Suddenly you've gone
Togetherness is not long
I miss you deeply my son
My only one

With your death, you've taught me all the facts
How to understand the disease called EDS
Too much complex! It presented problems no one could accept
You were bearing these on your death bed

Pain! days and nights
Your spines were not that right
Muscle spasm on your backside
So do your heart and even your eye sights

Moving slow
Enema ***** helped to pass down the flow
That is called 'diarrhoea overflow'
You've suffered all these... no one knows

I couldn't sleep till the first light
Now forty days and forty nights
These nights were the worst nights in life
I must overcome to be right

Missing you is my only right
Can't see solace on my way tonight

Thar Thar! My son!
Wakes up!
And help me to survive first
Then advise me how to live my life

To my late son Nanda Phyo Win who passed away on 1st September 2020