#invisibleillness
I feel as if my head is sliding off my neck like ice cream melting down the cone. I am a witch melting, shrinking smaller as my spine stacks horizontally like shiplap. My body has been refurbished into a pinball machine. Something so tiny as a silver ball destroys so much. It bullets through my body, shooting off like Cuban missiles. I feel the turmoil and chaos seeping through the gutters of this old home of bones. It's like spilled oil sludging through my blood vessels or rats scattering through a sewer, nibbling and feasting away on these muscles of mine until they are frayed like gnawed-on cable wires. At odd hours of the night when time is propelled by the safe travels of breath (that weave in and out like Victorians at a ball) from sleepy children who have yet been touched by monsters or nymphs, whereas each of my breaths steer Odysseus's weather-beaten boat through ten years of treachery. My heavy, melting head slowly sloping like clay off a bust makes its home on my dingy pillow as I lay on a prison bed with cold shackles around my ankles that make my bones shatter into a mosaic as if that could shrink my ankles so I can slip out. I feel like a chained hawk at these hours of the night when I just want to fly until I screech to a halt and flail over the cliff that waterfalls into the ends of the universe. I'd be reluctant at first, perhaps, but what other escape does one have other than to make an autopsist's Y-incision on one's body, then slip out like a hermit crab freeing himself from his heavy shell? Embarking onto a new dimension where there's hope for a radical swap of atoms that don't shape a crippled, deteriorating human is the only choice when you want to live a life other than what you were cursed with. May we then find peace and live as naked souls bearing no heavy shells.
Jul 7, 2017
Jul 7, 2017 at 4:53 AM UTC
Every inch of my body is screaming, blazed with fire
There's lightning between my shoulder blades
Rain dripping from my dewy greens
And electricity weaving between my tendons
There is a chainsaw cutting my bones
There are needles piercing through my chest
There is lava rushing through my veins
There is a hurricane in my head
I can feel my cells shrinking
I can feel my branches breaking
I can feel my leaves crumbling
Everything hurts and there is no remedy
This is the life of inevitable misery
May 22, 2017
May 22, 2017 at 7:26 AM UTC
Sometimes I believe my body is cursed
When I am burdened with all this pain
Wearing my disability like a bright, red stain
I think ahead to many years when it’ll be worse
When I can’t pick up a pen or unbutton my shirt
Or finish school or start a career
When more and more limitations start to appear
Sometimes I believe my body is cursed
Sep 15, 2018
Sep 15, 2018 at 10:28 PM UTC
My hands are shaking
My heart is racing
My feet are pacing
They think I'm faking
My bones turn to stone
It's all I've ever known
My muscles atrophy
Pain got the best of me
It's invisible and deceitful
Failures made me cynical
Solutions are only temporary
This body of mine is the enemy
Inflammation spreads like wildfire
I'm tired of being so tired
Nothing stops the torture, but
I'm fighting like a soldier
My body rebels
It is a prison cell
Trapped in my own hell
Gunshots fire inside
I really have tried
Oct 19, 2018
Oct 19, 2018 at 3:30 PM UTC
When I was 15 I decided that dying was better than not knowing
I sat in the doctors offices
Not caring what they found
Just praying they found something
Something that would prove I wasn’t crazy
That it wasn’t in my head
Something that would make people believe me
Believe my pain
Praying that they wouldn’t congratulate me for being healthy
Not because i wanted to be sick but because I was sick and no one believed me
May 4, 2024
May 4, 2024 at 5:51 PM UTC
She came to me with wet cheeks,
Told me about her fever—
How it came at midnight,
How it shook her like a leaf,
How no one understood.
I nodded.
I understood.
She spoke of thermometers and tablets,
Of worries that kept her awake,
Of how hard it is to be alone when you're sick.
Her hands moved as she spoke,
Tracing circles in the air,
Drawing the shape of her suffering
So I could see it clearly.
I saw it.
What she didn't see
Was the cancer sleeping in my bones,
The quiet war inside my chest,
The way I measure my life
In small things now—
Morning light, birdsong,
One more day.
---
She said, "You're so strong.
You always listen.
You never complain about your own problems."
And I smiled,
Because what else can you do
When the weight you carry
Is too heavy for words?
---
Here is what I have learned:
Small pain cries.
Big pain sits.
Medium pain finds a friend.
But the pain that will end you—
That pain makes you a friend
To everyone else's pain.
She will remember this day
As the time I held her hand
While she was sick.
She will tell others,
"He was there for me."
And I will remember
That for one hour
I forgot my own dying
By holding someone else's living.
---
Sometimes I wonder:
If my cancer had a voice,
What would it say?
Would it scream?
Would it beg?
Would it shake people like she did?
Or would it sit quietly too,
Knowing that the world
Can only carry
So much sorrow?
---
Tonight she is home,
Probably sleeping,
Her fever gone by morning.
Tonight I am here,
Counting heartbeats,
Wondering how many are left,
Holding my own hand
Because no one else knows
It needs holding.
---
This is not a complaint.
This is just how it is.
Some people cry in public
Because they can.
Some people cry in private
Because they must.
And some people—
Some people spend their last days
Being soft places
For others to fall.
---
If you read this
And remember someone
Who listened to your pain
But never shared their own—
Go back.
Ask again.
Look closer.
Because the quietest ones
Are usually the ones
Carrying the most.
And sometimes,
In their silence,
They are screaming.
Mar 12
Mar 12, 2026 at 8:46 PM UTC
Here stands a man
A shadow of himself
Burdened by guilt
And failing health
Yet on the outside
You would fail to see
The trauma and pain
That resides within me
My apparent smile
Is perceived as joy
A simple disguise
I like to employ
My social disdain
Is seen in reflection
Yet...I masquerade
To avoid your attention
But as time passes by
The cracks, they appear
Leaking my soul
Through a solitary tear
Keeping a distance
Is the only way
To stop the trauma
Releasing today
Feb 28, 2017
Feb 28, 2017 at 3:41 AM UTC
‘it could be worse’ is a foolish expression
it brings no peace of mind
it’s just dismisses my issues
makes me feel small inside
my pain and suffering is real
so please don’t undermine
i’d rather hear it could be better
or stay quiet this time
Apr 5, 2018
Apr 5, 2018 at 11:59 PM UTC
I don’t know how to write.
I have no finesse, I don’t understand the rules
I’m pretty sure I used that comma wrong.
I never amounted to anything.
I don’t know… no I know my being too self aware put me here.
There’s something about walking a line that keeps you balanced but I tipped to far over to one side.
My mind is going.
I can feel it.
I’m not sure if I detached too hard or if my mind is just really giving up.
My mind feels silent and noisy all at once.
I know I’m confused but I don’t want to take the time to figure it out.
Am I an imposter? Is any of this real?
Why do I feel like I am floating but not in a good way.
Is there even a good way to float.
I feel high even when I am not.
I have so much to say but no voice.
Even if I had something to say is it important.
Is it the sickness I now carry?
Is it eating away at my brain?
My motor function skills are loose and unsure.
I used to be so confident and steady fast in these things.
Is this man made or has it always been around:
Am I over diagnosed?
Is it this or is it that?
Is it still too taboo to talk about?
Does my anxiety and fibro make you uncomfortable?
That’s funny because it REALLY makes me uncomfortable.
Depression is real.
Anxiety is real.
It’s all real.
Can’t be explained only experienced.
Maybe you don’t like it.
Maybe it’s too negative.
Well it’s my life.
It’s my reality.
I’m not sorry if it interrupts your day just block me.
Where is my brain.
It’s almost gone.
Feb 27, 2025
Feb 27, 2025 at 9:53 PM UTC