I feel like I can't help, like no matter what I do, I won't make a difference to the cause.
You're resilience and strength has inspired me the years that I have had the pleasure to know you. And now... Now there is this plague that is draining you and I can't change it or help it.
Your family has fought so many battles already. I have never met such a strong bunch. And yet, here they are, having to tackle ALS too.
Such a difficult thing. Something that has no cure or fix or remedy.
That's the funny thing about humans. We don't realize what it's like to not have control until we don't. How incredibly painful it must be to look at your hands, wanting to move them and nothing happens.
I put myself in your place, in your shoes and I am just a rock at the deepest darkest corner of the ocean, covered in algae and sand.
I am motionless.
Much like you will be for the rest of your life, however long we get to have you for.
I am flooded with the emotions and heart break. We have no control. We have no cure. We have no hope.
I want to muster all the hope and prayers I possibly can but I am just struck by the heart ache. I am weighed down by the thought of a world without you. I am scattered and crushed.
This entire time I have been saying nothing but "I" statements and how I feel and how I am. But this isn't about me and how heart broken I am... It's about you
The you who has been a pillar of love and strength to his family
The you who held his wife's hand as she battled cancer
The you who celebrated gleefully the 10 year anniversary of her remission
The you who lost loved ones to other dreadful diseases
The you who donated his time to the arts and the education system
The you who showed people how to think creatively
The you who raised three beautiful children
The you whose daughter is getting married this year
The you who won't be able to walk her down the aisle
The you gave and gave and gave until you actually couldn't walk anymore
This is all about you. The love that is being shown is to you. The tears that are being shed are for you. The hearts that are breaking, break for you. The minds kept up late at night writing frantically to ease the fears are for you. You are the center of this, our one priority.
Please, please let the prayers being poured out for you right now bring healing, bring peace and bring a miracle to you.
Life would not be the same without you and you need to know that.