe when you can’t even get a date.
Single women say they trust me, can tell any secret, and know I'll be there
So why the hell do they disappear without a care?
“You give such great advice and always know what to do.
I wish my boyfriend was more like you.”
Well, he could be, don’t you realize?
Get your head out of the clouds, and stop believing his lies!
Another one starts with “My family doesn’t even know this; you’re the only one I’ve told.”
I thank her for trusting me; the move was truly bold.
Down the line, I ask if one day sparks could fly,
“Nope, I’ll never see you that way, Goodbye!”
It’s not just about the *** either; that isn’t quite right.
Sharing hopes, dreams, fears, and laying together at night
No matter what obstacles or fortunes lie ahead
Not snapping out of a dream on one side of an empty bed
This isn’t depression, although I understand the concern
Just endless frustration wondering when will I learn
Actions don’t speak louder than words; they all have the same pitch
Why does the story ALWAYS end with me feeling like a *****
Even six year old nieces get in on the act
Asking when I will make the lifelong pact
She doesn’t even care about gender; it could be the same
Unless of course, I want to hear a baby cry out his daddy’s name
Children has always been a true lifelong dream
But I’m a few steps behind and time is short it seems
At least my brother has a son to carry on our line
I know the future isn’t written, but give me SOME ******* sign!
Would I even be good at it? Could I raise them well?
Who knows the kind of lives they’d lead, or stories they could tell?
I can’t say this for certain without a crystal ball
So instead I’ll be present for everyone here now, and help them through it all.
It may seem like these are things a true “man” shouldn’t say
And I admit to thinking the same a few times, even still today
After all, can’t do home improvements, fix cars, or plant a stupid tree
What on earth would any real woman have to do with me?
THAT’S the worst part of being in a chair
It allows you to think that no one else will truly care
Or that deepest dreams should remain hidden for no one else to see
Because, after all, you have a disability.
Sometimes these thoughts go too deep in my brain
Just gaining speed in my life like a runaway train
And I try to breathe slowly, stop and look around
Because of treasures I have already found.
The only person who will read these lines; “best friend” is WAY too weak a word
Family in all but blood; she urged my voice to be heard
Put out her hand, shared my laughter, dried some tears
Without question, my best decision these last five years.
Parents who drive me insane and often make me scream
But at the end of the day, we’re all on the same team
A brother and sister who tortured, teased and played along
Because in the end, bonds forged are lifelong
Nieces and nephews I could not love more if they were my own
Relatives whose love is not only stated but truly shown
An education with two degrees no one thought I could achieve
Even though they do not mean hard times and troubles will leave
Music and DVDs stacked from wall to wall
Even though I’ll never have time to play them all
A sense of humor that passes most people right on by
Maybe they’ll see me one day, stop in, and wonder why
As night falls once more outside and the page gets ready to turn
I can’t help but wonder what next lesson I will learn
Will it cause happiness? Sadness? Surprise? Fortune? Alarm?
Will I be able to keep the peace or have a desire to cause harm?
Do I have the skills necessary to keep on fanning the fire?
Without feeling like I’m walking a tightrope wire?
It’s like telling one last joke no one’s ever heard before
Will they boo me offstage, or stand up for more?
As I look back through my life, regrets seemingly zoom by at great speed
Ten years wasted on the wrong girl, not taking charge when I need
More independence than I’ve ever had before
But not enough courage to leave my parent’s front door
How will I explain these questions to people in my life?
What will potential girlfriends think? Or (God forbid) a wife?
There are times when these thoughts fill me with physical pain
And endless tears slide off my face like nonstop torrential rain
All these endless riddles without answers in sight
Life’s milestones like road signs passing in the night
A sense of unease and worry permeates my head
Still, only one option open, full speed ahead
There’s nowhere left to run, nowhere left to hide
Just gotta have the right people standing at my side
And no matter what today’s outcome, draw, lose or win
They’ll help me get up tomorrow and do it all again
Reposting this w/ minor changes from original version. The "only person who will ever read these lines" convinced me to share this, so here it is.