"ehlers" poems
Longing for clouds in shallow ground.
To go back to the place i was found.
The whispers of wind crossing my breath.
In every instant I can see the clocks turn.
Have i come to myself to learn?
In these times of cloudy days iv learned to frown.
Become a clown...
Cover my face...
Live in secret....
In a nightmarish place.
Its all i can do to survive in this space
There is no grace in this empty place
No space.....
No space at all....
In this empty place.
Looking back threw the pages I awaken the memory.
I live in my thoughts in an enigmatic place.
Not clear where the others are.
Its all i can do to survive in this...
There is no space in this empty place.
No space....
No space at all....
In this empty space.
In dream my reality is delusion...
In walking my delusions are dream.
So cold of dreams I welcome to finally fill.
The chill has become so sharp I cant take this part.
Its all i can do to survive in this.....
There is no space in this empty place.
No space.......
No space at all......
In this empty space.
Have i come to myself to learn?
I have to face.......
that someone else needs to fill that space.
No space......
No space......
In the empty space.
Not clear where the others are..... I have left that place.
Left that place......
Left that place....
That painful place.
Clouds in shallow grounds.
*Living with Chiari Malformation, Ehlers-Danlos syndrome (EDS) and Dysautonomia
Sep 26, 2014
Sep 26, 2014 at 9:40 AM UTC
Oh wow lookie there!
What a marvelous creature
If you look closely over there you'll be able to see it
a wild hidden disability!
Usually they are invisible to the untrained eye
But I, Stene Irwiv will show you how you can sometimes spot them!
Now all of them look different, but here are a few examples.
See that buddy over there? I've been watching over this lad for a while now
Notice how he walks slowly almost like a waddle?
He also stops to rest more often than the usual guy
He's not lazy! just sore.
Make sure to be careful and don't touch him unexpectedly!
See my friend here has Fibromyalgia, it causes widespread chronic pain.
It can also cause migraines, mood swings, and memory issues
but remember, since these symptoms are usually invisible on the surface
this disability is often overlooked or even called fake by strangers,
but also doctors! ******
This next one is a doozy
my mate right here looks pretty average on first glance,
but if you look closer you might be able to spot what makes her so special.
This lovely lady right here has Ehlers Danlos Syndrome.
Because of the defect in her collagen,
her skin and ligaments are unusually stretchy.
if you were to touch her skin you might feel that it is very soft and fragile
and when she stands you might see her knees and other joints bend back farther that usual.
She's not just 'double jointed' though,
because of the stretchy ligaments, she and others with EDS are at risk of joint dislocations and chronic pain everyday!
EDS doesn't just cause pain though,
it can also increases a person's risk of ***** rupture or heart problems!
Double ******
Remember though, these disabilities can't always be seen
so don't judge people prematurely.
You see, the person you think is lazy for sitting in the handicapped seats on the bus,
or maybe the person parked in a handicapped spot who appears to be fine,
or even just the people walking down the street,
any one of them might have an invisible disability.
but just because they are invisible, that doesn't mean they aren't real.
I hope you all enjoyed the show.
I'm Stene Irwiv, and this has been Chronic Illness Hunter.
Jan 7, 2020
Jan 7, 2020 at 12:29 PM UTC
Slipping and falling
apart
Brittle and frail
bones
Can I return this vessel?
I need to go home.
-elb-
Apr 23, 2019
Apr 23, 2019 at 3:46 PM UTC