"vitiligo" poems
For years, longing long years
I mourned my smooth, young honey-hued, freckle-filled summers.
My tears, pander-eyed tears
Trickled down the furtive, long-sleeved, camouflaged decades.
I hoped hopeless hopes
That the pallid,white-lashed jig-saw stranger in the mirror should leave.
My fears, shadowy fears
Multiplied, forming stark splashes across the carefree canvas of my psyche.
Resigned, and re-designed
The pattern of my life became cheery-faced denial-by-self-tan.
And there, just where despair
Had me in its mottled, stubborn, white-knuckled, piebald grip
The long, long, longed-for thing
Occurred – showering my bleached body and soul with golden shards of joy.
The white, bright white
Which blighted my confidence and leached the tones from my being
Is going, going, gone
And I am once again becoming who I always so secretly and subcutaneously was.
I’m me… I’m free
And blissfully, gratefully, ecstatically aware that the final letters of my life’s curse are…
... "I GO"
Vitiligo © October 2011 Vitiligo Protocol
Nov 14, 2013
Nov 14, 2013 at 2:11 PM UTC
Now
You are a free oxygen radical,
you set the chain reaction
and there are more of you than I can
detoxify.
Then
I breathed you in-
-voluntarily;
you were always there,
at the end of the electron transport chain,
you broke apart
to accommodate my capricious protons
and you changed state;
for me.
Now
I am in oxidative
s
t
r
e
s
s
as you are colliding
your way through my melanocytes -
and my skin is draining white
and my eyes are burning red.
Jul 28, 2013
Jul 28, 2013 at 8:24 PM UTC
He calls my body a canvas,
Tells me that it is beautiful.
That my blemishes are beautiful,
My hair that curls a little too much in the back is beautiful,
My scars are beautiful,
My acne is beautiful,
My Vitiligo is beautiful,
My stretch marks are beautiful.
He tells me these things,
And I'm scared to believe him;
The idea of showing him my whole body is
Terrifying.
But if there's one person in the world,
Who can look upon my body without disdain,
With light in his eyes,
It's him.
I'm so thankful.
How did I get so lucky?
Nov 30, 2015
Nov 30, 2015 at 11:56 PM UTC
In the end of it all I never try to search for answers to the riddle anymore,
and the same songs will always find a way to play,
unlike me.
How do they manage it?
I'm weak and already sleeping in the ground.
A.D.H.T isn't special anymore and neither is Vitiligo,
just like diabetes isn't anymore and neither is cancer or tumors
or depression or anxiety
anymore.
We're just here not appreciating each other like everybody else.
Every thought is a chemical imbalance in the brain
and everybody's insane.
Oct 28, 2015
Oct 28, 2015 at 3:20 AM UTC
like the white clouds in the sky
i have white patches on my skin
the clouds make me happy
the cloud on my skin snatches away my smile
i just hope
i just pray
that one day my skin
would be cloud-less
Oct 24, 2014
Oct 24, 2014 at 1:02 AM UTC
14x 9
Presently worth $196,000
But what do I give away for the little girl that lives in the guest house
And the needy children around here
I turn on the light, and a picture of color, fabric, glitter, sparkle, and a few fashion faux pas stare back at me
The black dress is an dior original I wore it to mom’s funeral
My very first pink onsie from daddy is too small but it is too cute to give away
The red and white plaid skirt I wore on my last day of junior high
Tye-dye shirts the result of boring rainy Saturdays spent sitting around at home
Black knee high boots, I call those my stripper shoes
How could I part with any of this?
Each color was handpicked to complement my skin tone and conceal my vitiligo
Each botton here is one of a kind
Each portion of fabric was created for my small frame
Each scrap of embroidery was flown in from all around the world
Each speak of sparkle made from sequins, mesh and satin had been ordered weeks in advance
Each piece of lace and brocade was bought from a French tailor who went to school with daddy
Each piece of clothing here is very dear to me
How can I simply give away my memories to any old stranger?
Feb 21, 2018
Feb 21, 2018 at 12:55 AM UTC