#cfs
last night her sleep was measured on steel,
****** down without a drop wasted.
we were spoons ‘til her limbs stilled -
tears spilled, found their way to my pillow.
I don’t know why I cry - if tears did help
she’d feel better by now.
Jan 20, 2021
Jan 20, 2021 at 3:39 PM UTC
We talk in spoons. It’s an alchemy of sorts,
though we don’t seek gold or eternal youth.
A whole world of research says this curse is real,
yet Medicine has Science bound and starved.
We resort to picking at threads of work that we find,
weave from it our spells and our hope.
Pin to it her everyday dreams. And though
they are flimsy, her dreams are beautiful simplicity:
A five minute walk, or fifteen sat on the beach. A trip out, but maybe stay in the car. Ten minutes looking at clothes online, or coming downstairs if windows are shut and we close the blinds.
It is all connected, strung together like beads.
If she showers today, she can’t go for a walk ‘til next week.
She stretches too far then I worry she’ll ping, and
I don’t know if I could string her together again.
For now some dreams are too heavy,
she’s removed them. Hidden them like treasure.
She brings them out when she can. Handles them,
turns them to see if they shine in the gloom.
These dreams are more prone to fracture,
to shatter at a set time.
Aug 2, 2020
Aug 2, 2020 at 5:51 AM UTC
No matter how much you sleep
sleep finds a way to creep
into your weary bones
and broken dragging mind
It always clings tight to you
fogging up your view
like sea mist over your eyes
it covers everything in sight
Rolling waves of exhaustion
sleeping now would be noxious
because the sea that is sleep
is only there to drown you
Aug 7, 2019
Aug 7, 2019 at 10:31 AM UTC