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There is a silence now that you have gone Somewhere - who knows where? A silence of your suffering, your laughter, Your excitement, your enjoyment of food. A silence of your telephone calls, our lunches, Your family get togethers, the Christmas puddings. A silence of birthday cards, Sunday roasts, Shopping trips, seaside walks and ice cream. A silence filled with my children's laughter, Summer picnic days and your flower garden. A silence of your dementia voice, muddled And forgetful in your inhabited, twilight world. A silence of your tears and requests to go home To safety and your memories of a past busy life. A silence now that you are gone which I fill with The voice you gave us to fight on your behalf, That speaks with truth and grief and sadness Screaming for your help, care and support. There is a silence now that you have gone It fills the deaf ears of those who won't hear Your sorrow and our pain, who dismiss your Diagnosis and replace it with a list of lesser Tick boxes, low scores and minor symptoms. A silence that is full of blood transfusions, Infections, falls and fainting and fevers, A silence that gave you leukaemia and took Away your life, your heart and soul and being. A silence that I promise to break very soon For your silent voice needs to be loudly heard So we can all rest in quiet, everlasting peace Knowing you're protected by God's 'Continuing Care' God Bless Auntie Joan x
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Oct 17, 2014
Oct 17, 2014 at 6:31 PM UTC
The 'Continuing Care' Silence
There is a silence now that you have gone Somewhere - who knows where? A silence of your suffering, your laughter, Your excitement, your enjoyment of food. A silence of your telephone calls, our lunches, Your family get togethers, the Christmas puddings. A silence of birthday cards, Sunday roasts, Shopping trips, seaside walks and ice cream. A silence filled with my children's laughter, Summer picnic days and your flower garden. A silence of your dementia voice, muddled And forgetful in your inhabited, twilight world. A silence of your tears and requests to go home To safety and your memories of a past busy life. A silence now that you are gone which I fill with The voice you gave us to fight on your behalf, That speaks with truth and grief and sadness Screaming for your help, care and support. There is a silence now that you have gone It fills the deaf ears of those who won't hear Your sorrow and our pain, who dismiss your Diagnosis and replace it with a list of lesser Tick boxes, low scores and minor symptoms. A silence that is full of blood transfusions, Infections, falls and fainting and fevers, A silence that gave you leukaemia and took Away your life, your heart and soul and being. A silence that I promise to break very soon For your silent voice needs to be loudly heard So we can all rest in quiet, everlasting peace Knowing you're protected by God's 'Continuing Care' God Bless Auntie Joan x
My battle to get my Aunt 'Continuing Care Funding', she died of terminal leukaemia 3 years ago and I am still fighting the NHS.
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Oct 17, 2014
Oct 17, 2014 at 6:31 PM UTC
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