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Daguetamra
Daguetamra
29 Geriatric nurse, mom to a toddler, and living with MuSK-MG, an autoimmune disease affecting nerve-muscle communication. Writing is my outlet. I work on grimdark manuscripts and am beginning to explore poetry.
They call it a job, but it is a slow bleeding no one charts. I walk into rooms where bodies betray themselves, where machines breathe louder than people, where families look at me like I hold something sacred I was never given. I learn how to speak in softness with hands that have held too much, how to say it’s okay when it isn’t, when it never will be. There is a sound a monitor makes when something is slipping away, and it follows me home like a ghost I cannot name. I carry strangers in my chest, their last words, their fear, the weight of their leaving pressed into places no one can see. I hold their hands when the room grows quiet, when the space between breaths stretches thin, when they search for something they cannot say out loud. Sometimes they hold on tighter, as if I am the last proof they are still here. Sometimes they let go slowly while I am still holding on. I wash my hands but nothing leaves. Not the faces, not the way a hand goes still in mine, not the quiet after when the room forgets them too quickly. I am expected to keep moving, to turn the bed, to answer the call light, to become steady again in seconds. So I do. I tuck the grief into my ribs, smile like something unbroken, chart like it was just another hour. But there are nights I feel it all at once, every loss, every almost, every ending rising like a tide in my throat. And still, I go back. Because somewhere between the breaking and the unbearable weight of it, there is a pulse that returns, a breath that stays, a life that refuses to leave. And for a moment, just a moment, I am part of something that chooses to remain.
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Mar 24
Mar 24, 2026 at 1:31 AM UTC
The Weight in My Hands
They call it a job, but it is a slow bleeding no one charts. I walk into rooms where bodies betray themselves, where machines breathe louder than people, where families look at me like I hold something sacred I was never given. I learn how to speak in softness with hands that have held too much, how to say it’s okay when it isn’t, when it never will be. There is a sound a monitor makes when something is slipping away, and it follows me home like a ghost I cannot name. I carry strangers in my chest, their last words, their fear, the weight of their leaving pressed into places no one can see. I hold their hands when the room grows quiet, when the space between breaths stretches thin, when they search for something they cannot say out loud. Sometimes they hold on tighter, as if I am the last proof they are still here. Sometimes they let go slowly while I am still holding on. I wash my hands but nothing leaves. Not the faces, not the way a hand goes still in mine, not the quiet after when the room forgets them too quickly. I am expected to keep moving, to turn the bed, to answer the call light, to become steady again in seconds. So I do. I tuck the grief into my ribs, smile like something unbroken, chart like it was just another hour. But there are nights I feel it all at once, every loss, every almost, every ending rising like a tide in my throat. And still, I go back. Because somewhere between the breaking and the unbearable weight of it, there is a pulse that returns, a breath that stays, a life that refuses to leave. And for a moment, just a moment, I am part of something that chooses to remain.
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Love with you is not loud. It does not arrive in fireworks or declarations meant for an audience. It lives in the quiet, in the spaces we don’t fill, in the way our silence understands itself. You are my husband, but more than that, you are the place I did not know I was searching for. I have always been someone who needed control, who held the world tightly just to feel steady inside it. And yet with you, something softens. I lose my place in you sometimes, not in a way that frightens me, but in a way that feels like finally resting. It is strange, to find yourself in another person, to see your edges blur and not rush to rebuild them. Your presence does not take from me. It gathers me, reflects me, shows me parts of myself I never knew how to hold alone. There is a quiet surrender in loving you, not loss, but a gentle unraveling of the need to always be in control. And in that surrender, there is something unexpectedly beautiful, something warm, something whole. I am not disappearing in you. I am being met. In your stillness, I expand. In your closeness, I breathe. And in the silence we share, I am no longer afraid to be consumed by something that feels like home.
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Mar 24
Mar 24, 2026 at 1:26 AM UTC
In the Stillness of You
I can breathe, they tell me that first, lungs rising, falling, numbers steady, oxygen obedient in my blood. So why does it feel like I am suffocating inside a body that won’t let me out? My muscles whisper no when I ask them for anything, eyes blur, limbs fade, voice weakens like a dying echo. And somewhere in the quiet panic is the truth I cannot escape: without the steroids, my chest could forget how to rise at all. So I take them. I take the breath and swallow the chaos with it. And then the storm begins. Lights are too loud. Sounds are too sharp. Crowds press against my skin like I am being peeled open from the inside. Time moves too fast, faster than I can keep up, faster than I can mother, faster than I can be me. I am holding a toddler while unraveling quietly, smiling, responding, existing, while something feral and frantic paces inside my ribs. I clean. I fix. I perfect. I chase control in straight lines and folded edges, as if order could stitch me back together. But it doesn’t. Because this body, this swollen, restless, foreign shell, is not the one I remember. Not the one that felt like home. I look at myself and feel like a visitor trapped behind my own eyes. And when the overwhelm crests, when the noise and the pressure and the too much spill over, my body flares. Again. And the answer is always the same, more medication, more infusions, more cycles of saving and unraveling and saving again. A loop with no clean edges. A breath that costs everything. I can breathe. Yes. My lungs obey. My vitals behave. But my mind is drowning in a body that feels like it’s closing in, tight, loud, relentless. So tell me, if air is filling my chest, why does it still feel like I am suffocating?
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Mar 24
Mar 24, 2026 at 1:09 AM UTC
Myasthenia Gravis
I can breathe, they tell me that first, lungs rising, falling, numbers steady, oxygen obedient in my blood. So why does it feel like I am suffocating inside a body that won’t let me out? My muscles whisper no when I ask them for anything, eyes blur, limbs fade, voice weakens like a dying echo. And somewhere in the quiet panic is the truth I cannot escape: without the steroids, my chest could forget how to rise at all. So I take them. I take the breath and swallow the chaos with it. And then the storm begins. Lights are too loud. Sounds are too sharp. Crowds press against my skin like I am being peeled open from the inside. Time moves too fast, faster than I can keep up, faster than I can mother, faster than I can be me. I am holding a toddler while unraveling quietly, smiling, responding, existing, while something feral and frantic paces inside my ribs. I clean. I fix. I perfect. I chase control in straight lines and folded edges, as if order could stitch me back together. But it doesn’t. Because this body, this swollen, restless, foreign shell, is not the one I remember. Not the one that felt like home. I look at myself and feel like a visitor trapped behind my own eyes. And when the overwhelm crests, when the noise and the pressure and the too much spill over, my body flares. Again. And the answer is always the same, more medication, more infusions, more cycles of saving and unraveling and saving again. A loop with no clean edges. A breath that costs everything. I can breathe. Yes. My lungs obey. My vitals behave. But my mind is drowning in a body that feels like it’s closing in, tight, loud, relentless. So tell me, if air is filling my chest, why does it still feel like I am suffocating?
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