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Longing for clouds in shallow ground.
To go back to the place i was found.
The whispers of wind crossing my breath.

In every instant I can see the clocks turn.
Have i come to myself to learn?

In these times of cloudy days iv learned to frown.

Become a clown...
Cover my face...
Live in secret....
In a nightmarish place.

Its all i can do to survive in this space

There is no grace in this empty place
No space.....
No space at all....
In this empty place.

Looking back threw the pages I awaken the memory.

I live in my thoughts in an enigmatic place.
Not clear where the others are.

Its all i can do to survive in this...
There is no space in this empty place.

No space....
No space at all....
In this empty space.

In dream my reality is delusion...
In walking my delusions are dream.

So cold of dreams I welcome to finally fill.

The chill has become so sharp I cant take this part.

Its all i can do to survive in this.....
There is no space in this empty place.

No space.......
No space at all......
In this empty space.

Have i come to myself to learn?

I have to face.......
that someone else needs to fill that space.

No space......
No space......
In the empty space.

Not clear where the others are..... I have left that place.

Left that place......
Left that place....
That painful place.

Clouds in shallow grounds.

*Living with Chiari Malformation, Ehlers-Danlos syndrome (EDS) and Dysautonomia
My Wings Fail Mother Nature.

In my world the sun always shines behind windows tainted....  the color of pink curtains draped threw its rays.

Someone take me away from the darkness ....I succumb.... feels so dark.

The walls that contain me are to keep me safe..... with its  dry stale air.... artificial  light .... keeping me from flight.

I need the light...... not just any light... one that shines a special way.....down on our  oceans, sees and bays......the one that shines on the wild.......it defines my purpose so I do not decline.

I miss my mother....... Mother Nature was always able to sooth the pain in my brain..... encourage me to dance.... to sing along.

All this eases the constant shame and for a moment I feel I belong..

She showed me many things  Id never had known on my own.

I learned to swim with her  fish and run with her deer....... she taught me to feel so much,  such love in her heart, she taught me to speak without any words and showed me many of natures cures.

I became addicted to her drawl and now her loss is causing a withdrawal......... like a drug screaming for my all.

Now I have to rely on man...... a concept not to familiar to me..... I suffer in his hands..... suffer so....why cant they just let me go.

Man was the only creature my Mother could not tell me of........ I was only told I was different.... Not like them.....that I would see.

God...I beg to walk in her grass ...dance in her winds...run in her rains...and feel her healing hands.
"I can't get up!"

I do not understand, its not all about this pain.....it is bearable at times when i try real hard......so why can't I get up.....work or play?

I just sit there so quiet as to not even think......?

Can't get up to just sit in the sun?.......... there is nothing left but man out there?.....

Its just "not" the same.

I really do...... as strong as my heart can want to go..... but my legs tire... I can not run.... my wings, to just lift them....how heavy they fell.

I am afraid now as the times I have run well..... in... "deceiving me".... my wings still failed.

God....I can take the pain....all the pain you can give.....It's taking my Mother  from me I can not stand!

I am not meant to sit here and dwell, I do not deserve to be in hell.

To many times I should have died...so many times I just tried.

But you still forgave me.......... I question why....this world is hard and I don't belong....

I cry so hard...for being barred....with absolutely no regard ....such tears I cry knowing  how easy it is for them to just discard my life.

What shame I feel deep inside....

I keep looking to be rescued for a hero to come...but  ....no hoof stomping sounds ......No white horse on my  drive...... it always stays predictably quiet.

I don't think I trust man or ever did....I think they have forgotten me trapped in here trapped in this land.

I don't think I'm going to be rescued or swept away.....I don't think I will ever be that miracle in....

....I am just one of the forgotten who hide inside....no one to speak of...... as they shut their eyes and cast their own lies in order to survive.

I guess no one can lift me from my pain.....no one cares I'm not there......so it really doesn't matter....as if I cared?

I care about my God...My mother and the few that understand....the ones who have helped me because they just can.

It is ok they laugh at my neck in a noose..... its been always abuse.

Never did I disbelieve in you father...... even when I turned by back in anger and said I didn't agree.

I have faith there is reasons for me to be the one...the one to hold the brunt of the pain.....make me responsible for others games.....make me suffer in another name...take on all the shame.

I can accept this but I beg you now....just give me back my Mother somehow.... I promise to move on from this and make you proud.

But my wildness is somehow...more important to me than I could ever tell.................my silent words.....  my language she knows.....just get me out ..........tell me my job is done.

I do not mind dying alone, but until then I need to go, there are things I need to do....people to touch and show the way.

I can not do this when my light is dark....please release me so I can show....that my life was worth this great big show.

I need to stretch my wings and fly again.....forget those who tried to steal my glow.

As long as you and I know who I am....your love will help my wings expand......so I can sore high above our land.

Please let me see my Mother again.

AL

*Living with Chiari Malformation, Ehlers–Danlos syndrome (EDS) and Dysautonomia.
Sono cresciuto in una terra strana
dopo che hai messo all'ombra la mia luce,
quasi non mossi piede dalla soglia
della mia meraviglia
per il dio nuovo cui tu m'opponevi.
In me cresceva il Dio dei miei domini
(ero ancora ragazzo)
ma tu mi hai rotto l'urlo ai vorticosi
margini della bocca,
l'urlo della potente giovinezza.
Mamma, io ti ringrazio
dalla rigida tomba entro cui siede
il mio pensiero finalmente puro.
Ora vedo che a forza mi hai strappato
il verde degli amari desideri,
mi hai edificato come l'architetto
sapiente che ritoglie chiari miti
dalle antiche macerie.

Nacqui umana rovina come tutti,
tu mi hai intessuta un'ala senza geli...
Bell'Alta Jun 2014
Sei nel mio cuore
Sei nei miei pensieri
Sei nella luce del sole
Sei nelle cose buone

Sei qui con me anche se
Sei lontanissimo da me
Come possiamo farlo?
Perché senza di te
Sono persa
Non sono io
Non sono a casa

Un giorno, ritornerò a trovarti
E saremmo insieme per sempre
Il mio cuore sara' pieno
I miei pensieri saranno chiari
La luce del sole brillerà piu forte
E le cose buone saremmo noi

Amore mio, ti amo
Ti ritornerò e sarai con me
MissNeona Feb 2021
It's been really quiet in my space...
The cat does his best.
I haven't been telling people the real heavy stuff.
Cause I don't want to. And I don't have to. And it never. ******. Helps.
But when I hear the heavy of others, somes I end up bawling until I can't breathe... and yeah, it's getting it out, but it comes back... so, right now? I choose to fight through it.
I choose to appreciate the space I have to cry until I can't breathe.
I choose to appreciate the fact that nobody sees me when I don't get out of bed well, or for days, or if I whimper all the hours between it.
I am appreciative that I can fall apart in this quietness for a while.
Because I have been all alone... for most of this entire pandemic.
I appreciate that nobody has seen my breakdowns.
My questions.
I am trying to appreciate this time of grieving.
Because who else could love this level of breakdown?
I never had anyone before who could comfortably sit through this with me.
Not even me.
Until now.
Now I love my breakdown, because nobody else could.
She doesn't need to be attended to. She doesnt want to be saved from the tower anymore.
She wants to sit here, and love herself for crying.
Crying without having to he seen.
Crying without having to be heard.
Crying is the absolute most badass thing I can do with this.
Take the rage, the whoa, self-pity, fear of fractalizaton and terror of the unknown.
I got up to here... having major symptoms of chiari formation, theough multiple sockets being subluxed and dislocated (fixing them myself, too)... waking up three mornings in a row... body releasing on itself and nobody around to clean up my messes and the cats death throws but myself.
I am here for these babies.
Because who else could see?
We aren't against anyone, just for ourselves.
But self advocacy is hard when you've allowed yourself to tell you you are weak, lesser, not equal to... everyone around you.
Allowing my needs to fade and go unseen so I wasn't a burden on anyone else... cause I was too much of a burden to myself.
This is my Ode to Self-Love
I am a badass warrior.
Because nobody could see nor save me from a tower of my own creation.
And when the skies cracked and the cat began to falter it was like pathateic fallacy.
I get back off the wall when I stumble into it.
I laugh when my body spasms and something falls cause it has to be funny.
When the pressures of the world make me crumble, I keep getting back up... not because of any reason other than.. nobody else can or would.
My ode to self love is a mark of a warrior because I never felt safe enough to share my issues cause sometimes I could make even therapists cry...
About 5-6 years ago I realized I was teaching the teachers... talking profession with the professionals and surprising so many people.
I wanted to understand everything and everyone so I could understand why I was so weird.
Turns out my health struggles I joked were like a bill Murray sighting, "Nobody will ever believe you."
So I had to see, believe in, and take care of myself (as much as possible).
My ode to self love.
The hardest one to love.
The toughest love.
Cause it showed me the easy way was rarely the best way.
That suffering merely means to undergo.
And that we are all playing g the game of life.
There are no manuals.
There's no walkthroughs.
There is no 'you', only me, we, us everything and nothing and ... we are all in this together.
And the only thing I can ever ask another is that they take care of their circus of cells in the way that only they know, and I am cheerleading supporting rooting for and fighting for the inter child inside of everyone around me.
Cause you give me life.
You give me strength.
You give me hope.
You give me love.
You give me faith.
You give me inspiration to keep going on.
You allowed me to see me past the circus of cells and beyond.
And I can't wait for your ode to self, too.
I love you.
Thank you.
Who else could fight the warrior's battle? Only you ♡
Sono cresciuto in una terra strana
dopo che hai messo all'ombra la mia luce,
quasi non mossi piede dalla soglia
della mia meraviglia
per il dio nuovo cui tu m'opponevi.
In me cresceva il Dio dei miei domini
(ero ancora ragazzo)
ma tu mi hai rotto l'urlo ai vorticosi
margini della bocca,
l'urlo della potente giovinezza.
Mamma, io ti ringrazio
dalla rigida tomba entro cui siede
il mio pensiero finalmente puro.
Ora vedo che a forza mi hai strappato
il verde degli amari desideri,
mi hai edificato come l'architetto
sapiente che ritoglie chiari miti
dalle antiche macerie.

Nacqui umana rovina come tutti,
tu mi hai intessuta un'ala senza geli...
Sono cresciuto in una terra strana
dopo che hai messo all'ombra la mia luce,
quasi non mossi piede dalla soglia
della mia meraviglia
per il dio nuovo cui tu m'opponevi.
In me cresceva il Dio dei miei domini
(ero ancora ragazzo)
ma tu mi hai rotto l'urlo ai vorticosi
margini della bocca,
l'urlo della potente giovinezza.
Mamma, io ti ringrazio
dalla rigida tomba entro cui siede
il mio pensiero finalmente puro.
Ora vedo che a forza mi hai strappato
il verde degli amari desideri,
mi hai edificato come l'architetto
sapiente che ritoglie chiari miti
dalle antiche macerie.

Nacqui umana rovina come tutti,
tu mi hai intessuta un'ala senza geli...

— The End —