We talk in spoons. It’s an alchemy of sorts,
though we don’t seek gold or eternal youth.
A whole world of research says this curse is real,
yet Medicine has Science bound and starved.
We resort to picking at threads of work that we find,
weave from it our spells and our hope.
Pin to it her everyday dreams. And though
they are flimsy, her dreams are beautiful simplicity:
A five minute walk, or fifteen sat on the beach. A trip out, but maybe stay in the car. Ten minutes looking at clothes online, or coming downstairs if windows are shut and we close the blinds.
It is all connected, strung together like beads.
If she showers today, she can’t go for a walk ‘til next week.
She stretches too far then I worry she’ll ping, and
I don’t know if I could string her together again.
For now some dreams are too heavy,
she’s removed them. Hidden them like treasure.
She brings them out when she can. Handles them,
turns them to see if they shine in the gloom.
These dreams are more prone to fracture,
to shatter at a set time.
Aug 2, 2020
Aug 2, 2020 at 5:51 AM UTC
We talk in spoons. It’s an alchemy of sorts,
though we don’t seek gold or eternal youth.
A whole world of research says this curse is real,
yet Medicine has Science bound and starved.
We resort to picking at threads of work that we find,
weave from it our spells and our hope.
Pin to it her everyday dreams. And though
they are flimsy, her dreams are beautiful simplicity:
A five minute walk, or fifteen sat on the beach. A trip out, but maybe stay in the car. Ten minutes looking at clothes online, or coming downstairs if windows are shut and we close the blinds.
It is all connected, strung together like beads.
If she showers today, she can’t go for a walk ‘til next week.
She stretches too far then I worry she’ll ping, and
I don’t know if I could string her together again.
For now some dreams are too heavy,
she’s removed them. Hidden them like treasure.
She brings them out when she can. Handles them,
turns them to see if they shine in the gloom.
These dreams are more prone to fracture,
to shatter at a set time.
May '26. How times have changed 🙂 Medicine has caught up a little, partly due to the emergence of long Covid. It's been just over ten years since she got ill. Next week she sits her final exam for a level three qualification. She's crashing now but soon she'll be able to rest up and recover (whatever that ends up looking like and however long it takes).
