#als - Hello Poetry

It's when tragedy hits that we feel the smallest. I feel like I can't help, like no matter what I do, I won't make a difference to the cause. You're resilience and strength has inspired me the years that I have had the pleasure to know you. And now... Now there is this plague that is draining you and I can't change it or help it. Your family has fought so many battles already. I have never met such a strong bunch. And yet, here they are, having to tackle ALS too. Such a difficult thing. Something that has no cure or fix or remedy. That's the funny thing about humans. We don't realize what it's like to not have control until we don't. How incredibly painful it must be to look at your hands, wanting to move them and nothing happens. I put myself in your place, in your shoes and I am just a rock at the deepest darkest corner of the ocean, covered in algae and sand. I am motionless. Much like you will be for the rest of your life, however long we get to have you for. I am flooded with the emotions and heart break. We have no control. We have no cure. We have no hope. I want to muster all the hope and prayers I possibly can but I am just struck by the heart ache. I am weighed down by the thought of a world without you. I am scattered and crushed. This entire time I have been saying nothing but "I" statements and how I feel and how I am. But this isn't about me and how heart broken I am... It's about you The you who has been a pillar of love and strength to his family The you who held his wife's hand as she battled cancer The you who celebrated gleefully the 10 year anniversary of her remission The you who lost loved ones to other dreadful diseases The you who donated his time to the arts and the education system The you who showed people how to think creatively The you who raised three beautiful children The you whose daughter is getting married this year The you who won't be able to walk her down the aisle The you gave and gave and gave until you actually couldn't walk anymore This is all about you. The love that is being shown is to you. The tears that are being shed are for you. The hearts that are breaking, break for you. The minds kept up late at night writing frantically to ease the fears are for you. You are the center of this, our one priority. Please, please let the prayers being poured out for you right now bring healing, bring peace and bring a miracle to you. Life would not be the same without you and you need to know that.

0

Oct 9, 2018

Oct 9, 2018 at 11:50 PM UTC

RestlessSoul

This is for You

It's when tragedy hits that we feel the smallest. I feel like I can't help, like no matter what I do, I won't make a difference to the cause. You're resilience and strength has inspired me the years that I have had the pleasure to know you. And now... Now there is this plague that is draining you and I can't change it or help it. Your family has fought so many battles already. I have never met such a strong bunch. And yet, here they are, having to tackle ALS too. Such a difficult thing. Something that has no cure or fix or remedy. That's the funny thing about humans. We don't realize what it's like to not have control until we don't. How incredibly painful it must be to look at your hands, wanting to move them and nothing happens. I put myself in your place, in your shoes and I am just a rock at the deepest darkest corner of the ocean, covered in algae and sand. I am motionless. Much like you will be for the rest of your life, however long we get to have you for. I am flooded with the emotions and heart break. We have no control. We have no cure. We have no hope. I want to muster all the hope and prayers I possibly can but I am just struck by the heart ache. I am weighed down by the thought of a world without you. I am scattered and crushed. This entire time I have been saying nothing but "I" statements and how I feel and how I am. But this isn't about me and how heart broken I am... It's about you The you who has been a pillar of love and strength to his family The you who held his wife's hand as she battled cancer The you who celebrated gleefully the 10 year anniversary of her remission The you who lost loved ones to other dreadful diseases The you who donated his time to the arts and the education system The you who showed people how to think creatively The you who raised three beautiful children The you whose daughter is getting married this year The you who won't be able to walk her down the aisle The you gave and gave and gave until you actually couldn't walk anymore This is all about you. The love that is being shown is to you. The tears that are being shed are for you. The hearts that are breaking, break for you. The minds kept up late at night writing frantically to ease the fears are for you. You are the center of this, our one priority. Please, please let the prayers being poured out for you right now bring healing, bring peace and bring a miracle to you. Life would not be the same without you and you need to know that.

25

I don't want anything from you. I know that it sometimes seems like all I do is use you. I'm sorry. I'm so, so sorry. You're so much more to me than that. You raised me, for god's sake. No one could ever replace you. I need you so much, and I'm so scared that I'm going to lose you. The doctors can't get it right, and it keeps getting worse. We fight all the time but I can't live without you. I'm scared that those could've been the last words that I said. I know I went too far, and I can't go back. I can't apologize my way out of this one. You think that I want to replace you. I know that I act like I do. I love you so much. I'm sorry. I rarely cry. I am now. Please.

0

Apr 17, 2018

Apr 17, 2018 at 2:43 PM UTC

adrianaa

ALS can't have everything

I don't want anything from you. I know that it sometimes seems like all I do is use you. I'm sorry. I'm so, so sorry. You're so much more to me than that. You raised me, for god's sake. No one could ever replace you. I need you so much, and I'm so scared that I'm going to lose you. The doctors can't get it right, and it keeps getting worse. We fight all the time but I can't live without you. I'm scared that those could've been the last words that I said. I know I went too far, and I can't go back. I can't apologize my way out of this one. You think that I want to replace you. I know that I act like I do. I love you so much. I'm sorry. I rarely cry. I am now. Please.

19

I can't remember when I asked you to be mine I have lost that memory Somewhere in my mind I can't remember when You said to me "I do" I have lost that memory It's only known by you I can't remember things I'm always at a loss I have lost those memories But, I don't know at what cost I can't remember when I last said "I love you" I have lost that memory Each day is all brand new I can not remember who I am or who you are I look up into the sky, and can't wish on a star I know that I once loved you, but my mind won't go that far I don't know who I am or who you are

0

Jul 5, 2015

Jul 5, 2015 at 8:00 PM UTC

roger-turner

I can't remember when

I can't remember when I asked you to be mine I have lost that memory Somewhere in my mind I can't remember when You said to me "I do" I have lost that memory It's only known by you I can't remember things I'm always at a loss I have lost those memories But, I don't know at what cost I can't remember when I last said "I love you" I have lost that memory Each day is all brand new I can not remember who I am or who you are I look up into the sky, and can't wish on a star I know that I once loved you, but my mind won't go that far I don't know who I am or who you are

20

Rage Against the dying light Stand strong please Grip with all your might Do not leave us I hear Gods plan I will save you I promise I can.

0

Jun 18, 2015

Jun 18, 2015 at 11:39 PM UTC

Lithium

Ginny

Rage Against the dying light Stand strong please Grip with all your might Do not leave us I hear Gods plan I will save you I promise I can.

7

Ich will keine Ausreden brauchen zu bleiben oder gehen; ich will nur die Fähigkeit haben zu bleiben oder gehen als es mir beliebt. - I don't want to need Excuses to stay or go; I just want to have the Ability to stay or go as it pleases me.

0

Apr 26, 2014

Apr 26, 2014 at 9:56 AM UTC

Anubis-the-Philosomancer

Als es mir beliebt

Ich will keine Ausreden brauchen zu bleiben oder gehen; ich will nur die Fähigkeit haben zu bleiben oder gehen als es mir beliebt. - I don't want to need Excuses to stay or go; I just want to have the Ability to stay or go as it pleases me.

9